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Welcome to the Wilson's Disease
Association website!
This site is for people like you who not only want information about Wilson disease, but who want to be involved in an active community.
WDA members are working towards creating a greater awareness in the medical and general community so that earlier diagnosis and better treatment are the commonplace - no matter where you live! WDA members actively support research for a better understanding of Wilson disease. We hope you will join us!
The Wilson’s Disease Association’s Boston Area Walk-A-Thon
Date: Saturday, September 20, 2008
Time: 11:00am – 12:00pm Registration
12:00pm Walk Begins
Where: Castle Island in South Boston
More information is available here.
New WDA Patient Education publication available, Wilson Disease: Maintaining a Successful Treatment Plan
Published in March, 2008, this 8 1/2" x 11", 32 page publication includes the topics: Medical Care, Medications, Diet and Nutrition, Special Circumstances, and Family Concerns and Genetics. Also included is a glossary of medical terms, a glossary of genetic terms, and a printed copy of the "Wilson Disease Patient Lab Tracker". If you would like a copy, please contact the WDA office at: wda@sssnet.com or 888-264-1450
Syprine Available in Canada
To access the drug, please follow the directions
below (all instructions come with the form):
To
request any SAP products (Special Access Programme), the doctor needs to fill
out the SAP form available here, found on Health Canada’s
website, and fax it to them. Within days, Health Canada will fax us
(the distributor, Valeo Pharma Inc.), a letter of authorization and we will ship the
order to the address provided. SAP products are shipped directly to the doctor’s
office or hospital pharmacies.
Cuprimine Available in Canada
The WDA is pleased to report that Cuprimine is now readily available in Canada through pharmacies and being marketed regularly, as before.
Please see the new Spring 2008 Newsletter here.
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Wilson’s Disease Association International appreciates our Annual Conference Sponsors:
Steve Kanzer and Pipex Pharmaceuticals
Foster Interstate Media, Inc.
Aton Pharmaceuticals
University of Michigan
The Evictor, Inc.
The Symonds Group, Inc.
University of Chicago
National Disease Research Interchange
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