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»
Government Resources
»
Special Resources
»
Autism
Spectrum Disorders (ASD)/Asperger's
»
Cerebral Palsy
»
Intellectual
disability
»
Hearing Loss
»
Vision
Loss
»
Attention-Deficit/Hyperactivity Disorder (ADHD)
»
Additional Resources
GOVERNMENT
RESOURCES
Centers for Disease Control and Prevention (CDC) National Center
on Birth Defects and Developmental Disabilities
»
Web:
www.cdc.gov/ncbddd
National Dissemination Center for Children
with Disabilities
»
Web:
www.nichcy.org/states.htm
Department of Education
»
Web:
www.ed.gov/index.html
National Institute of Mental Health
»
Phone: 1-866-615-6464
»
Web:
www.nimh.nih.gov
State Health Insurance Program (SCHIP)
»
Phone: 1-877-KIDS-NOW
»
Web:
www.insurekidsnow.gov
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SPECIAL RESOURCES
American Academy of Pediatrics
»
Phone:
1-847-434-4000
»
Web:
www.aap.org
»
New
Autism Screening Guidelines:
http://www.aap.org/advocacy/releases/oct07autism.htm
CYFERnet:
» Web:
http://www.cyfernet.org/
Just in Time Parenting (JITP) Internet Site:
»
Web:
http://www.extension.org/parenting
Parent to Parent-USA
»
Web:
www.p2pusa.org
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AUTISM SPECTRUM
DISORDERS (ASD)/Asperger's
Autism Society of America (ASA)
Founded in 1965, ASA is the oldest and largest nonprofit autism
organization in the nation. ASA and its 200 chapters provide: free
information and referral services for parents, an interactive Web
site, educational and scientific conferences, and legislative
advocacy for services and funding for research.
»
Phone:
1-800-3-AUTISM
»
Web:
www.autism-society.org
Cure Autism Now
CAN is an organization of parents, clinicians, and leading
scientists dedicated to developing effective treatments and a cure
for autism. Cure Autism Now has invested more than $21 million in
autism research, the expansion of scientific resources, and raising
awareness for this devastating disorder. The Web site has
information about autism, biomedical research, government affairs,
and how to join CAN’s efforts.
»
Phone:
1-888-8-AUTISM
»
Web:
www.cureautismnow.org
Organization for Autism Research
OAR is a national nonprofit organization formed and led by
relatives of children and adults with autism and Asperger Syndrome.
OAR is dedicated to promoting research that can be applied to help
families, educators, caregivers, and individuals with autism find
much-needed answers to their immediate and urgent questions.
»
Phone:
1-703-351-5031
»
Web:
www.researchautism.org
Autism Speaks
»
Phone:
1-212-252-8584
» Web:
www.autismspeaks.org
First Signs
First Signs is a national non-profit organization dedicated to
educating parents and professionals about early identification and
intervention for children at risk for developmental delays and
disorders, including autism. The Web site provides essential
developmental information; a systematic guide that walks you through
each stage of the screening, referral, and diagnostic process;
listings of available local and national resources, and links to
research, books, articles, and programs nationwide.
»
Phone:
1-978-346-4380
»
Web:
www.firstsigns.org
National Institute of Child Health & Human Development
»
Web:
www.nichd.nih.gov/autism
CDC’s Autism Information Center Information on Vaccines and
Autism:
»
Web:
http://www.cdc.gov/ncbddd/autism/vaccines.htm
New York Families for Autistic Children
»
Phone:
1-718-641-3441
»
Web:
www.nyfac.org
MAAP Services for Autism, Asperger's, and PDD
»
Phone:
1-219-662-1311
»
Web:
www.maapservices.org
Online Asperger Syndrome Information and Support (OASIS)
»
Web:
www.udel.edu/bkirby/asperger
Asperger Syndrome Education Network (ASPEN)
»
Phone:
1-732-321-0880
»
Web:
http://www.aspennj.org/
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CEREBRAL PALSY
National Institute of Neurological Disorders and Stroke (NINDS)
»
Web:
www.ninds.nih.gov
Reaching for the Stars
»
Phone:
1-770-561-5950
»
Web:
www.reachingforthestars.org
United Cerebral Palsy
»
Phone:
1-800-872-5827
»
Web:
www.ucpa.org
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INTELLECTUAL
DISABILITY (ALSO KNOWN AS MENTAL RETARDATION)
American Association of Intellectual and Developmental
Disabilities (formerly American Association on Mental Retardation)
»
Phone:
1-202-387-1968
»
Web:
www.aaidd.org
The Arc of the United States
»
Phone:
1-301-565-3842
»
Web:
www.thearc.org
National Down Syndrome Society
»
Phone:
1-212-460-9330
»
Web:
www.ndss.org
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HEARING LOSS
Centers for Disease Control and Prevention, Early Hearing
Detection and Intervention Program
»
Web:
www.cdc.gov/ncbddd/ehdi
American Academy of Audiology
»
Phone:
1-800-AAA-2336
»
Web:
www.audiology.org
American Academy of Pediatrics Bright Futures
»
Phone:
1-847-434-4223
»
Web:
www.brightfutures.aap.org/web
American Speech-Language-Hearing Association
»
Phone:
1-800-638-8255
»
Web:
www.asha.org
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VISION LOSS
National Federation of the Blind
»
Phone:
1-410-659-9314
»
Web:
www.nfb.org
American Council of the Blind
»
Phone:
1-800-424-8666
»
Web: www.acb.org
American Foundation for the Blind
»
Phone:
1-800-232-5463
»
Web:
www.afb.org
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ATTENTION-DEFICIT/HYPERACTIVITY DISORDER (ADHD)
Children and Adults with Attention-Deficit/Hyperactivity Disorder
(CHADD)
»
Phone:
1-800-233-4050
»
Web:
www.chadd.org
CHADD National Resources Center
»
Phone:
1-800-233-4050
»
Web:
www.help4adhd.org
Attention Deficit Disorder Association (ADDA)
»
Phone:
1-484-945-2101
»
Web:
www.add.org
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ADDITIONAL
RESOURCES
Fetal Alcohol Syndrome
Centers for Disease Control and Prevention (CDC)
»
Web:
www.cdc.gov/ncbddd/fas/default.htm
»
Web:
www.cdc.gov/ncbddd/fas/documents/FAS_guidelines_accessible.pdf
Kernicterus
Centers for Disease Control and Prevention (CDC)
»
Web:
www.cdc.gov/ncbddd/dd/kernichome.htm
Tourette Syndrome
Centers for Disease Control and Prevention (CDC)
»
Web:
www.cdc.gov/ncbddd/tourette/default.htm
Down Syndrome
National Institute of Child Health & Human Development
»
Web:
www.nichd.nih.gov/health/topics/Down_Syndrome.cfm
Fragile X Syndrome
National Institute of Child Health & Human Development
»
Web:
www.nichd.nih.gov/health/topics/fragile_x_syndrome.cfm
National Fragile X Foundation
»
Phone:
1-800-688-8765
»
Web:
www.fragilex.org
Tuberous Sclerosis
Tuberous Sclerosis Alliance
»
Phone:
1-301-562-9890
»
Web:
www.tsalliance.org
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