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About Cystinosis   This document provides information about Cystinosis, a rare disease that primarily affects children and a genetic metabolic disease that causes an amino acid, cystine, to accumulate in various organs ... Details > Cystinosis Research Network Cystinosis Resources - Cystinosis Research Network   This page contains links to other organizations of interest to Cystinosis patients, families, and friends. The links are organized into categories, including education, support, and medical and health... Details > Cystinosis Research Network Facts About Cystinosis   These are facts about the causes, symptoms, and treatment of cystinosis.... Details > Cystinosis Foundation Family Connection: Cystinosis Research Foundation   This site is designed as a place to share stories about the children and young adults with Cystinosis. ... Details > Cystinosis Research Foundation Newsletters: Cystinosis Research Foundation   This online newsletter is a product of the Cystinosis Research Foundation. Its mission is dedicated to funding bench and clinical research for the development of improved treatments and finding a cure... Details > Cystinosis Research Foundation