Cushing's Support and Research Foundation - CSRF
Organization URL(s)
csrf.net/cushinfo@csrf.net
Other Contact Information
65 E. India Row
Suite 22B
Boston,
MA 02110-3389
617-723-3674 (Voice)
617-723-3674 (FAX)
Description
Established in 1995, the Cushing's Support and Research Foundation's main objectives are to provide information and support to Cushing's patients and their families; to increase awareness and to educate the public about Cushing's Disease and Cushing's Syndrome; to be a resource for information and support to health care professionals, and to raise and distribute funds for Cushing's Disease and Cushing's Syndrome research. The foundation is a non-profit organization, and is an associate member of NORD, the National Organization for Rare Disorders. CSRF responds to mail, telephone and electronic inquiries from patients and the general public.
Online Resources
- About Cushing's
http://csrf.net/AboutCushings.htm#Basics - Coping with Cushing's - Cushing's Support and Research Foundation
http://csrf.net/Coping.htm
Print Resources
Publications include a quarterly newsletter, pamphlets, and a fact sheet about Cushing's Syndrome.