Protocol Number: 08-CC-0193

Title:

Research Participant Perception of Care Project: Part 1: Focus Groups of Research Participants and Research Professionals to Identify Key Dimensions of the Research Participant Experience

Number:

08-CC-0193

Summary:

This study will examine how research volunteers experience their participation in studies in order to develop surveys to be used by research centers trying to improve the experience of their participants.

People 18 years of age and older who have participated in an NIH research protocol within the past 2 years as someone with a medical condition under study may be eligible for this study.

Eight participants will participate in a moderator facilitated focus group in a discussion about being in research studies. An observer audiotapes the discussion and takes written notes. The focus group discussion lasts about 1 to 1 hours.

Sponsoring Institute:

National Institutes of Health Clinical Center (CC)

Recruitment Detail

Type: Participants currently recruited/enrolled

Gender: Male & Female

Referral Letter Required: No

Population Exclusion(s): Children

Eligibility Criteria:

INCLUSION CRITERIA:

You may be eligible to participate in this study if you:

-Are at least 18 years old.

-Are able to give informed consent.

-Have participated in an NIH research study within the past 2 years as someone with a medical condition under study.

-Can participate constructively and non-disruptively in the group discussion, in the opinion of the investigator.

-Are fluent in English

EXCLUSION CRITERIA:

You will not be able to be in this study if you:

-Do not sign this informed consent form.

-Do not agree to honor the confidentiality of others in the focus group.

-Do not agree to be recorded on audiotape.

Special Instructions:

Currently Not Provided

Keywords:

Perception

Perception of Clinical Reserach Participation

Focus Group

Recruitment Keyword(s):

Perception of Clinical Reserach Participation

Focus Group

Condition(s):

Participant Satisfaction

Investigational Drug(s):

None

Investigational Device(s):

None

Intervention(s):

None

Supporting Site:

Warren G. Magnuson Clinical Center

Contact(s):

Patient Recruitment and Public Liaison Office
Building 61
10 Cloister Court
Bethesda, Maryland 20892-4754
Toll Free: 1-800-411-1222
TTY: 301-594-9774 (local),1-866-411-1010 (toll free)
Fax: 301-480-9793

Electronic Mail:prpl@mail.cc.nih.gov

Citation(s): Not Provided

• Questions about participating in a study, please contact the Patient Recruitment and Public Liaison Office, CC.
• Technical questions regarding the Clinical Center web site, please contact the Department of Networks and Applications, CC.

Search The Studies | Help | Questions |
Clinical Center Home | NIH Home

National Institutes of Health Clinical Center Bethesda, Maryland 20892. Last update: 09/17/2008