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The
mission
of
the
National
Hansen’s
Disease
Programs
(NHDP)
is
to
conduct
research,
educate
patients
and
health
care
providers,
and
to
provide
direct
medical
services
to
Hansen’s
disease
patients
in
the
U.S.
and
its
territories.
In
carrying
out
this
mission,
the
program
collects
beneficiary
information
and
maintains
a
National
Hansen’s
Disease
Registry.
The
registry
is
a
computerized
database
that
provides
operational
information
for
administrative
reports,
and
can
be
a
useful
epidemiological
resource
for
certain
clinical,
rehabilitative
and
laboratory-based
research.
HD
Registry
data
are
collected
through
the
cooperative
assistance
of
healthcare
providers
and
a
network
of
state
and
local
healthcare
agencies.
Patient
information
is
provided
through
delivery
of
the
Hansen’s
Disease
(Leprosy)
Surveillance
Form,
which
serves
as
the
instrument
for
processing
new
cases
into
the
registry.
When
the
NHDP
becomes
aware
of
a
new
HD
case,
a
surveillance
form
is
sent
to
the
provider
to
obtain
the
data
needed
to
register
the
patient.
Registry
data
also
is
reported
by
various
state
and
local
government
agencies
through
the
same
surveillance
form.
Hansen's disease
is
a
federally
notifiable
disease
and
data
reported
to
the
National
Hansen's Disease
Registry
is
shared
with
the
Centers
for
Disease
Control
and
Prevention,
and
the
World
Health
Organization.
In
addition,
summary
reports,
customized
reports
addressing
special
data
inquiries
are
provided
to
other
governmental
agencies
and
qualified
academic
researchers
as
needed.
The
National
Hansen’s
Disease
Registry
is
a
record
of
basic
demographic
information
on
U.S.
HD
cases
presenting
since
1894.
The
majority
of
all
U.S.
cases
registered
have
presented
since
1980
(median
year).
The
total
number
of
U.S.
cases
registered
by
the
end
of
2005
was
12,025.
This report provides a
general
demographic
summary
of
the
cases
reporting
in
2005.
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