Neurofibromatosis, Inc. - NFINC

Organization URL(s)

Other Contact Information

P.O. Box 18246

Minneapolis, MN 55418

800-942-6825 (Voice - Toll-free)
301-918-4600 (Voice)

Description

Neurofibromatosis, Inc., is a nonprofit organization that provides individuals and families affected by neurofibromatosis (NF) and related disorders with information on the disorder, referrals to physicians and other service providers, and peer counseling. The organization also serves professionals and will respond to mail, internet, telephone, and in-person inquiries. A 24-hour message line is available, with service is extended through the weekend with the help of volunteer staff. Neurofibromatosis, Inc. maintains a database of resources and information on the care of the condition; sponsors seminars and workshops; and provides books, pamphlets, posters, and other related materials, including a video entitled "Is There A Place For Me?" Some publications are available in Spanish. The Chris Hollis campership Fund awards scholarships to young people with NF to attend a summer camp. NF, Inc. also promotes and supports research in Neurofibromatosis and related conditions. The organization names an NF, Inc. Scholar each year to assist in educating the professional community about NF.

Online Resources

Medical Resource Directory - Neurofibromatosis, Inc.
http://www.nfinc.org/directory.shtml
What is Neurofibromatosis?
http://www.nfinc.org/what.shtml

Print Resources

The organization provides books, pamphlets, posters, and other related materials--some of which are available in Spanish. Serial publication: Neurofibromatosis Ink (newsletter).