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University of Florida

Grant Title: Pediatric Pulmonary Center

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Project Director(s):

Abby  Wagner,
Pediatric Pulmonary Division
1600 SW Archer Road P.O. Box 100296
Gainesville, FL 32610
(352) 392-4458
Email: wagneam@peds.ufl.edu

Problem:

Many children and families in the United States are affected by chronic respiratory conditions. These conditions have a high prevalence in the southeast. Healthy People 2010 goals include several aimed at improving the respiratory conditions in children and reducing disparities in care.

Goals and Objectives:

Goal 1: Recruit and retain diverse graduate level trainees and fellows who demonstrate high potential for MCH leadership. Objective 1: Recruit and retain culturally and linguistically diverse trainees with high leadership potential from underrepresented groups. Objective 2: Recruit and retain one to two long term trainees with high leadership potential per year in nutrition, nursing, social work and respiratory therapy. Objective 3: Recruit and retain one to two pediatric pulmonary fellows per year of the granting cycle. Goal 2: Educate fellows and trainees to be leaders in maternal and child health with an emphasis on the interdisciplinary care of children with chronic respiratory conditions. Objective 1: Educate fellows and trainees in clinical leadership skills in the care of children with chronic respiratory conditions, using an interdisciplinary, culturally competent, family-centered approach. Objective 2: Educate fellows and trainees to be leaders in public health issues and population based approaches to improve the health status of mothers an children. Objective 3: Educate fellows and trainees in professional development including research, evidence-based medicine, lifelong learning, professionalism and ethics, self-reflectation, adult learning theory and the use of technologic applications. Goal 3: Provide interdisciplinary education programs at the local, state, regional and national levels to address key MCH issues and the Health People 2010 objectives. Objective 1: Provide statewide interdisciplinary distance education programs to Children's Medical Services, Public Health Departments, practicing professionals and MCH trainees. Objective 2: Provide ongoing distance education programs to regional MCH/CSHCN agencies in collaboration with the Institute for Child Health Policy and the Suwanee River AHEC. Objective 3: Provide "Updates in Pediatric Pulmonary Care" conference annually and collaborate with other agencies/programs to meet the continuing education needs of health professionals at the local, state, regional and national levels. Goal 4: Collaborate with, and provide technical assistance to, Title V and other MCH agencies at the local, state, regional and national levels. Objective 1: Provide services and technical assistance to Medicaid and the Florida Department of Health (including Children's Medical Services). Objective 2: Collaborate with, and provide technical assistance to, additional agencies receiving Title V funds. Objective 3: Collaborate with the Region IV coalition to enhance and improve systems of care and influence public policy for children with asthma. Goal 5: Expand PPC programs in key MCH/Healthy People 2010 areas including cultural competence/diversity, family involvement and faculty development. Objective 1: Continue to develop and enhance cultural competence/diversity in all aspects of the Pediatric Pulmonary Center Program. Objective 2: Continue to develop and enhance family-centered care at all levels of the Pediatric Pulmonary Center Program. Objective 3: Maintain an emphasis on faculty leadership development, in the areas of clinical, research, teaching and policy skills.

Methodology:

The University of Florida Pediatric Pulmonary Center provides long term training for future leaders in the culturally competent, family-centered, community based interdisciplinary health care of children with pulmonary disorders. This training emphasizes a population-based as well as a direct service approach and incorporates the goals of Healthy People 2010, the Institute of Medicine and the Maternal and Child Health Bureau strategic plan, with a particular focus on reducing health care disparities. Short term, medium term and continuing education training maintain a similar focus. The UF PPC uses a multi-faceted approach to training. A trainee's experience at the PPC includes didactic training (lectures and workshops in the Core Curriculum), Peer Oriented Simulation Exercises (POSEs), self-directed learning activities (SDLAs), clinical experience, experiences in adminstration and advocacy, mentoring and participation in faculty leadership activities. Most topics and concepts are taught through several or all of these activities. Core concepts (e.g. leadership, cultural competence, family involvement, collaboration, interdisciplinary care) are an integral part of the PPC environment and are infused into all aspects of training. Similarly, these concepts and values are integrated into all aspects of continuing education and technical assistance.

Coordination:

The UF PPC has relationships with many organizations including Children's Medical Services, Suwannee River Area Health Education Center, Child Advocacy Center, Florida Departments of Health and Education, Medicaid, WIC, Department of Health and Human Services Region IV, MCH/CSHCN Agencies, Region IV Asthma Coalition, Centers for Disease Control, Environmental Protection Agency, American Lung Association, Institute for Child Health Policy and the Cystic Fibrosis Foundation.

Evaluation:

Each objective of the grant will be evaluated by both process and outcomes measures. The outcomes measures will utilize evaluation tools developed by the UF PPC faculty. The process measures will include the PPC central data collection materials and MCH performance measures.

Experience to Date:

Over the past year the University of Florida PPC recruited and retained 9 long-term, 33 medium-term and 30 short-term trainees, of whom 29% were from underserved groups. The UF PPC provided 117 in-person and distance education sessions to 2290 participants and provided 38 technical assistance sessions to Title V and other agencies. The PPC is increasing recruitment of minority trainees and faculty. The PPC, in collaboration with the Florida Departments of Health and Education, completed and disseminated the Guidelines for the Delegation of Care for Students with Asthma in Florida Schools. Video training in asthma care for school personnel was broadcast statewide and is available on DVD and on the DOH website. The PPC, with the help of the MCH funded Florida Institute for Family Involvement, has employed a Family Resource Partner and developed a Family Advisory Board. Lisa Magary, RRT, RN has been hired to enhance respiratory care training and to strengthen collaboration with the respiratory care program at Santa Fe Community College. The PPC dietitian’s contributions to the Pediatric Nutrition Practice Group of the ADA were acknowledged this year when she received their “Outstanding Member of the Year” award. The PPC Cross Cultural Case Studies are being marketed nationally to MCH trainees and health professionals. The PPC Director provides local, state and national consultation and training on pediatric sleep disorders and has applied to provide a Sleep Fellowship at UF.