The Myositis Association
Organization URL(s)
tma@myositis.orgwww.myositis.org/
Other Contact Information
1233 20th Street NW, Suite 402
Washington,
DC 20036
202-887-0088 (Voice)
202-466-8940 (FAX)
Description
The Myositis Association (TMA) is a non-profit organization committed to helping people affected by inflammatory myopathies through information, advocacy and support. TMA provides services to those diagnosed with: polymyositis (PM), dermatomyositis (DM), inclusion-body myositis (IBM), and juvenile myositis (JM). TMA programs for people with inflammatory myopathies (PM, DM, IBM and JM) include: mutual aid network; clearinghouse among patients, physicians and scientists; newsletters offering the latest information on research, treatments and health-related articles; electronic publications for health care professionals; and programs specific to the needs of the juvenile myositis community. Annual conference features world-renowned speakers. TMA has the world's largest database of myositis information for collaboration with their members and medical scientists. TMA funds grants and fellowships for myositis research.
Online Resources
- Juvenile Myositis (JM) Programs
http://www.myositis.org/template/page.cfm?id=346 - Myositis FAQ
http://www.myositis.org/template/page.cfm?id=13 - What is Myositis
http://www.myositis.org/template/page.cfm?id=2
Print Resources
OutLook for the Inflammatory Myopathies (quarterly); JM Companion (quarterly); OutLook Extra, Treatment Issue (annually); OutLook Extra, Products Issue (annually); Myositis Monitor (for health care community); and Myositis Update