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Birth Defect
National Organization for Vascular Anomalies 
Hemangioma Newsline became The National Organization of Vascular Anomalies in 2004 and is a non-profit organization established under IRS code 501c3a. The organization is dedicated to aiding individua... Details >
National Urea Cycle Disorders Foundation
This non-profit organization is dedicated to the identification, treatment and cure of urea cycle disorders. The National Urea Cycle Disorders Foundation (NUCDF) provides information, education and su... Details >
Shriners Hospitals for Children
Shriners Hospitals is a network of 22 pediatric speciality hospitals that provide free orthopaedic and burn care to children under the age of eighteen. There are 18 orthopaedic Shriners Hospitals, thr... Details >
Sotos Syndrome Support Association
The Sotos Syndrome Support Association (SSSA) was organized in 1988 to provide a support network for families and individuals affected by the syndrome. Sotos syndrome, also known as cerebral gigantis... Details >
Support Organization for Trisomy 18, 13 and Related Disorders
Support Organization for Trisomy 18, 13 and Related Disorders (SOFT) is a network of families and professionals dedicated to providing support and understanding to families involved in the issues and ... Details >
Wide Smiles
This voluntary organization provides information and support for families of children with cleft lip and palate birth defects. The organization maintains a cleft lip and palate resource web site on th... Details >
Williams Syndrome Association, Inc.
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The Williams Syndrome Association, Inc., is a national, non-profit organization whose purpose is to provide support and the latest medical and educational information to individuals with Williams Synd... Details >