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Caregiver Resources

On September 18 the Centers for Medicare & Medicaid Services (CMS) will launch a caregiver initiative through a live webcast with Acting Administrator Kerry Weems and a number of key partner organizations. During the webcast, Mr. Weems will provide an overview of the initiative and take questions from caregivers, partners, the media and other stakeholders through electronically submitted questions. Register for this important webcast.

Information to help inform and support people living with amyotrophic lateral sclerosis (ALS), often referred to as "Lou Gehrig's disease," and their families and caregivers.

Information on the abuse and neglect of children with cognitive, intellectual and developmental disabilities and how to help prevent and report abuse.

Information from the FDIC on insurance coverage for accounts you are managing as a caregiver.

Information for families who may be considering adopting children with developmental disabilities such as Down syndrome, cerebral palsy or autism.

Information about research on quality health services for children.

Developed and maintained by the National Council on Aging (NCOA), BenefitsCheckUp is a comprehensive Web-based service to screen for benefits programs for seniors with limited income and resources.

The Centers for Medicare & Medicaid Services (CMS) has announced that it will soon launch a ground-breaking ranking system of America's nursing homes, giving each a star rating. CMS is requesting comments on the system designed to provide patients and their families an easy to understand assessment of nursing home quality, making meaningful distinctions between high performing and low performing homes.

Information on caregiver support programs in each of the 50 states and the District of Columbia.

Resources for caregivers and links to organizations that provide assistance.

Information and resources for caregivers of people living with Alzheimer's disease.

Information and links to CDC's work with birth defects and developmental disabilities, prevention of disabling injuries and the health and well-being of individuals with disabilities.

Entry point for information on the Medicare and Medicaid programs.

Explains preventive care for children such as checkup visits, immunizations and tests and exams and provides guidance on related issues.

Information for parents and children with diabetes.

Information on the Child, Adolescent and Family Branch of the Federal Center for Mental Health Services, which promotes and ensures that the mental health needs of children and their families are met within the context of community-based systems of care.

Information and links to resources for caregivers of people with paralysis.

An online educational resource offering training opportunities for caregivers, teachers, mentors and counselors of individuals with developmental disabilities.

Information and resources from the National Organization on Disability on increasing alternatives to institutional services and other issues related to community-based services and legislation.

Links to a broad range of federal health resources available online.

DPC is an independent, nationwide, non-profit, patient-governed dialysis patient organization dedicated to improving dialysis patients' quality of life by developing awareness of dialysis-related issues, advocating for dialysis and pre-dialysis patients, improving the partnership between patients and caregivers and promoting favorable public policy.

Contains information on various programs for families and children administered HHS, including a block grant program to help families care for children with special health needs.

December 2007 news release from the VA has regarding nearly $4.7 million for caregiver assistance pilot programs to expand and improve health care education and provide needed training and resources for caregivers who assist disabled and aging veterans in their homes.

Brochure describes ways to assess when a loved one needs outside care. It covers developing a care plan, organizing important documents and what you can do to give support.

The home page to the Centers for Disease Control and Prevention (CDC) Disability and Health Team, with information for people with disabilities and healthcare providers on maintaining health standards.

Discussions of evaluating and choosing a facility, generating family consensus, resident rights, and dispute resolution in nursing home selection.

Nationwide database of Aging Network agencies available to help older adults with disabilities and their family caregivers access needed services and support.

U.S. Department of Defense's wide-ranging educational, medical and early intervention services to military family members with disabilities.

This site was created exclusively for people who are caring for loved ones. It is designed to assist the caregiver with practical information and moral support.

Here's advice from the Federal Deposit Insurance Corporation (FDIC) on how to prevent and deal with potential money problems when loved ones are ill, even from a distance.

Information regarding fire safety for individuals with disabilities and their families and caregivers.

Federal government Web site with detailed information on government benefit programs.

Booklet from the Centers for Medicare and Medicaid Services examines topics such as how to find and compare nursing homes, nursing home resident rights and where to call for help. Document is in .pdf format.

News and information from the National Organization on Disability about health care access issues of particular concern to the disability community.

Health care resources for women, children, people living with HIV/AIDS, health professionals and others from the Health Resources and Services Administration (HRSA).

Gateway to reliable consumer health and human services information developed by the U.S. Department of Health and Human Services.

Fact sheet from the Arc addresses common questions regarding Individual Service Coordination for individuals with Mental Retardation. Individual Service Coordination (ISC) is a service that individuals or families may use to obtain needed supports. Document is in Word format.

Booklet about informal caregiving (unpaid care given voluntarily to ill or disabled persons by their families and friends).

This broadcast will take place September 17, 2008 from 1:00 - 2:00 p.m. Eastern Time. Employers looking to expand or create services and programs to support employed caregivers, caregivers working full or part-time and caring for a loved one and organizations providing caregiver services are all encouraged to participate. Register to watch this broadcast online.

Basic paper examines family caregiving; caregiver employment, attention to other family needs, health, and finances may compromise the caregiving relationship leading to inadequate care.

Disability-specific and general information on hundreds of diseases, conditions and wellness issues.

This Locator provides you with comprehensive information about mental health services and resources and is useful for professionals, consumers and their families, and the public. You can access this information in several ways by selecting a State or U.S. Territory from the map or drop-down menu.

Provides support to physicians, families and other medical and non-medical providers who care for children with special needs so that they have access to a medical home.

Supports efforts to improve recruitment and retention of direct service workers who help people with disabilities and older adults to live independently and with dignity.

U.S. Department of Health & Human Services resources for caregivers.

Supports, empowers, educates and speaks up for the more than 50 million Americans who care for a chronically ill, aged or disabled loved one.

The MRDD Branch sponsors research and training aimed at preventing mental retardation and related developmental disabilities.

A guide for people with disabilities, benefits counselors, disability organizations and others on ensuring adequate and appropriate access to prescription drugs. Document is in Word format.

Information on health plans, nursing homes, Medigap policies, contacts and Medicare.

Publications on mental health and disaster issues from the Substance Abuse and Mental Health Services Administration (SAMHSA).

Links for support, caregiving organizations, care homes, special needs trusts, and death & dying.

Fact sheet from the Arc regarding respite care, temporary care provided to people with disabilities in order that their families can take a break from the daily routine of caregiving. Document is in Word format.

U.S. Department of Health & Human Services study of the extent to which states have changed welfare-to-work policies as applied to individuals with disabilities and caregivers.

Webcast features family caregivers who have applied innovative means to be effective caregivers in rural areas.

Information on TLG, a nationally recognized center that has pioneered research, training and services for families in which a child, parent or grandparent has a disability (including physical, developmental or intellectual disabilities) or medical issue.

This new section of USA.gov offers links to many resources, including information on eldercare, long-distance caregiving and federal benefits programs.

A national, not for profit membership organization that gives support to wives, husbands and partners of people who are chronically ill and/or disabled.

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Innovative Employer Caregiving Programs
This broadcast will take place September 17, 2008 from 1:00 - 2:00 p.m. Eastern Time. Employers looking to expand or create services and programs to support employed caregivers, caregivers working full or part-time and caring for a loved one and organizations providing caregiver services are all encouraged to participate. Register to watch this broadcast online.
Exceptional Family Members Program of the Military Assistance Program
U.S. Department of Defense's wide-ranging educational, medical and early intervention services to military family members with disabilities.
Centers for Disease Control & Prevention (CDC) Disability Page
Information and links to CDC's work with birth defects and developmental disabilities, prevention of disabling injuries and the health and well-being of individuals with disabilities.
Health Care Resources from HRSA
Health care resources for women, children, people living with HIV/AIDS, health professionals and others from the Health Resources and Services Administration (HRSA).
Ask Medicare Caregiver Initiative
On September 18 the Centers for Medicare & Medicaid Services (CMS) will launch a caregiver initiative through a live webcast with Acting Administrator Kerry Weems and a number of key partner organizations. During the webcast, Mr. Weems will provide an overview of the initiative and take questions from caregivers, partners, the media and other stakeholders through electronically submitted questions. Register for this important webcast.