About the NMF

The National Marfan Foundation is dedicated to saving lives, and improving the quality of life for individuals and families affected by the Marfan syndrome and related disorders.

Together with our National Volunteer Network, including Chapters, Support Groups and other local contacts, we disseminate accurate information, provide support and foster research.

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Press Room

News From The National Marfan Foundation

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08.21.08 FoxNews.com posted an important article about Marfan syndrome awareness and Michael Phelps on its website today

07.22.08 The NMF Mourns the Loss of Dr. Victor McKusick

06.09.08 Children’s Hospital Boston and Brigham and Women’s Hospital to Host 24th Annual National Marfan Foundation Conference, July 10-13, 2008

05.08.08 Old Drug Offers New Hope, segment on National Public Radio

04.30.08 Heartworks Gala Raises $1 Million for NMF Programs



The NMF Mourns the Loss of Dr. Victor McKusick


Click here for Clinical Trial information  
Click here to sign up for the GenTAC Registry

Marfan Syndrome A-Z Children’s picture book now available. Click here.
Teen Web Page
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(updated August 2008!)
Buy Mo on DVD Now!
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"Heart of the Matter"
Fact Sheet Series


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Today Show Segment

Understanding Marfan syndrome
Marfan syndrome

NEW! "have heart" bear
now available

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Learn About Upcoming Conferences And Events

Conference & Gala

Local Meetings & Events


Save the Date for Conference 2009 at the Mayo Clinic, Rochester, Minnesota


HeARTworks 2008 Recap

Click here for more information about this inaugural event!

View the Marfan Memorial Quilt and find out how to submit your own memorial block
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