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The Joubert Syndrome Foundation & Related Cerebellar Disorders was founded to share knowledge, experiences and emotional support with those affected by Joubert Syndrome. Joubert Syndrome is the agenesis of the cerebellar vermis characterized clinically by attacks of tachypnea or prolonged apnea, abnormal eye movements, ataxia and mental retardation. The Foundation also offers opportunities to participate in research.
Newsletters and videotapes are available.