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Problem:
Lung diseases cause significant childhood illness. Communities lack skilled care providers to meet the needs of CSHCN, including lung diseases. University of Wisconsin Pediatric Pulmonary Center (PPC) will improve the health of CSHCN by training leaders to provide healthcare in a medical home model.
Goals and Objectives:
Goal 1: Train healthcare providers, including PPC trainees and community healthcare providers to meet MCHB training goals and improve the health of children with chronic illness, including lung diseases.
Objective 1: Each year, provide exemplary leadership training, including interdisciplinary and discipline specific, to 8 long-term and 65 short/medium-term trainees and fellows in pediatric pulmonary medicine, nursing, nutrition, social work, and respiratory care, ensuring MCHB training competencies are met.
Objective 2: By year 4, develop, implement, and evaluate 3 distance learning projects including transition to adult care, MCHB mission and values, and pediatric tracheostomy and ventilator care to provide cost-effective education to trainees, fellows, and continuing education participants.
Objective 3: Each year, provide continuing education or technical assistance to 3000 practicing health care, education, or social service professionals and 50 groups or organizations, including Title V partners.
Goal 2: Promote a culturally and linguistically competent, family centered environment for the MCH workforce serving children with chronic illness, including lung diseases.
Objective 1: Each year, provide a minimum of 6 education or skill acquisition opportunities or sessions for PPC faculty, trainees, fellows, or practicing healthcare providers regarding cultural competence and family centered care.
Objective 2: By year 3, 20% of PPC trainees will be from underrepresented groups, utilizing innovative recruitment strategies.
Objective 3: By year 2, identify 10 families or youth to serve as PPC program advisors and by year 3, family or youth advisors will consult and advise on all aspects of PPC program planning and evaluation.
Goal 3: Maintain and extend exemplary interdisciplinary, coordinated care for children with chronic illness, including lung disease, through collaboration with families, communities,and health care providers.
Objective 1: Each year, provide direct clinical services to 750 children with chronic illness, including lung diseases, from Region V, using a medical home model of care.
Objective 2: By year 3, develop and implement dynamic partnerships with 5 state or federally funded programs and 10 community providers to improve clinical services, including underserved MCH populations in the region.
Objective 3: Each year, advocate for or with a minimum of 100 families to ensure they receive the health care and support services they require and assure necessary follow-up services.
Goal 4: Enhance MCH training, inform policy, and improve health outcomes for children with chronic illness, including lung diseases, through education, needs assessment, research, and evaluation.
Objective 1: Each year, provide at least one opportunity for each PPC faculty and trainee to meet or fulfill continuing education needs to support continued evidence-based health care for children with chronic illness, including lung diseases.
Objective 2: By year 2, three adjunct UW PPC faculty will provide research opportunities for PPC trainees and fellows.
Objective 3: By year 3, PPC faculty will engage in 2 research projects or needs assessments, related to interdisciplinary training and care of children with chronic illness, including lung diseases, involving trainees in research appropriate for their level of training, professional requirements, and commitment.
Goal 5: Foster a broad public health perspective among PPC faculty, fellows, and trainees, including advocacy, public policy, program needs assessment, planning and evaluation, and the legislative process.
Objective 1: Each year, collaborate with at least 8 other MCHB training programs or state MCH CSHCN staff on local, state, regional, and national levels to address the needs of children with chronic illness, including lung diseases.
Objective 2: Each year, disseminate information regarding MCHB and PPCs to 20 key stakeholders including legislators, advisory boards, coalitions, or committees serving MCH populations, including CSHCN and their families.
Objective 3: Each year, PPC faculty and trainees will receive training to maintain skills in public health, public policy, and advocacy, utilizing resources within UW Madison and MCHB, and providing opportunities to interact with public health professionals at all levels. Methodology:
The PPC faculty, consisting of PPC core disciplines, as well as pharmacy and home care, is responsible for training, continuing education, and technical assistance for community care providers, MCH, and Title V programs. Long-term leadership training is based on the goals and objectives of the PPC core curriculum. Learning activities addressing competency areas are completed through individualized programs collaboratively negotiated between trainees and PPC faculty preceptors. The core curriculum includes: 1) online PPC graduate course “Interdisciplinary, Coordinated Care of the Child with Chronic Illness,” 2) clinical practica experiences at UW Children's Hospital and community based sites, 3) participation in community outreach education/consultation and technical assistance. 4) participation in research appropriate for training level and commitment. 5)Capstone experience. Innovative recruitment efforts and flexible training schedules will be developed to enhance the number of qualified and diverse trainees. The PPC will use local, regional and national resources to promote faculty development in the areas of public policy and advocacy, cultural/linguistic competence, and leadership development. In order to provide flexible and cost-effective training and continuing education, a number of distance learning projects will take place including training modules on transition of CSHCN to adult care, MCHB mission and values, and pediatric tracheostomy and ventilator care.
Coordination:
PPC works with State of Wisconsin Title V CSHCN, Division of Health Care Financing, Newborn Screening, WIC and EMSC programs on training, program and policy development. PPC works with MCHB programs such as UW LEND, HRTW, UMN CSHCN nursing, UW Population Sciences, U Illinois-Chgo MCH SPH on training, program planning. PPC consults with local providers and cares for underserved population at Madison Community Health Center and outreach sites. PPC provides training and education for school staff.
Evaluation:
Evaluation uses data on trainees, services, technical assistance, and continuing education collected and reported to MCHB in annual progress reports, providing quantitative data on activities,qualitative productivity analysis, and progress towards meeting performance measures, process, and outcome objectives. Trainees and training are evaluated by faculty and trainees using quantitative and qualitative tools. PPC graduates are surveyed 5 yr post graduation to measure leadership in MCHB field.
Experience to Date:
Five of 8 long term trainees will complete training in FY 2005-06; 3 will complete training in FY 2006-07. 2 long term trainees are from an underrepresented group. 40 medium and 76 short term trainees also completed training. 116 Continuing Education topics were provided to 3514 professionals and 5 CE programs were provided by 3 long term trainees. CE program had local, state, national and international reach. Technical Assistance was provided to 65 groups or organizations, including 40 Title V partners. Clinical services were provided to 825 CSHCN using a medical home model of care. Trainees participated in 3 community based projects developing outreach services to patients and healthcare providers, and 6 research projects. With support from the WI CSHCN Program, the UW PPC surveyed 1200 WI pediatric healthcare providers regarding healthcare transition practices. A survey was designed to assess the impact of the UW PPC web based course on future practice and was administered to students in the Spring 2006 semester. The UW PCC collaborated with 7 WI MCHB programs. A new UW PPC brochure and banner were developed for recruitment and marketing to key stakeholders. The web based national PPC Cultural Competency Modules were launched for CE credit in FY 2005-06 and are used by several MCH programs for training. Progress in family involvement included six families assisting the PPC this year. UW PPC faculty attended the national PPC meeting whose topic was family involvement.
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