U.S. Department of Health and Human Services, National Institutes of Health (NIH), National Institute for Diabetes and Digestive and Kidney Disease (NIDDK) in collaboration with the U.S. Department of Health and Human Services, Centers for Medicare & Medicaid (CMS).
Continuous mandated reporting from physicians who treat end-stage renal disease (ESRD).
The database consists of patient and facility records from the CMS ESRD Program Management and Medical Information System, the Annual Facility Survey, and data on transplant follow-up and Medicare parts A and B services derived from Medicare claims. These CMS-supplied data are supplemented by data from the Social Security Administration, the U.S. Department of Veterans Affairs facilities, the U.S. Census Bureau, local and national ESRD provider databases, and international ESRD registries. Patient-specific data are compiled from medical records, as well as data on medical providers and treatment facilities. Special studies utilize random samples of patient population medical records.
Date of onset of ESRD, treatment modality (including dialysis and kidney transplantation), causes of death, patient survival, hospitalization, cost and cost effectiveness, and institutional providers of ESRD treatment. Questions in special surveys cover behavioral risk factors (for example, alcohol and tobacco use), preventive health measures, health status, limitation of activity, and health care access and utilization.
Medicare and non-Medicare ESRD patients.
Gender, age, income, education, race, ethnicity.
Continuously since 1988.
Annual.
National, State, and county.
The USRDS provides data on the incidence, prevalence, mortality rates, and trends over time of end-stage renal disease by primary diagnosis, treatment modality, and sociodemographic variables.
Agency homepage: http://www.niddk.nih.gov.
Data system homepage: http://www.usrds.org.
United States Renal Data System, Researcher's Guide to the USRDS Database, National Institutes of Health, National Institute of Diabetes and Digestive and Kidney Diseases, Bethesda, MD, 2004.
U.S. Renal Data System, USRDS 2004 Annual Data Report: Atlas of End-Stage Renal Disease in the United States, National Institutes of Health, National Institute of Diabetes and Digestive and Kidney Diseases, Bethesda, MD, 2004.
See http://www.usrds.org for updated Annual Data Reports.