Lowe Syndrome Association, Inc. - LSA
Organization URL(s)
info@lowesyndrome.orgwww.lowesyndrome.org/
Other Contact Information
18919 Voss Road
Dallas,
TX 75287
972-733-1338 (Voice)
Description
The Lowe Syndrome Association, Inc. (LSA) fosters communication among families of boys with this genetic disease. LSA provides information on the syndrome and supports research. It also sponsors conferences every 2 years.
Online Resources
- Questions and Answers about Lowe Syndrome
http://www.lowesyndrome.org/LoweSyndrome/FAQ/faqEnglish.html
Print Resources
LSA publishes a booklet about Lowe Syndrome and the group. A publication list is available. Serial publication: On the Beam (newsletter), three issues per year--news on research, letters and photographs from parents, and articles by professionals in the field.