two hands holding a third hand
End of Life: Helping with Comfort and Care
Introduction
Providing Comfort at the End of Life
Finding Care at the End of Life
Dementia at the End of Life
Understanding Health Care Decisions
What Happens When Someone Dies
Things to Do After Someone Dies
Getting Help for Your Grief
Planning for End-of-Life Care Decisions
Closing Thoughts
» Resources
 
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Resources

If you are interested in learning more about any of the topics in this booklet, here are some other resources for you to explore. Some of these are also listed in the To Learn More section found at the end of most chapters.

AARP
601 E Street, NW
Washington, DC 20049
888-687-2277 (toll-free)
www.aarp.org

Aging with Dignity
Box 1661
Tallahassee, FL 32302
888-594-7437 (toll-free)
www.agingwithdignity.org

Alzheimer’s Association
225 N. Michigan Avenue, Floor 17
Chicago, IL 60601
800-272-3900 (toll-free)
www.alz.org

American Academy of Pain Medicine
4700 W. Lake
Glenview, IL 60025
847-375-4731
www.painmed.org

American Academy of Wound Management
1155 15th Street, NW, Suite 500
Washington, DC 20005
202-457-8408
www.aawm.org

American Bar Association
321 N. Clark Street
Chicago, IL 60610
800-285-2221 (toll-free)
www.abanet.org

American Geriatrics Society
Foundation for Health in Aging
Empire State Building
350 Fifth Avenue, Suite 801
New York, NY 10118
800-563-4916 (toll-free)
www.healthinaging.org

American Hospice Foundation
2120 L Street, NW, Suite 200
Washington, DC 20037
800-347-1413 (toll-free)
www.americanhospice.org

American Music Therapy Association
8455 Colesville Road, Suite 1000
Silver Spring, MD 20910
301-589-3300
www.musictherapy.org

Association for Conflict Resolution
1015 18th Street, NW, Suite 1150
Washington, DC 20036
202-464-9700
www.acrnet.org

Beth Israel Medical Center
Department of Pain Medicine
and Palliative Care
First Avenue at 16th Street
New York, NY 10003
877-620-9999 (toll-free)
www.stoppain.org

Caring Connections
(See National Hospice and Palliative Care Organization)

Center for Caregiver Training
1320 Divisadero Street
San Francisco, CA 94115
415-563-9286
www.caregiving101.org

Centers for Medicare and Medicaid Services
800-633-4227 (toll-free)
www.medicare.gov

Center for Practical Bioethics
Harzfeld Building
1111 Main Street, Suite 500
Kansas City, MO 64105
800-344-3829 (toll-free)
www.practicalbioethics.org

Center to Advance Palliative Care
1255 Fifth Avenue, Suite C-2
New York, NY 10029
212-201-2670
www.getpalliativecare.org

Compassion and Choices
Box 101810
Denver, CO 80250
800-247-7421 (toll-free)
www.compassionandchoices.org

Department of Veterans Affairs
Veterans Benefits Administration
Veterans Health Administration
810 Vermont Avenue, NW
Washington, DC 20420
VA benefits:
800-827-1000 (toll-free)
To speak with a health care benefits counselor:
877-222-8387 (toll-free)
www.va.gov

Donate Life America
700 North 4th Street
Richmond, VA 23219
804-782-4920
www.shareyourlife.org

Eldercare Locator
800-677-1116 (toll-free)
www.eldercare.gov

Family Caregiver Alliance
180 Montgomery Street, Suite 1100
San Francisco, CA 94104
800-445-8106 (toll-free)
www.caregiver.org

Federal Trade Commission
CRC-240
Washington, DC 20580
877-382-4357 (toll-free)
www.ftc.gov

Growth House
www.growthhouse.org

Hospice and Palliative Nurses Association
One Penn Center West, Suite 229
Pittsburgh, PA 15276
412-787-9301
www.hpna.org

Hospice Association of America
228 Seventh Street, SE
Washington, DC 20003
202-546-4759
www.nahc.org/HAA/

Hospice Foundation of America
800-854-3402 (toll-free)
www.hospicefoundation.org
www.hospicedirectory.org

Hospice Net
Suite 51
401 Bowling Avenue
Nashville, TN 37205
www.hospicenet.org

Living Bank
Box 6725
Houston, TX 77265
800-528-2971 (toll-free)
www.livingbank.org

National Alliance for Hispanic Health
Cuidando con Cariño/Compassionate Care HelpLine

1501 Sixteenth Street, NW
Washington, DC 20036
877-658-8896 (toll-free)
www.hispanichealth.org

National Cancer Institute
Public Inquiries Office
6116 Executive Boulevard
Room 3036A
Bethesda, MD 20892
800-422-6237 (toll-free)
www.cancer.gov

National Hospice and Palliative Care Organization
1700 Diagonal Road, Suite 625
Alexandria, VA 22314
800-658-8898 (toll-free)
www.caringinfo.org
www.nhpco.org

National Institute of Nursing Research
31 Center Drive, Rm. 5B-10
Bethesda, MD 20892
866-910-3804 (toll-free)
www.ninr.nih.gov

National Library of Medicine
www.medlineplus.gov
Health Topics
Search for:
“Advance Directives”
“Bereavement”
“End-of-Life Issues”
“Hospice Care”
“Organ Donation”
“Pain”

Palliative Care Policy Center
www.medicaring.org

Robert Wood Johnson Foundation
Box 2316
College Road East and Route 1
Princeton, NJ 08543
877-843-7953 (toll-free)
www.lastacts.org

Society of Critical Care Medicine
500 Midway Drive
Mt. Prospect, IL 60056
847-827-6869
www.sccm.org

Visiting Nurse Associations of America
99 Summer Street, Suite 1700
Boston, MA 02110
617-737-3200
www.vnaa.org

Well Spouse Association
63 West Main Street, Suite H
Freehold, NJ 07728
800-838-0879 (toll-free)
www.wellspouse.org

The National Institute on Aging (NIA) is part of the nation’s principal medical research agency, the National Institutes of Health. NIA promotes healthy aging by conducting and supporting biomedical, social, and
behavioral research and public education.

To learn more about Alzheimer’s disease, contact NIA’s ADEAR Center at:

Alzheimer’s Disease Education and Referral (ADEAR) Center
Box 8250
Silver Spring, MD 20907-8250
800-438-4380 (toll-free)
www.nia.nih.gov/alzheimers

For more information on health and aging, contact:

National Institute on Aging Information Center
Box 8057
Gaithersburg, MD 20898-8057
800-222-2225 (toll-free)
800-222-4225 (TTY/toll-free)
www.nia.nih.gov
www.nia.nih.gov/Espanol

To sign up for regular email alerts about new publications and other information from the NIA, go to www.nia.nih.gov/HealthInformation.

Visit NIHSeniorHealth (www.nihseniorhealth.gov), a senior-friendly website from the National Institute on Aging and the National Library of Medicine. This website has health information for older adults. Special features make it simple to use. For example, you can click on a button to have the text read out loud or to make the type larger.

Send comments, suggestions, or ideas to:
Freddi Karp, Editor
Office of Communications and Public Liaison
National Institute on Aging
Building 31, Room 5C27
Bethesda, MD 20892

Writer: Karin Kolsky, Office of Communications and Public Liaison, National Institute on Aging
Designer: Lena Markley, Levine and Associates, Inc., Washington, DC
Photos: Cover and pages 2, 17, 31, 47, 62—Pam Soorenko, Photogroup, Silver Spring, MD
Page 69—Stock photo, MediaBakery.com, Santa Barbara, CA

We would like to thank these groups for their help with photography for this publication—the NIH Clinical Center, the NIH Clinical Center fifth floor nursing staff, and the Berry-Woodyard family of Takoma Park, MD.

NATIONAL INSTITUTE ON AGING
NATIONAL INSTITUTES OF HEALTH
U.S. DEPARTMENT OF HEALTH AND HUMAN SERVICES
NIH Publication No. 08-6036 January 2008

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Page last updated Jun 10, 2008