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Birth Defect
Find an Organization by Health Topic Results: 1-17 of 17 Orgs
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American Cleft Palate-Craniofacial Association 
The American Cleft Palate-Craniofacial Association (ACPA) is an international, non-profit medical society of health care professionals from 30 disciplines and 40 countries who treat and/or research bi... Details >
Angelman Syndrome Foundation
The Angelman Foundation’s (ASF) mission is to advance the awareness and treatment of Angelman Syndrome through education and information, research, and support for individuals with Angelman Syndrome, ... Details >
Beckwith-Wiedemann Support Network
Beckwith-Wiedemann Syndrome (BWS) is a congenital growth related disorder. There are roughly thirty characteristics which can be associated with BWS. Most often seen are enlarged tongue, umbilical h... Details >
Birth Defect Research for Children, Inc.
Birth Defect Research for Children provides information and support to families of children with birth defects. BDRC sponsors research on birth defects caused by exposures to environmental agents--dr... Details >
CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Advocacy, and Support
CHERUBS is a volunteer organization that provides support, information and resources related to Congenital Diaphragmatic Hernia (CDH). Membership in the organization is open to adult survivors and par... Details >
Children's PKU Network
Children's PKU Network is a nonprofit agency founded in 1991 by the parents of a child diagnosed with PKU (Phenylketonuria). The agency offers support through various programs to assist families with... Details >
KS&A - Klinefelter Syndrome and Associates
KS&A’s mission is to help individuals with one or more extra X and/or Y chromosomes and their families lead fuller and more productive lives.... Details >
March of Dimes Birth Defects Foundation
The March of Dimes Birth Defects Foundation was established in 1938. Its mission is to improve the health of babies by preventing birth defects and infant mortality. The mission is carried out throu... Details >
National Birth Defects Center
Established in 1984, the Center provides diagnosis and treatment to children born with Birth Defects, Genetic Diseases and Mental Retardation. The Center consists of physicians and consultants in pedi... Details >
National Council on Alcoholism and Drug Dependence, Inc.
The National Council on Alcoholism and Drug Dependence, Inc.(NCADD), founded in 1944, is a national, nonprofit organization combating alcoholism, other drug addictions, and related problems. NCADD's ... Details >
National Organization for Vascular Anomalies
Hemangioma Newsline became The National Organization of Vascular Anomalies in 2004 and is a non-profit organization established under IRS code 501c3a. The organization is dedicated to aiding individua... Details >
National Urea Cycle Disorders Foundation
This non-profit organization is dedicated to the identification, treatment and cure of urea cycle disorders. The National Urea Cycle Disorders Foundation (NUCDF) provides information, education and su... Details >
Shriners Hospitals for Children
Shriners Hospitals is a network of 22 pediatric speciality hospitals that provide free orthopaedic and burn care to children under the age of eighteen. There are 18 orthopaedic Shriners Hospitals, thr... Details >
Sotos Syndrome Support Association
The Sotos Syndrome Support Association (SSSA) was organized in 1988 to provide a support network for families and individuals affected by the syndrome. Sotos syndrome, also known as cerebral gigantis... Details >
Support Organization for Trisomy 18, 13 and Related Disorders
Support Organization for Trisomy 18, 13 and Related Disorders (SOFT) is a network of families and professionals dedicated to providing support and understanding to families involved in the issues and ... Details >
Wide Smiles
This voluntary organization provides information and support for families of children with cleft lip and palate birth defects. The organization maintains a cleft lip and palate resource web site on th... Details >
Williams Syndrome Association, Inc.
Search for general information on Birth Defect
The Williams Syndrome Association, Inc., is a national, non-profit organization whose purpose is to provide support and the latest medical and educational information to individuals with Williams Synd... Details >