Summary of the Data Challenges Critical Issue Session
Philadelphia: Regions I, II, III
October 5, 1998
Moderator:
Diane Wagener, PhD
Acting Director, Division of Health Promotion Statistics
National Center for Health Statistics, CDC
Panelists:
Ron Bialek, MPA
Executive Director, Public Health Foundation
Measuring Health Objectives and Indicators: 1997 State and Local Capacity Survey.
Findings:
- States emulate Healthy People.
- States choose objectives for which they have data.
- States use State data sources predominantly with some Federal and private sector data.
- States have mortality and infectious disease data; need behavioral and process data.
- States are challenged by getting timely data--on average baseline data were two or more
years old.
- States have difficulty in supplying morbidity data to localities.
- If given a $1 million budget increase, States would choose to put that money into
training to use better the data that are available.
Harry Rosenberg, PhD
Chief, Mortality Statistics Branch, Division of Vital Statistics
National Center for Health Statistics, CDC
Challenges in data collection for Healthy People 2010.
Revisions of the International Classification of Diseases (ICD).
- ICD-9 contains 3,000 diseases; 72 causes of death.
- ICD-10 contains more than 8,000 diseases; 113 causes of death. ICD-10CM contains more
than 45,000 codes.
- Implementation of ICD-10 begins in 1999.
- The additions of new diseases and reclassification could result in discontinuity in
tracking trends.
- Suicides will be called self-inflicted injury; motor vehicle accidents will look very
different.
- Age-adjustments for mortality data.
- Currently NCHS uses age adjustment standards based on the population composition of
1940.
- To update these standards based on the current demographic composition and to create
uniformity among HHS agencies, Secretary Shalala issued a directive requiring that
effective in January 1999, deaths be recorded and adjusted to the projected year 2000
population estimates; this standard will be called age adjustment to the year 2000.
- The new age adjustment will have an effect on death rates; overall the rate estimates
will be higher, black rates will be improved relative to white rates--an effect that the
Office of Minority Health and NCHS are working on to communicate.
- Revisions will be considered every 10-20 years to the age adjustment standard.
OMB Standard on Race and Ethnicity.
- OMB Standard on Race and Ethnicity is reported in the Federal Register on October 30,
1997.
- The revision adds Asian as a separate category from Native Hawaiians and Pacific
Islanders.
- The new classification takes effect in 2003.
- The year 2000 census will enable people to check more than one race. Because an
estimated 5 percent of the population is expected to report multiple races, tabulations
will need to be run to compute race specific rates. These methodologies are still under
development.
Ron Wilson
Consultant, National Center for Health Statistics, CDC
Challenges in Small Area Data Collection for Healthy People 2010
Do we need small area data?
- National data or synthetic estimates can be used to identify problems at a local level.
However, local, small area data are needed to track progress.
- There is a need for a discussion regarding what kinds of small area data are
appropriate. Health outcomes may be difficult to measure because of small numbers, whereas
process indicators would be more reliably assessed.
- There is a need for careful evaluation of what is being measured. Some indicators are
more sensitive to social system changes than to actual health status, for instance
limitations in activities depend on what activities are considered "usual". Is
there consistency between indicators? What effect do different survey questions or
modalities have on the responses?
Discussion: