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Speech

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Association for Research in Otolaryngology (ARO)

President: P. Ashley Wackym, M.D.
Public Information Contact: Darla M. Dobson, Executive Director
Address: 19 Mantua Road, Mt. Royal, NJ, 08061
Voice: (856) 423-0041
Fax: (856) 423-3420
E-mail: headquarters@aro.org
Internet: www.aro.org

Description:
The Association for Research in Otolaryngology (ARO) is an international scientific society of researchers who investigate basic science and clinical problems associated with hearing, speech, balance, smell and taste, and diseases of the head and neck. ARO’s goals are to encourage both basic and clinical research in the broad field of otolaryngology and related areas and to foster friendly assembly and stimulate scientific interest among its members. Holds mid-winter research meeting; contact ARO for date and location.

Acoustical Society of America (ASA)

Executive Director: Charles E. Schmid, Ph.D.
Public Information Contact: Elaine Moran
Address: 2 Huntington Quadrangle, Suite 1NO1, Melville, NY, 11747-4502
Voice: (516) 576-2360
TTY: (516) 576-2360
Fax: (516) 576-2377
E-mail: asa@aip.org
Internet: asa.aip.org

Description:
The mission of the Acoustical Society of America (ASA) is to promote the understanding and practical applications of acoustics. ASA publishes a monthly journal covering all topics in acoustics, including speech and hearing. A magazine, a professional directory, and professional brochures and monographs/books also are available. Holds two meetings each year; refer to the ASA home page for dates and locations.

ABLEDATA

Director: Katherine Belknap, M.A.
Information Specialist: Juanita Hardy
Address: 8630 Fenton Street, Suite 930, Silver Spring, MD, 20910
Voice: (301) 608-8998
Toll-free Voice: (800) 227-0216
TTY: (301) 608-8912
Fax: (301) 608-8958
E-mail: abledata@orcmacro.com
Internet: www.abledata.com

Description:
The ABLEDATA project helps people who have disabilities, including communication disorders, by providing information about assistive devices, rehabilitation equipment, and other products. Resources include a database of more than 34,000 products. A database of citations of books, articles, and other resources related to assistive technology also is available, along with fact sheets, brochures, and online publications.

American Broncho-Esophagological Association (ABEA)

President: Clarence Sasaki
Public Information Contact: Peter J. Koltai, M.D., Secretary
Address: Stanford University, 801 Welch Road, Stanford, CA, 94305-5739
Voice: (650) 725-6500
Voice: (801) 587-7678
Fax: (801) 585-5744
E-mail: koltai@stanford.edu
Internet: www.abea.net

Description:
The American Broncho-Esophagological Association (ABEA) is an association of physicians with interest in the function and diseases of the upper aerodigestive tract and the relevant applications of endoscopy. The goals of ABEA are to educate and update physicians in evaluating and managing aerodigestive tract disorders; stimulate and support basic and clinical research; advocate and support endoscopy training in residency and fellowship programs; and provide information useful to patients, industry, scientists, physicians, and other health care professionals at a national otolaryngology meeting.

Audiology and Speech Pathology Services, U.S. Department of Veterans Affairs (VA)

Director: Lucille B. Beck, Ph.D.
Public Information Contact: Cathy Greener
Address: VA Medical Center, 50 Irving Street, NW, Washington, DC, 20422
Voice: (202) 745-8578
Voice: (202) 745-8270
Fax: (202) 745-8579
E-mail: cathy.greener@va.gov

Description:
Audiology and Speech Pathology Services of the U.S. Department of Veterans Affairs (VA) provides high-quality, comprehensive, state-of-the-art clinical services to eligible veterans. Diagnostic and treatment services are offered in a timely manner and in an environment that fosters respect, communication, and compassion. Audiology services include evaluation and treatment of hearing loss and tinnitus, along with assessment of balance problems and, in some locations, balance rehabilitation. Diagnostic auditory and vestibular assessment, provision of hearing aids and assistive and alerting devices, cochlear implant management, and auditory rehabilitation also are available. Speech pathology services include evaluation and treatment of speech, language, voice, and swallowing disorders.

American Academy of Otolaryngology--Head and Neck Surgery (AAO-HNS)

Executive Vice President: David R. Nielsen, M.D.
Public Information Contact: Jeanne McIntyre, Director of Communications
Address: 1650 Diagonal Road, Alexandria, VA, 22314-2857
Voice: (703) 836-4444
Fax: (703) 683-5100
E-mail: webmaster@entnet.org
Internet: www.entnet.org

Description:
The nonprofit American Academy of Otolaryngology—Head and Neck Surgery (AAO-HNS) strives to unite, serve, and represent the interests of ear, nose, and throat specialists and their patients to the public, government, other medical specialists, and related organizations. AAO-HNS provides leaflets and geographic lists of physicians to the public at no charge. Holds annual meeting; contact AAO-HNS for date and location. AAO-HNS provides a professional bulletin, journal, directory, books, and other materials. Professional/consumer publications are available online and in print, with some in Spanish.

Agency for Healthcare Research and Quality (AHRQ)

Director: Carolyn Clancy, M.D.
Public Information Contact: Kevin Murray
Address: 540 Gaither Road, Rockville, MD, 20850
Voice: (301) 427-1853
Toll-free Voice: (800) 358-9295
Toll-free TTY: (888) 586-6340
E-mail: info@ahrq.gov
Internet: www.ahrq.gov

Description:
The Agency for Healthcare Research and Quality (AHRQ) provides practical health care information, research findings, and data to help consumers, health providers, health insurers, researchers, and policymakers make informed decisions about health care issues. A professional/consumer newsletter/bulletin, fact sheets, brochures/pamphlets, online publications, and professional reports are available. Some Spanish materials are available.

Aphasia Hope Foundation (AHF)

Founder/Executive Director: Judi Stradinger
Public Information Contact: Sandy Caudell, Program Director
Address: P.O. Box 26304, Shawnee Mission, KS, 66225-6304
Voice: (913) 839-8083
E-mail: sandycaudell@aphasiahope.org
E-mail: judistradinger@aphasiahope.org
Internet: www.aphasiahope.org

Description:
The Aphasia Hope Foundation (AHF) is a nonprofit organization with a twofold mission: (1) to promote research into the cure and prevention of aphasia and (2) to provide survivors of aphasia and their caregivers access to the best possible treatments, both physical and emotional, for living with this disease. AHF maintains an electronic bulletin board and a Web-based forum for posting questions to aphasia professionals and caregivers. AHF also provides information on ongoing research and legislation focusing on aphasia and offers an outlet through which persons with aphasia can share their stories.

Association of University Centers on Disabilities (AUCD)

Executive Director: George Jesien, Ph.D.
Address: 1010 Wayne Avenue, Suite 920, Silver Spring, MD, 20910
Voice: (301) 588-8252
Fax: (301) 588-2842
E-mail: info@aucd.org
Internet: www.aucd.org

Description:
The Association of University Centers on Disabilities (AUCD) is the national association representing University Centers for Excellence in Developmental Disabilities, Maternal and Child Health Leadership Education in Neurodevelopmental Disabilities Programs, and Developmental Disabilities Research Centers. Its mission is to help member centers by advancing policy and practice for and with people with developmental and other disabilities, their families, and communities. Contact AUCD for date and location of annual meeting. A professional newsletter/bulletin, proceedings, and fact sheets are available.

American Association for the Advancement of Science (AAAS), EntryPoint!

Director: Virginia Stern
Program Manager: Laureen Summers
Address: 1200 New York Avenue, NW, Washington, DC, 20005
Voice: (202) 326-6649
TTY: (202) 326-6649
Fax: (202) 371-9849
E-mail: lsummers@aaas.org
Internet: www.entrypoint.org

Description:
In 1975, the American Association for the Advancement of Science (AAAS) initiated the Project on Science, Technology, and Disability to improve entry and advancement in science, math, and engineering for people with disabilities. Students with disabilities and their families, professors, teachers, and counselors are linked with scientists, mathematicians, and engineers who also have disabilities and who can share their coping strategies in technical fields. Through its program EntryPoint!, the project recruits college students with disabilities who are majoring in science, engineering, mathematics, computer science, and some business fields for summer opportunities at large corporations, federal agencies, and university science laboratories.

American Speech-Language-Hearing Association (ASHA)

Executive Director: Arlene A. Pietranton, Ph.D.
Public Information Contact: Action Center
Address: 2200 Research Blvd., Rockville, MD, 20850
Toll-free Voice: (800) 638-8255
Toll-free TTY: (800) 638-8255
E-mail: actioncenter@asha.org
Internet: www.asha.org

Description:
The mission of the American Speech-Language-Hearing Association (ASHA) is to promote the interests of and provide the highest quality services for professionals in audiology, speech-language pathology, and speech and hearing science, and to advocate for people with communication disabilities. Holds annual conference; contact ASHA for date and location. Professional brochures/pamphlets, journals, and professional/consumer online publications are available. Some Spanish materials are available.

American Cleft Palate-Craniofacial Association (ACPA) and Cleft Palate Foundation (CPF)

Executive Director: Nancy C. Smythe
Public Information Contact: Lisa Gist, Cleftline Manager
Address: 1504 East Franklin Street, Suite 102, Chapel Hill, NC, 27514
Voice: (919) 933-9044
Toll-free Voice: (800) 24-CLEFT (2-5338)
Fax: (919) 933-9604
E-mail: CPF E-mail: info@cleftline.org
E-mail: ACPA E-mail: info@acpa-cpf.org
Internet: www.cleftline.org / www.acpa-cpf.org

Description:
The American Cleft Palate-Craniofacial Association (ACPA) is an international nonprofit association of more than 2,500 health care professionals who are involved in the treatment and research of cleft lip, cleft palate, and other craniofacial abnormalities. ACPA optimizes the interdisciplinary care of persons affected by craniofacial abnormalities. The Cleft Palate Foundation (CPF), which is the public service arm of ACPA, educates and assists the public regarding craniofacial anomalies and encourages research in the field. Holds annual convention; contact ACPA or CPF for date and location. A directory and professional/consumer fact sheets and brochures are available, with some in Spanish.

Association of Academic Physiatrists (AAP)

Executive Director: Carolyn L. Braddom-Ritzler, Ed.D.
Public Information Contact: Vincent A. Fields, Sr., M.B.A., Deputy Director
Address: 1106 North Charles Street, Suite 201, Baltimore, MD, 21201
Voice: (410) 637-8300
Fax: (410) 637-8399
E-mail: clbexec@physiatry.org
E-mail: vfields@physiatry.org
Internet: www.physiatry.org

Description:
The mission of the Association of Academic Physiatrists (AAP) is to promote excellence in the education, research, and practice of physical medicine and rehabilitation (PM&R) in the academic arena. To accomplish this, AAP facilitates the exchange of ideas and information on teaching the art and science of PM&R. AAP promotes the dissemination of information and academic life skills to future physicians who will be practicing PM&R and encourages information exchange with other fields of medicine. Holds annual conference; contact AAP for date and location. A professional newsletter, journal, brochures, and a residency training directory are available.

American Speech-Language-Hearing Foundation (ASHFoundation)

Executive Director: Nancy J. Minghetti
Public Information Contact: Emily Diaz
Address: 2200 Research Blvd., Rockville, MD, 20850
Voice: (301) 296-8703
E-mail: foundation@asha.org
Internet: www.ASHfoundation.org

Description:
The American Speech-Language-Hearing Foundation (ASHFoundation) supports the advancement of knowledge and the improvement of practice in serving children and adults with speech, language, or hearing disorders. ASHFoundation supports research, master’s and doctoral scholarships, and special projects that facilitate innovative directions in the field of communication sciences and disorders. This private organization is supported, in part, by the tax-deductible contributions of individuals, corporations, and organizations. See the Web site for information and funding guidelines.

Birth Defect Research for Children, Inc. (BDRC)

Executive Director: Betty Mekdeci
Address: 800 Celebration Avenue, Suite 225, Celebration, FL, 34747
Voice: (407) 566-8304
Fax: (407) 566-8341
E-mail: staff@birthdefects.org
Internet: www.birthdefects.org

Description:
Birth Defect Research for Children, Inc., (BDRC) provides parents and expectant parents with information about specific birth defects and their causes and treatments, support group referrals, and parent-matching services. BDRC also provides information about environmental exposures that may be associated with birth defects. To study these exposures further, BDRC sponsors the National Birth Defect Registry, an online research project that collects data on birth defects and prenatal/preconception exposures of both parents. A consumer newsletter, fact sheets, and other publications are available.

Brain Injury Association of America

President/CEO: Susan Connors
Address: 8201 Greensboro Drive, Suite 611, McLean, VA, 22102
Voice: (703) 761-0750
Toll-free Voice: (800) 444-6443
Fax: (703) 761-0755
E-mail: braininjuryinfo@biausa.org
Internet: www.biausa.org

Description:
The mission of the Brain Injury Association of America is to create a better future through brain injury prevention, research, education, and advocacy. Its Helpline offers information about brain injury to persons with brain injury, their families, professionals, and other interested callers. Educational materials, such as a consumer newsletter, brochures/pamphlets, a professional/consumer directory, fact sheets, and online publications, are available. Information also is available in Spanish.

CHERAB Foundation

Founder: Lisa Geng
Address: P.O. Box 8524, Port St. Lucie , FL, 34952
Voice: (772) 335-5135
Fax: (772) 337-4812
E-mail: help@cherab.org
Internet: www.cherab.org / www.speechville.com

Description:
The CHERAB Foundation (CHERAB) is a worldwide nonprofit organization that helps individuals with speech and language delays and disorders through communication help, education, and research that is apraxia-based. Its area of emphasis is verbal and oral apraxia—severe neurologically based speech and language disorders that hinder children’s ability to speak. The foundation is committed to assisting with the development of new therapeutic approaches to, and prevention and cure of, neurologically based speech disorders. CHERAB brings together parents and medical, research, and educational professionals to help give a voice to all.

Centers for Medicare and Medicaid Services (CMS)

Acting Deputy Administrator: Herb Kuhn
Public Information Contact: Jeff Nelligan, Director of Media Affairs
Address: 7500 Security Boulevard, Baltimore, MD, 21244-1850
Voice: (410) 786-3000
Voice: (202) 690-6145
Toll-free Voice: (877) 267-2323
Internet: www.cms.gov / www.medicare.gov

Description:
The Centers for Medicare and Medicaid Services (CMS) is a federal agency with responsibilities that include the Medicare and Medicaid programs, two national health care programs benefiting about 75 million Americans; the State Children’s Health Insurance Program; regulation of all non-research laboratory testing performed on humans in the United States; and programs assisting millions of Americans and small companies in obtaining health insurance coverage. The Web site www.cms.gov targets health care providers and the public, while www.medicare.gov offers information about services to beneficiaries. Publications are available.

Council for Exceptional Children (CEC)

Executive Director: Bruce Ramirez
Public Information Contact: Lynda Van Kuren, Communications Director
Address: 1110 North Glebe Road, Suite 300, Arlington, VA, 22201
Voice: (703) 620-3660
Toll-free Voice: (800) 224-6830
Toll-free TTY: (866) 915-5000
Fax: (703) 264-9494
E-mail: service@cec.sped.org
Internet: www.cec.sped.org

Description:
The Council for Exceptional Children (CEC) is the largest professional organization dedicated to improving the educational success of individuals with disabilities or gifts. CEC advocates for appropriate government policies, sets professional standards, provides professional development, advocates for underserved individuals with exceptionalities, and helps professionals obtain conditions and resources for effective professional practice. Holds annual convention; contact CEC for date and location. A professional journal, brochures, and a newsletter are available.

Council for Learning Disabilities (CLD)

Executive Director: Linda Nease
Address: 11184 Antioch Road, #405, Overland Park, KS, 66210
Voice: (913) 491-1011
Fax: (913) 491-1012
E-mail: lnease@cldinternational.org
Internet: www.cldinternational.org

Clearinghouse on Disability Information, Office of Special Education and Rehabilitative Services (OSERS) Public Information Contact: Carolyn Corlett
Address: 550 12th Street, SW, Room 5133, Washington, DC, 20004
Voice: (202) 245-7307
TTY: (202) 205-5637
Fax: (202) 245-7636
Internet: www.ed.gov/about/offices/list/osers/index.html

Description:
The Clearinghouse on Disability Information, a service of the U.S. Department of Education, responds to people with disabilities and others who request information by conducting research and providing documents related to federal funding available for disability-related programs. Clearinghouse staff members also may refer requests to other sources of disability-related information. Information provided may be useful to disabled individuals and their families, schools and universities, teachers and school administrators, and organizations who serve people with disabilities.

Council of Academic Programs in Communication Sciences and Disorders (CAPCSD)

President: Celia Hooper, PH.D
Executive Administrator: Frances Laven, M.S., CCC
Address: P.O. Box 26532, Minneapolis, MN, 55426
Voice: (952) 920-0966
Fax: (952) 920-6098
E-mail: cap@incnet.com
Internet: www.capcsd.org

Description:
The Council of Academic Programs in Communication Sciences and Disorders (CAPCSD) is an organization of university programs in speechlanguage pathology; audiology; and speech, language, and hearing sciences. It represents more than 2,000 faculty and administrators from universities in the United States and abroad. CAPCSD advocates for academic programs in communication sciences and disorders and facilitates information exchange among programs and personnel. It also serves as an advisory group to professional associations, legislative bodies, and government agencies. Holds annual conference; contact CAPCSD for date and location. A professional directory, brochures/pamphlets, and reports are available.

Childhood Apraxia of Speech Association of North America (CASANA)

President: Mary Sturm, M.D.
Public Information Contact: Kathy Bauer
Address: 1151 Freeport Road, #243, Pittsburgh, PA, 15238
Voice: (412) 343-7102
E-mail: helpdesk@apraxia-kids.org
Internet: www.apraxia-kids.org

Description:
Childhood Apraxia of Speech Association of North America The Childhood Apraxia of Speech Association of North America (CASANA)is the only national nonprofit 501(c)(3) charity representing the needs of children with apraxia and their families. CASANA’s goal is to provide credible, reliable, and comprehensive information on apraxia of speech in children. Guided by a professional advisory board of experts in childhood apraxia of speech, CASANA offers information and resources based on the current prevailing professional literature and expert opinion. CASANA raises awareness and provides online services, educational training, workshops for professionals and parents, and research support. Educational DVDs are available on topics that include an introduction to childhood apraxia of speech, treatment strategies for childhood apraxia of speech, and ways to help children with apraxia practice speaking at home and in the community.

Disability Rights Section, Civil Rights Division, U.S. Department of Justice (DOJ) Public Information Contact: Information Specialists
Address: 950 Pennsylvania Avenue, NW, Washington, DC, 20530
Toll-free Voice: (800) 514-0301
Toll-free TTY: (800) 514-0383
Fax: (202) 514-0404
Internet: www.ada.gov

Description:
The Disability Rights Section (DRS) is part of the Civil Rights Division of the U.S. Department of Justice (DOJ). DRS focuses on all disabilities and is especially knowledgeable about the interpretation of the Americans with Disabilities Act of 1990. The organization offers an information line for all inquiries as well as assistance to state and local government entities, private-sector business professionals, and the general public. Fact sheets, brochures/pamphlets, online publications, and a professional report are available. Some materials in Spanish and other languages are available.

Disability Rights Office, Consumer & Governmental Affairs Bureau, Federal Communications Commission (FCC)

Chief: Thomas Chandler
Address: 445 12th Street, SW, Washington, DC, 20554
Voice: (202) 418-2516
Toll-free Voice: (888) 225-5322
TTY: (202) 418-0189
Toll-free TTY: (888) 835-5322
Fax: (866) 418-0232
E-mail: fccinfo@fcc.gov
Internet: www.fcc.gov/cgb/dro

Description:
The Disabilities Rights Office, housed within the Consumer & Governmental Affairs Bureau at the Federal Communications Commission (FCC), ensures that FCC actions and policies enable people with disabilities to have the same access as everyone else to telecommunications. FCC implements mandates for nationwide telephone relay services, accessibility, and usability of telecommunications wireline and wireless products and services. These services include hearing aid compatibility of phones, closed captioning of television programming, and accessibility of emergency information on television.

Easter Seals, Inc.

President/Chief Executive Officer: James E. Williams, Jr.
Information and Referral Specialist: Rosemary Garza
Address: 230 West Monroe, Suite 1800, Chicago, IL, 60606
Voice: (312) 726-6200
Toll-free Voice: (800) 221-6827
TTY: (312) 726-4258
Fax: (312) 726-1494
E-mail: info@easterseals.com
Internet: www.easterseals.com

Description:
The mission of Easter Seals, Inc., is to create solutions that change the lives of children and adults with disabilities and their families. Easter Seals operates 450 sites in the United States. Its eight primary services are medical rehabilitation with early intervention; physical therapy; occupational therapy; speech therapy; job training and employment; children’s services (including inclusive childcare); adult and senior services; and camping, recreation, and respite.

Gallaudet University (GU) and Laurent Clerc National Deaf Education Center

President: Robert Davila, Ph.D.
Address: 800 Florida Avenue, NE, Washington, DC, 20002-3695
Voice: (202) 651-5000
TTY: (202) 651-5000
Fax: (202) 651-5704
E-mail: public.relations@gallaudet.edu
Internet: www.gallaudet.edu

Description:
Gallaudet University (GU) is the world’s only university in which all programs and services are specifically designed to accommodate deaf and hard-of-hearing students. The Kendall Demonstration Elementary School serves infants through eighth grade, and the Model Secondary School for the Deaf offers programs in grades nine through 12. The Research Institute is a leading center for research on deafness. National and international programs, including regional extension centers, conferences, sign language classes, summer programs, and international outreach, annually serve approximately 33,000 people. professional/consumer publications and computer software/assisted education are available.

Hands & Voices National

Executive Director: Leeanne Seaver, M.A.
Address: P.O. Box 3093, Boulder, CO, 80307
Voice: (217) 357-3647
Toll-free Voice: (866) 422-0422
Toll-free TTY: (866) 422-0422
Fax: (217) 357-3647
E-mail: parentadvocate@handsandvoices.org
Internet: www.handsandvoices.org

Description:
Hands & Voices National is a nationwide nonprofit organization dedicated to supporting families and their children who are deaf or hard-of-hearing as well as the professionals who serve them. This organization is a parent-driven, parent/professional collaborative group that is unbiased toward any communication modes and methods. Its membership includes those who are deaf or hard-ofhearing and their families who communicate orally or with signs, cued speech, or combined methods. Hands & Voices National exists to help children reach their highest potential. See the Web site for local chapters.

Institute for Neurogenic Communication Disorders

Director: Thomas Hixon, Ph.D.
Address: Speech and Hearing Sciences Building, University of Arizona, Tucson, AZ, 85721-0071
Voice: none
Fax: (520) 621-2226
E-mail: sherryj@u.arizona.edu
Internet: cnet.shs.arizona.edu

Description:
Institute for Neurogenic Communication Disorders personnel conduct research related to speech and language disorders caused by disease and injury to the nervous system. The institute sponsors continuing education programs for professionals on topics related to culture, rehabilitation, and the latest developments in the treatment and prevention of neurogenic communication disorders. Some Spanish materials are available.

Job Accommodation Network (JAN)

Associate Director, International Center for Disability Information (ICDI): Deborah Hendricks, Ed.D.
Address: P.O. Box 6080, Morgantown, WV, 26506-6080
Toll-free Voice: (800) 526-7234 or (800) ADA-WORK (232-9675)
Toll-free TTY: (877) 781-9403
Fax: (304) 293-5407
E-mail: jan@jan.wvu.edu
Internet: www.jan.wvu.edu

Description:
The Job Accommodation Network (JAN) is funded by the U.S. Department of Labor’s Office of Disability Employment Policy. JAN is an information and consulting service that provides users with individualized solutions for workplace accommodations. JAN also provides information regarding the Americans with Disabilities Act, the Rehabilitation Act, and other disabilityrelated legislation. In addition, JAN consultants have access to a vast network of resources, organizations, support groups, government agencies, and more that can provide assistance to persons with disabilities. JAN is used primarily by employers, rehabilitation professionals, and individuals with disabilities. All services are free and confidential. Professional/consumer publications are available.

National Dissemination Center for Children with Disabilities (NICHCY)

Director: Suzanne Ripley, Ph.D.
Public Information Contact:: Information Specialists
Address: P.O. Box 1492, Washington, DC, 20013-1492
Voice: (202) 884-8200
Toll-free Voice: (800) 695-0285
TTY: (202) 884-8200
Toll-free TTY: (800) 695-0285
Fax: (202) 884-8441
E-mail: nichcy@aed.org
Internet: www.nichcy.org

Description:
The National Dissemination Center for Children with Disabilities (NICHCY) is a national information and referral center that provides information on disabilities and disability-related issues to families, educators, and other professionals. With a special focus on children and young adults ages birth to 22, NICHCY provides personalized responses to specific questions in both English and Spanish. Fact sheets on specific disabilities, state resource sheets, parent guides, bibliographies, research briefs, and information about the Individuals with Disabilities Education Act are available.

National Cued Speech Association (NCSA), Deaf Children’s Literacy Project

President: Sarina Roffé
Public Information Contact : Amy Ruberl, Executive Director
Address: 5619 McLean Drive, Bethesda, MD, 20814
Voice: (301) 915-8009
Toll-free Voice: (800) 459-3529
Toll-free TTY: (800) 459-3529
E-mail: info@cuedspeech.org
Internet: www.cuedspeech.org

Description:
The National Cued Speech Association (NCSA) and its Deaf Children’s Literacy Project promote the effective use of cued speech for communication, language acquisition (in more than 50 languages), and literacy through the use of cued speech. NCSA provides education, awareness, and support for people with language, hearing, speech, and learning needs through publications, exhibits, family/professional learning vacations, and conferences. NCSA sets standards of cueing and certifies instructors of cued speech. Visit NCSA’s bookstore for books, games, computer software, and more.

National Association of State Directors of Special Education, Inc. (NASDSE)

Executive Director: Bill East, Ed.D.
Address: 1800 Diagonal Road, Suite 320, Alexandria, VA, 22314
Voice: (703) 519-3800
TTY: (703) 519-7008
Fax: (703) 519-3808
E-mail: nasdse@nasdse.org
Internet: www.nasdse.org

Description:
The National Association of State Directors of Special Education, Inc., (NASDSE) is a nonprofit organization established to promote and support education programs and related services for children and youth with disabilities in the United States and outlying areas. NASDSE provides services to state agencies to facilitate their efforts to maximize educational outcomes for individuals with disabilities. Holds annual meeting; contact NASDSE for date and location. Miscellaneous reports are released throughout the year, with most available online.

National Rehabilitation Information Center (NARIC)

Project Director: Mark X. Odum
Public Information Contact: Catherine Graves, Library Information Specialist II
Address: 8201 Corporate Drive, Suite 600, Landover, MD, 20785
Voice: (301) 459-5900
Toll-free Voice: (800) 346-2742
TTY: (301) 459-5984
Fax: (301) 459-4263
E-mail: naricinfo@heitechservices.com
Internet: www.naric.com

Description:
The National Rehabilitation Information Center (NARIC) is a library and information center focusing on disability and rehabilitation research. NARIC’s collection contains more than 40,000 documents, both federally funded and commercially produced. NARIC’s information specialists provide quick information and referrals, customized database searching, and document delivery. Internet users can access NARIC’s databases, bulletins, and a live reference chat service at the NARIC Web site. Referral sheets, general information packets, and customized literature searches are available.

National Institute for Rehabilitation Engineering (NIRE)

Director and Executive Vice President: Donald Selwyn
Address: P.O. Box 1088, Hewitt, NJ, 07421
Voice: (973) 853-6585
Toll-free Voice: (800) 736-2216
Fax: (928) 832-2894
E-mail: nire@warwick.net
E-mail: dons@warwick.net

Description:
The National Institute for Rehabilitation Engineering (NIRE) is a nonprofit 501(c)(3) organization. This organization provides personalized information, counseling, and referrals without cost to people with disabilities. NIRE’s support services are available to people of all ages with hearing, speech, reading and writing, and other communication disabilities. Although medical advice is not given, callers receive information on functional disabilities and assistive technology. Papers published by NIRE are available in the “Library” section of the ABLEDATA Web site (www.abledata.com).

National Aphasia Association (NAA)

Executive Director: Ellayne Ganzfried, M.S., CCC-SLP
Address: 350 7th Avenue, Suite 902, New York, NY, 10001
Voice: (212) 267-2814
Toll-free Voice: (800) 922-4622
Fax: (212) 267-2812
E-mail: naa@aphasia.org
Internet: www.aphasia.org

Description:
The mission of the National Aphasia Association (NAA) is to educate the public about aphasia as a disorder that impairs a person’s ability to communicate without impairing a person’s intellect. NAA provides people with aphasia, their families, support systems, and health care professionals with resources that can help individuals affected by aphasia recover lost skills, compensate for skills that cannot be recovered, and minimize the psychosocial impact of a language impairment. Holds biennial conference; contact NAA for date and location. A professional/consumer newsletter, directory, fact sheets, and other publications are available.

National Center on Deafness (NCOD)

Director: Roslyn Rosen
Address: 18111 Nordhoff Street, California State University, Northridge, CA, 91330-8267
Voice: (818) 677-2611
TTY: (818) 677-2611
Fax: (818) 677-4899
E-mail: ncod@csun.edu
Internet: ncod.csun.edu

Description:
The National Center on Deafness (NCOD) is housed in Jeanne M. Chisholm Hall on the campus of California State University, Northridge. Established in 1962, NCOD was the first postsecondary program in the nation to provide paid sign language interpreters for deaf students. The program has grown to be the largest of its type in the western United States, serving approximately 250 students who are deaf or hard-of-hearing each year. Access options for print communications are available. NCOD also provides outreach and training through several federal grants.

National Stuttering Association (NSA)

Public Information Contact: Tammy Flores
Address: 119 West 40th Street, 14th Floor, New York, NY, 10018
Voice: (212) 944-4050
Toll-free Voice: (800) 937-8888
Fax: (212) 944-8244
E-mail: info@westutter.org
Internet: www.westutter.org

Description:
The National Stuttering Association (NSA) is a national network of support groups created to meet the needs of children and adults who stutter. NSA offers information and support, provides referrals to specialists, serves as an advocate for the stuttering community, and raises the consciousness of the general public about the disorder. Holds annual convention; contact NSA for date and location. Professional and consumer fact sheets, brochures/pamphlets, and books are available.

National Black Association for Speech-Language and Hearing (NBASLH)

Chairperson: Cathy Runnels
Public Information Contact: Diane Yenerall
Address: 800 Perry Highway, Suite 3, Pittsburgh, PA, 15229
Voice: (412) 366-1177
Fax: (412) 366-8804
E-mail: nbaslh@nbaslh.org
Internet: www.nbaslh.org

Description:
The National Black Association for Speech-Language and Hearing (NBASLH) is a nonprofit organization dedicated to promoting the sharing of information about communication impairments and differences among black people; professional development of speech-language pathologists, audiologists, and students; and advocacy of quality service delivery to the black community. Holds annual convention; contact NBASLH for date and location. A professional journal and newsletter/bulletin are available.

National Center for Voice and Speech (NCVS)

Director: Ingo Titze, Ph.D.
Public Information Contact: Suzanne Collins
Address: The Denver Center for the Performing Arts, 1101 13th Street, Denver, CO, 80204-5319
Voice: (303) 446-4834
Voice: (303) 893-6080
Fax: (303) 893-6487
E-mail: NCVSWebmaster@dcpa.org
E-mail: kmontgomery@dcpa.org
Internet: www.ncvs.org

Description:
The National Center for Voice and Speech (NCVS) is an interdisciplinary team of investigators and health care professionals dedicated to vocology, which deals with the powers, limitations, and enhancement of voice and speech. A primary outreach of NCVS is the Summer Vocology Institute, which provides background in vocology and related topics as well as real-world experience in applying those concepts in laboratory, performance, and health services settings. NCVS is headquartered as a division of the Denver Center for the Performing Arts and is the only facility of its kind to be associated with a performing arts center. NCVS also performs research at the University of Iowa Department of Speech Pathology and Audiology. Professional/consumer publications are available, with some materials in Spanish and French.

National Organization for Rare Disorders (NORD)

President: Abbey Meyers
Public Information Contact: Mary Dunkle, Vice President for Communications
Address: P.O. Box 1968, 55 Kenosia Avenue, Danbury, CT, 06813-1968
Voice: (203) 744-0100
Toll-free Voice: (800) 999-6673
TTY: (203) 797-9590
Fax: (203) 798-2291
E-mail: orphan@rarediseases.org
Internet: www.rarediseases.org

Description:
The National Organization for Rare Disorders (NORD) is a nonprofit voluntary health agency that serves as a clearinghouse for information on rare disorders. A rare disorder is a disease or condition that affects fewer than 200,000 Americans. Cumulatively, there are more than 6,000 rare diseases affecting more than 25 million Americans. NORD is committed to the identification, treatment, and cure of rare diseases through education, advocacy, research, and service programs. NORD administers medication assistance programs for certain rare-disease drugs as well as research grants and fellowships.

National Institute on Deafness and Other Communication Disorders (NIDCD)

Director: James F. Battey, Jr., M.D., Ph.D.
Public Information Contact: Patricia Blessing, Chief, Office of Health Communication and Public Liaison
Address: Office of Health Communication and Public Liaison, 31 Center Drive, MSC 2320, Bethesda, MD, 20892-2320
Voice: (301) 496-7243
Toll-free Voice: (800) 241-1044
Toll-free TTY: (800) 241-1055
Fax: (301) 402-0018
E-mail: nidcdinfo@nidcd.nih.gov
Internet: www.nidcd.nih.gov

Description:
The National Institute on Deafness and Other Communication Disorders (NIDCD), one of the National Institutes of Health, supports and conducts research and research training on the normal and disordered processes of hearing, balance, smell, taste, voice, speech, and language. NIDCD develops health information based on scientific discovery and disseminates it to health professionals, patients, educators, industry, and the general public. Since 1999, NIDCD has overseen WISE EARS!®, a national public education campaign to prevent noise-induced hearing loss. Currently, NIDCD is expanding its campaign efforts to reach youth ages eight to 12. NIDCD provides a toll-free telephone service through its information clearinghouse. Fact sheets, brochures, teaching curricula, and reports are available, with many in Spanish.

National Center for Health Statistics (NCHS), Centers for Disease Control and Prevention (CDC)

Director: Edward J. Sondik, Ph.D.
Address: 3311 Toledo Road, Hyattsville, MD, 20782
Voice: (301) 458-4000
Toll-free Voice: (866) 441-NCHS (6247)
Fax: (301) 458-4027
E-mail: nchsquery@cdc.gov
Internet: www.cdc.gov/nchs

Description:
The National Center for Health Statistics (NCHS), part of the Centers for Disease Control and Prevention (CDC), compiles statistical information to help guide policies to improve the health of the American people. Holds a biennial data user conference; consult the NCHS Web site for date and location. NCHS disseminates data and statistics online and in print.

Office of Disability Employment Policy (ODEP)

Acting Assistant Secretary: Karen Czarnecki
Public Information Contact: Charles Conaty, Supervisor of Education and Outreach
Address: U.S. Department of Labor, Suite S1303, 200 Constitution Avenue, NW, Washington, DC, 20210
Voice: (202) 693-7880
TTY: (202) 693-7881
Fax: (202) 693-7888
E-mail: infoodep@dol.gov
Internet: www.dol.gov/odep

Description:
The Department of Labor’s Office of Disability Employment Policy (ODEP) provides national leadership by developing and influencing disability and related employment policy as well as practices that affect the employment of people with disabilities.

Office of Special Education Programs (OSEP), Office of Special Education and Rehabilitative Services (OSERS)

Acting Deputy/Assistant Secretary: William W. Knudsen
Address: 550 12th Street, SW, Room 4109, Washington, DC, 20202-2600
Voice: (202) 245-7426
Fax: (202) 245-7616
Internet: www.ed.gov/about/offices/list/osers/osep/index.html

Description:
The Office of Special Education Programs (OSEP), an office within the U.S. Department of Education, is dedicated to improving results for infants, toddlers, children, and youth with disabilities from birth through age 21 and to providing leadership and financial support to assist states and local districts. OSEP awards formula grants to states as well as discretionary grants to institutions of higher education and other nonprofit organizations to support research, demonstrations, technical assistance and dissemination, technology and personnel development, and parent-training and information centers. Professional and consumer publications are available.

Occupational Safety and Health Administration (OSHA)

Director: Kevin Ropp
Public Information Contact: Camilla McArthur, Chief, Communications Production
Address: 200 Constitution Avenue, NW, Room N-3647, Washington, DC, 20210
Voice: (202) 693-1999
Toll-free Voice: (800) 321-OSHA (6742)
Toll-free TTY: (877) 889-5627
Fax: (202) 693-1635
Internet: www.osha.gov

Description:
The Occupational Safety and Health Administration (OSHA), a division of the U.S. Department of Labor, is the lead federal organization devoted to protecting the safety and health of America’s workers. OSHA produces and enforces protective standards for occupational safety and health and also provides employers and employees with technical and consultative assistance. OSHA also works with employers through various programs and partnerships to help them develop effective safety and health systems to reduce injuries and illnesses in the workplace. Assistance products and tools are available. Additional resources are available through the OSHA Publications Office.

Rehabilitation Engineering and Assistive Technology Society of North America (RESNA)

Executive Director: Tom Gorski
Public Information Contact: Emily Gegg, Director of Operations
Address: 1700 North Moore Street, Suite 1540, Arlington, VA, 22209-1903
Voice: (703) 524-6686
TTY: (703) 524-6639
Fax: (703) 524-6630
E-mail: info@resna.org
Internet: www.resna.org

Description:
The Rehabilitation Engineering and Assistive Technology Society of North America (RESNA) is an interdisciplinary association for the advancement of rehabilitation and assistive technologies. Members range from rehabilitation professionals to providers and consumers. RESNA is dedicated to promoting the exchange of ideas and information for the advancement of assistive technology. Holds annual meeting; contact RESNA for date and location. RESNA also administers a federal grant that provides technical assistance and information to the 50 states and U.S. territories. Professional books and audiovisuals are available. Materials in alternative formats are available upon request.

Stuttering Foundation of America (SFA)

President: Jane Fraser
Public Information Contact: Joan Warner, Coordinator
Address: 3100 Walnut Grove Road, Suite 603, Memphis, TN, 38111
Voice: (901) 452-7343
Toll-free Voice: (800) 992-9392
Fax: (901) 452-3931
E-mail: info@stutteringhelp.org
Internet: www.stutteringhelp.org / www.tartamudez.org

Description:
The Stuttering Foundation of America (SFA) provides resources, services, and support to individuals who stutter, their families, and professionals who serve them. SFA offers comprehensive, up-to-date information on stuttering in the form of DVDs, books, brochures, workshops, and conferences. In addition, SFA supports research into the causes of stuttering. SFA’s worldwide referral list provides names of speech-language pathologists who specialize in stuttering treatment. SFA also sponsors the annual National Stuttering Awareness Week during the second week of May. Some materials are online and may be available in Spanish, French, and Italian. SFA also provides information through its Spanish-language Web site, www.tartamudez.org.

Sertoma International

Executive Director: Stephen Murphy
Address: 1912 East Meyer Blvd., Kansas City, MO, 64132-1174
Voice: (816) 333-8300
Toll-free Voice: (800) 593-5646
TTY: (816) 333-8300
Fax: (816) 333-4320
E-mail: infosertoma@sertomahq.org
Internet: www.sertoma.org

Description:
Sertoma International (SERvice TO MAnkind) is a volunteer service organization of 18,000 members in 650 clubs across North America. Its primary focus is communication disorders, but its clubs also sponsor projects focusing on national heritage, youth, and other community needs. Sertoma offers scholarships for graduate study in audiology and speech pathology and for undergraduate students with hearing loss who are pursuing degrees in any field. Holds annual convention; contact Sertoma for date and location. Professional online publications are available.

Testing, Evaluation, and Certification Unit, Inc. (TECUnit )

President: Shellie Burrow
Public Information Contact: Tarina Cornia, Office Manager
Address: 6567 S. Cedar Creek Circle, Salt Lake City, UT, 84118
Toll-free Voice: (800) 523-0964
Fax: (435) 654-0319
E-mail: ilove2cue@yahoo.com
Internet: www.TECUnit.org

Description:
The Testing, Evaluation, and Certification Unit, Inc., (TECUnit) is the national certifying body for transliterators who work primarily between spoken and cued English. TECUnit administers the Cued Language Transliterator National Certification Examination and also has developed an assessment tool for use by state agencies. TECUnit also administers standardized tests designed to assess expressive and receptive cueing proficiency. Ultimately, TECUnit is responsible for establishing, maintaining, and promulgating national standards for the profession of cued language transliteration. Professional fact sheets and online publications are available.

The Triological Society (formerly the American Laryngological, Rhinological, and Otological Society)

Executive Secretary: Patrick E. Brookhouser, M.D.
Administrator: Gail Binderup
Address: 555 North 30th Street, Omaha, NE, 68131
Voice: (402) 346-5500
Fax: (402) 346-5300
E-mail: info@triological.org
Internet: www.triological.org

Description:
The Triological Society is an international society of otolaryngologists and head and neck surgeons. The society provides continuing education opportunities for its members through its meetings. Holds an annual meeting as well as four section meetings each year; contact the society for dates and locations.

United States Society for Augmentative and Alternative Communication (USSAAC)

President: Patricia Ourand, M.S., CCC-SLP
Public Information Contact: Barbara Figueiredo, USSAAC Office Manager
Address: P.O. Box 10906, Baltimore, MD, 21214
Voice: (877) 887-2222
Fax: (410) 296-5710
E-mail: Barbara@ussaac.org
Internet: www.USSAAC.org

Description:
The purposes of the United States Society for Augmentative and Alternative Communication (USSAAC) are to enhance the communication effectiveness of people who can benefit from augmentative and alternative communication and to support the goals of the International Society for Augmentative and Alternative Communication. USSAAC supports individuals in their right to communicate and participate fully in society; promotes public awareness; influences national and state public policy and legislation; disseminates legislative, regulatory, and funding information; facilitates high-quality service delivery; and promotes transdisciplinary professional education. Sponsors a bienniel conference; visit the USSAAC Web site for date and location.

Have a Question? Talk to a health information specialist toll-free
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