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Features
Materials from the MDCC Meeting (06/23/2008) Agenda
Materials from the MDCC Meeting (06/25/2007) Agenda | Minutes | Implementation Grid
Report on the NIH Workshop on Translational Research in Muscular Dystrophy
Action Plan for the Muscular Dystrophies (January 2006) [Word] [PDF]

The Muscular Dystrophy Community Assistance, Research, and Education Amendments of 2001 ("MD-CARE Act"; P.L. 107-84) authorized the establishment of the Muscular Dystrophy Coordinating Committee (MDCC) to coordinate activities across NIH and with other Federal health programs and activities relevant to the various forms of muscular dystrophy. The MD-CARE Act directed the Committee to develop a plan for conducting and supporting research and education on muscular dystrophy through the national research institutes, and to submit this plan to Congress within the first year of the establishment of the MDCC. The MDCC has conducted two stages of planning. The first stage led to the Muscular Dystrophy Research and Education Plan for NIH, which was submitted to Congress in August 2004. This formed the basis for a subsequent, more intensive planning process that produced the MDCC Action Plan for the Muscular Dystrophies (approved by the MDCC in December 2005). The Action Plan contains specific research objectives that are appropriate to the missions of all MDCC member agencies and organizations and thus serves as a central focus for coordination of research in muscular dystrophy.

MDCC Organization and Planning:

• MDCC Roster
• Bios of MDCC Members
• MDCC Charter
• MDCC Meeting Minutes and Agendas
• Biennial MDCC Reports and Reports on MD-CARE Act Implementation
• Action Plan for the Muscular Dystrophies (January 2006) [MS Word] [PDF]
• Muscular Dystrophy Research and Education Plan for the National Institutes of Health  pdf file, 8880  kb

Information for Patients and Families:

• NINDS Muscular Dystrophy Information Page
• Medline Plus entry for Muscular Dystrophy

Information for Researchers:

• Senator Paul D. Wellstone Muscular Dystrophy Cooperative Research Centers
• Research Initiatives

For more information contact :

Porter, John D., Ph.D.
Executive Secretary, MDCC
Program Director, Neuromuscular Disease, NINDS, NIH
Email: porterjo@ninds.nih.gov
Phone: 301-496-1917

Last updated September 09, 2008