VHL Family Alliance

Von Hippel-Lindau (VHL) is a genetic condition causing the abnormal growth of blood vessels. The VHL Family Alliance provides information for families and physicians about this disorder, and local self-help support groups for families affected with VHL. We are dedicated to improving diagnosis, treatment, and quality of life for individuals and families affected by Von Hippel-Lindau disease.

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What's New?   Your Vote Needed Now!   The September newsletter is online!   VHL in the News!   Early photos from the Symposium   Dr. Collins talks about GINA   Audio programs - Be a Powerful Patient!   Travel assistance for treatment and medical meetings   Webinars!!

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cure VHL!