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Medical Homes in Colorado
This page is designed to keep you informed about events and activities happening in Colorado that will help improve access to medical homes for children with special health care needs (CSHCN).

Click on a topic below to learn more about what's going on in Colorado
»Medical Home Initiatives »Resources
»Related Grant Initiatives »Educational Initiatives
»Partners in the State »Screening Initiatives
  »Autism Service Guidelines

Medical Home Initiatives
This section provides information on state medical home initiatives/programs. States that are a part of the mentorship network will have a "Promise to the State" which outlines how they will achieve ensuring that all children have a medical home by 2010. This is based on the Healthy People 2010 goals which is a 10 year action plan to achieve and measure success for all CSHCN.

Colorado Medical Home State Contact:

Name: Kathy Watters, Director Health Care Program for Children with Special Needs
Contact: Phone: 303 692-2418 | Email: kathy.watters@state.co.us
State Team: Roster

COLORADO'S "VISION" FOR MEDICAL HOME Adobe PDF
A Medical Home is not just a building, house or hospital, but a team approach to providing health care. A Medical Home originates in a primary health care setting that is family-centered and compassionate. A partnership develops between the family and the primary health care practitioner. Together they access all medical and non-medical services needed by the child and family to achieve maximum potential. The Medical Home maintains a centralized, comprehensive record of all health related services to promote continuity of care.

Children with special health care needs (CSHCN) may have many professionals invested in their physical and emotional well-being. Coordination of care is an essential activity to assure communication and planning amongst team members, including family, primary health care practitioners, specialists, community programs and insurance plans.

Colorado has a Medical Home Advisory Board since 2000
Adobe PDF (COMING SOON)

Medical Home Strategic Planning Team Adobe PDF

Colorado was selected to be part of the National NICHQ Medical Home Learning Collaborative - A fifteen-month collaborative activity to improve care for the growing population of CSHCN. This initiative focuses on 3 practices in the state and assists them in completing a quality improvement process to provide medical homes to their patients with special needs. It also assists in building the capacity of Colorado's CSHCN and other health department programs to support and extend this approach after the completion of the project period. For more information you can go to the project overveiw.

Parent-Practice Partnerships
Adobe PDF
(COMING SOON)

Colorado Medical Home Initiative Web Sites:

Colorado Medical Home Web site:
www.cdphe.state.co.us/ps/hcp/medicalhome/index.html

Title V Block Grant to States
Title V of the Social Security Act is one of the largest Federal block grant programs. It leads the nation in ensuring the health of all mothers, infants, children, adolescents, and children with special health care needs (CSHCN). Title V is administered by the Maternal and Child Health Bureau (MCHB) as part of the Health Resources and Services Administration, U.S. Department of Health and Human Services.

Title V and Children with Special Health Care Needs
MCHB Objective: Support development and implementation of comprehensive, culturally competent, coordinated systems of care for the estimated 18 million U.S. children who have or are at risk for chronic physical, developmental, behavioral or emotional conditions and who also require health and related services of a type or amount beyond that required by children generally

MCH Contact:
Karen Trierweiler
Director, Center for Healthy Families and Communities
Address: Colorado Department of Public Health and Environment PSD-ADM-A4,
4300 Cherry Creek Drive South
Denver, Colorado  80246
Phone: 303 692-2481 |Fax: 303 782-5576
Email: karen.trierweiler@state.co.us

CSHCN Contact is the medical home contact, see Medical Home Contact for more information.

Related Grant Initiatives
This section provides information on current state grants that are working on medical home initiatives. This includes the grant abstract as well as key contacts for the grant.

The Mountain States Regional Collaborative (AZ, CO, MT, NM, NV, TX, UT & WV) was awarded a Medical Home Visting Professorship

Medical Home Visiting Professorship Pilot Program

The American Academy of Pediatrics National Center for Medical Home Initiatives for Children with Special Needs and the American College of Medical Genetics' National Coordinating Center for the Regional Genetics and Newborn Screening Service Collaboratives (NCC) in partnership with the ACMG and MCHB recently developed a pilot visiting professorship program. This program focuses on the specific topic areas of genetics and medical home and also establishing linkages between Regional Genetics and Newborn Screening Services Collaboratives (RCs) and AAP Chapters.

Hemophilia Grant: Abstract
Principal Investigator:
Marilyn Manco-Johnson, MD
Project Period:
June 1, 2002 through May 31, 2005
Purpose:
The purpose of this proposal is to continue the family-centered, community-based comprehensive hemophilia care supporting the successful existing structure of Hemophilia Treatment Centers (HTCs) in MCHB Region VIII.

EHDI Grants:
Colorado MCHB State Grant (2000)
Project Period: Years 4 From: April 1, 2000 To: March 31, 2004
Purpose: The purpose of this project is to plan, demonstrate, implement, and refine a sustainable infrastructure in the State of Colorado in the following areas: screening, audiological assessment, identifying a medical home, family input and associated family support, early intervention, culturally competent practices, professional and public education, and evaluation for infant hearing systems. Families in the State of Colorado will benefit from this project because they will have assurance that they will receive appropriate and timely follow up after their baby receives a hearing screening. Appropriate and timely follow-up in each of the stated priorities, screening, audiological assessment, and early intervention, will be accomplished by a system which is built through a collaborative effort with professionals, families, and consumers. This collaboration is essential in order to sustain the activities that are listed.

Colorado CDC State Grant (2000)
Purpose: primary goal of this grant is to automate the tracking between hospitals, audiologists, CO-Hears, EI programs and medical homes. Through the genetics planning grant, Colorado has started design work on a template for integration of data systems that include newborn blood spot screening, newborn hearing screening, birth defects registry, EPSDT data, and data in HCP. They have also started designing an electronic case management tool called Integrated Reporting and Information System (IRIS). With this, the project proposes to improve the efficiency of data flow between programs. The project also requests funding for the committed time from CDPHE Information Technology Service (ITS) programmers.

Partners in the State
This section provides information on who in the state (individuals and agencies) are working together to create medical homes for children.

American Academy of Pediatrics (AAP) Chapter:
www.coaap.org/

American Academy of Family Physicians (AAFP) Chapter:
www.coloradoafp.org/

Early Hearing Detection & Intervention (EHDI) Contact(s):
State EHDI programs promote universal newborn hearing screening, develop effective tracking and follow-up as a part of the public health system, promote appropriate and timely diagnosis of the hearing loss, prompt enrollment in appropriate Early Intervention, ensure a medical home for all newborns and
strive to eliminate geographic and financial barriers to service access.

Name: Vickie Thomson; MA, CCC-A
Contact:
Phone: 303-692-2458 | Fax: 303-782-5576 | E-mail: vickie.thomson@state.co.us

Early Childhood Connections - Early Intervention/Part C Coordinator:
The Program for Infants and Toddlers with Disabilities (Part C of IDEA) is a federal grant program that assists states in operating a comprehensive statewide program of early intervention services for infants and toddlers with disabilities, ages birth through age 2 years, and their families.

Name: Susan Smith
Contact: Phone: (303) 866-6709 | Fax: (303) 866-6662 | Email: smith_s@cde.state.co.us
Web Site: www.cde.state.co.us/earlychildhoodconnections/

EI coordinator for children who are deaf and hard of hearing
Name: Jennie Germano, Director Early Education Programs
Colorado School for the Deaf and Blind
33 North Institute St.
Colorado Springs, CO 80903
Contact: Phone: 719-578-2116
E-mail: jgermano@csdb.org

JFK Partners: www.jfkpartners.org/
JFK Partners is a multifaceted Interdepartmental Program of the Departments of Pediatrics and Psychiatry of the University of Colorado Health Sciences Center. Designated as Colorado's University Affiliated Program by the Administration on Developmental Disabilities and as Colorado's LEND Program (Leadership Education in Neurodevelopmental Disabilities) by the Maternal Child Health Bureau, JFK Partners has strong collaborative relationships with numerous organizations that are a part of Colorado's developmental disability and special health care needs communities.

Section 619/Special Education for ages 3-5 Coordinators:
This program provides free appropriate public education (FAPE) for children, ages 3 through 5 years, with disabilities:

Name: Nan Vendegna, Early Childhood Consultant
Contact:
Phone: (303) 866-6602 | Fax: (303) 866-6662 | Email: vendegna_n@cde.state.co.us
Website:
www.cde.state.co.us/earlychildhoodconnections/early.htm

State Interagency Coordinating Council (ICC) Chairs:
The ICC advises appropriate agencies on the unmet needs in early childhood special education and early intervention programs for children with disabilities, assists in the development and implementation of policies that constitute a statewide system, and assists all appropriate agencies in achieving full participation, coordination, and cooperation for implementation of statewide system.

Name: Pam Christy, ICC Co-Chair Email: pkchristy@earthlink.net

Name: Lori Sanchez, ICC Co-Chair Email: lorisanchez6@aol.com

Contact: Phone: (303) 866-6710 (Christy) | Fax: (303) 866-6662
Web site:www.cde.state.co.us/earlychildhoodconnections/cicc.htm

Resources
Information for Care Coordinators

State Waiver Information: www.cms.hhs.gov/MedicaidStWaivProgDemoPGI/08_WavMap.asp
Waivers are the result of a process that allows state Medicaid agencies to apply for and receive permission from HCFA to provide services not otherwise covered by Medicaid and/or to do so in ways not described by the Social Security Act. Most Medicaid managed care programs require Waivers. The Waivers, which can differ greatly, are known by their numbers (1115, 1119), or as home-and community-based, or as Katie Beckett Waivers.

Educational Initiatives
This section provides information on training initiatives on the medical home. Some states will discuss their outreach projects in relation to physicians, families, and the community.

No information is currently available for this category.

Screening Initiatives
This section provides information on surveillance and screening initiatives in the state.

State Newborn Screening & Genetics Programs: genes-r-us.uthscsa.edu/resources.htm

  • State Newborn Screening Program Links
  • State Genetics Program Links
  • Regional Genetics and Newborn Screening Collaborative Links
  • Newborn Screening State Contact Fact Sheet

Autism Service Guidelines
The Colorado Autism Task Force is composed of individuals representing the Colorado
Department Education, school administrators and teachers, academic professionals, service
providers, parents children with autism, advocates for children with autism and individuals who
have autism. The goal of the Task Force is to establish guidelines for the education of people
with autism in the state of Colorado. http://cde.state.co.us/cdesped/download/pdf/WkgChldrnAutism.pdf

State Resources on the Internet

Note: The information provided on the state pages was submitted by the state medical home teams.As this is not an exhaustive list, please let us know if you have additions for your state resource page. You can contact us at: medical home@aap.org.

Last Updated August 25, 2008

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