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| Current Bibliographies in Medicine | |
Understanding Health Literacy and its Barriers (CBM 2004-1)
Current Bibliographies in Medicine 2004-1
Understanding Health Literacy and its Barriers
| Table of Contents Series Note PDF Version of This CBM Sample Citations Introduction Bibliography: Comprehension, Readability, Usability, and Other Assessment Economic and Other Access Barriers Internet, E-Health, and Informatics Language and Other Communication Barriers Materials Development and Strategies Professional-Patient Communication Risk Communication and Comprehension Toolkits, Handbooks, Audiovisuals |
January 1998 through November 2003, plus selected earier and later citations 651 Citations Prepared by 2004 May U.S. DEPARTMENT OF HEALTH AND HUMAN SERVICES National Library of Medicine Each bibliography in the Current Bibliographies in Medicine (CBM) series covers a distinct subject area of biomedicine and fulfills a current awareness function. Online databases and the Internet are the primary sources for citations in these bibliographies. Relevance to the subject is the only criterion for inclusion of works in a CBM; the format, ownership, or location of the material are not considered. Other publications in the Current Bibliographies in Medicine series are available through the Library's World Wide Web site at http://www.nlm.nih.gov/pubs/resources.html Comments and suggestions on this series may be addressed to: Karen Patrias, Editor PubMed®, LocatorPlus®, and the NLM Gateway The Library offers three interfaces to its databases; all are available on the World Wide Web. PubMed provides access primarily to the journal literature; LocatorPlus is an online catalog of the books, journal titles, and audiovisuals held by the Library; and the NLM Gateway serves as an entry point for a variety of databases and other Library products. Further information on PubMed, LocatorPlus, and the NLM Gateway may be found at http://www.nlm.nih.gov/ The Portable Document Format (PDF) version of this bibliography will soon be available from http://www.nlm.nih.gov/pubs/cbm/healthliteracybarriers.pdf. Note that PDF documents require the use of the Adobe® Acrobat® Reader, which may be downloaded from the Adobe Web site at no charge. Citations are formatted according to the rules established for Index Medicus®*. Sample journal, monograph, and Web site citations appear below. An availability statement follows many journal article citations. This statement contains an Internet hyperlink to the citation in the NLM PubMed retrieval system. The PubMed record includes an abstract for most articles and may also provide a link to the publisher's Internet site. Journal Article: Roter DL, Rudd RE, Comings J. Patient literacy. A barrier to quality of care. J Gen Intern Med. 1998 Dec;13(12)850-1. Available from PubMed; PMID 9844085 Order, with separating punctuation: Monograph: Thompson TL, Dorsey AM, Miller KI, Parrott R, editors. Handbook of health communication. Mahwah (NJ) Lawrence Erlbaum Associates; 2003. 753 p.Order, with separating punctuation: Web Site: Health Literacy [Internet]. Mount Pleasant (MI): Michigan Adult Learning & Technology Center; [modified 2003 Apr 16; cited 2004 Apr 30]. Available from: http://www.malt.cmich.edu/healthlit.htm Order, with separating punctuation: * For details of the formats used for references, see
the following publications: |
Understanding Health Literacy and its Barriers
What is health literacy? The current operational definition used in Healthy People 2010 is: "the degree to which individuals have the capacity to obtain, process and understand basic health information and services for appropriate health decisions."1 Health literacy is the means by which holders of knowledge can make that knowledge understandable and usable for the receiver.
In the five years since the National Library of Medicine released the first Current Bibliographies in Medicine (CBM) on this topic2, national interest in health literacy has increased. A growing number of disciplines are contributing new knowledge about the implications of literacy challenges and the disproportionate impact of those challenges on some groups and populations. So much had been added to the literature, it was clear the time had come for another bibliography.
At the core of this accelerated interest is the growing realization that more than 90 million Americans struggle to understand basic health information.3 For example, one research study in a public hospital found that one-third of English-speaking patients could not read basic health materials. More than a quarter could not read appointment slips and forty-two percent did not understand labels on prescription bottles.4 The 2000 census counted 20 million people who speak poor English, 10 million who speak no English. The White House Office of Management and Budget in a 2002 report estimated the number of patient encounters across language barriers each year at 66 million.5
Ascertaining public need, using appropriate communication strategies and tactics, ensuring access and usability, identifying and removing obstacles within systems, and continuously evaluating the efforts to ensure improvement, are all competencies required to achieve health literacy. The Institute of Medicine of the National Academy of Sciences emphasizes the significance of these competencies saying, "Health literacy is where the expectations, preferences and skills of individuals seeking health information meet the expectations, preferences and skills of individuals providing information. Health literacy arises from a convergence of education, health services, and social and cultural factors, and brings together research and practice from diverse fields."6
Low or limited health literacy might best be described as a weakness in connecting-or a complete failure to connect-the audience with appropriate health information materials, services, or resources. Addressing this chasm of communication, Federal public health leaders, including the Secretary of the U.S. Department of Health and Human Services and the Surgeon General of the United States, are currently calling for national action on health literacy. The Secretary emphasized, "The health of our country depends on our understanding of basic health information in order to lead a healthy life." 7 Echoing the same theme, the Surgeon General highlighted health literacy needs and proposed specific steps to capitalize on the Healthy People 2010 initiative on health literacy. He noted, The ability to access, understand, and use health-related information and services is critical to the success of my three priorities: improving emergency preparedness, and eliminating health disparities, and preventing disease." 8
Resources for these three foci are within this bibliography. Candidate citations were identified primarily by searching online databases and the Internet. We selected only English language material and generally excluded letters, editorials, or literature published before 1998, unless they provide an important historical context. The selected citations are from a variety of disciplines to highlight resources available to medical, health, education, and communication professionals as they tackle this important national challenge. Primarily, this bibliography includes citations from literacy literature only when in a health literacy context. In this context, selections are from health education, communication (interpersonal, institutional, systems, interactive, listening, accessibility), risk, compliance, informed consent, professional-patient interaction, cultural competence, and health disparities research.
Selections are also included from literature on reading, numeracy, contextualization, visual and auditory comprehension, accessibility, translation and interpreter use, the navigation of medical systems by individuals with cultural differences or literacy challenges, materials development or materials evaluation for various cultural groups or those with varying health literacy challenges, and mental health literacy. The Web sites were selected using the National Cancer Institute evaluation criteria for content 9 and usability.10,
We urge the reader to keep two caveats in mind when utilizing this bibliography. First, within it are many attempts to quantify health literacy by sets of skills or attributes in an effort to find a universal formula or "recipe" for a more universal solution to the problem of low health literacy. These attempts to find a universal solution may seem straightforward until the standards are applied to real circumstances. For example, there is a major difference between "a sixth grade reading level" applied to an actual sixth grade child who has limited life experience and "a sixth grade reading level" used as a measure of vocabulary and comprehension skill of adult who has much more life experience upon which to draw. Secondly, within the bibliography are articles describing differing approaches to evaluation of specific materials in specific settings with specific audiences that may or may not have implications for other materials, settings, or audiences.
This bibliography is meant to complement the Health Literacy CBM done earlier. Whereas that bibliography sought to define the problem and examine potential strategies, this one examines some of the barriers that may need to be addressed when designing such strategies. We hope that it will stimulate additional interest in research related to health literacy. We also hope that an increase in research and a broader understanding of research results will provide a foundation for disease prevention and health promotion for the 90 million Americans who struggle with challenges of literacy each day.
Marin P. Allen, Ph.D.
Communication Director
National Institute on Deafness and Other Communication
Disorders
Alice M. Horowitz, Ph.D.
National Institute on Dental and Craniofacial Research
May 2004
1. Healthy people 2010. 2nd ed. Washington (DC): Department of Health and Human Services (US); 2000 Nov. 2 Vols.
2. Selden C, Zorn M, Ratzan SC, Parker RM, compilers. Health literacy [bibliography on the Internet]. Bethesda (MD): National Library of Medicine; 2000 Feb [cited 2004 May 8]. Available from: http://www.nlm.nih.gov/archive//20061214/pubs/cbm/hliteracy.html
3. Kirsch IS, Jungeblut A, Jenkins L, Kolstad A. Adult literacy in America: a first look at the findings of the National Adult Literacy Survey. 2nd ed. Washington (DC): Department of Education (US), Office of Educational Research and Improvement; 1993 Sep.
4. Williams MV, Parker RM, Baker DW, Parikh NS, Pitkin K, Coates WC, Nurss JR. Inadequate functional health literacy among patients at two public hospitals. JAMA. 1995 Dec 6;274(21):1677-82.
5. Newman B. Doctors' orders can get lost in translation for immigrants: physicians question the cost and need of breaking-down the language barrier. Wall Street Journal. 2003 Jan 9:1.
6. Health Literacy [Internet]. Washington (DC): National Academy of Sciences (US), Institute of Medicine; c2004 [cited 2004 Apr 30]. Available from: http://www.iom.edu/project.asp?id=3827
7. Improving health literacy. HHS Week Rep 2003 Sep 29-2003 Oct 5.
8. U.S. Surgeon General promotes health literacy. HHS Week Rep. 2003 Jun 16-2003 Jun 22.
9. How to evaluate health information on the Internet: questions and answers [Internet]. Bethesda (MD): National Cancer Institute (US); [reviewed 2003 Dec 11; cited 2004 May 8]. Available from: http://cis.nci.nih.gov/fact/2_10.htm
10. Usability.gov [Internet]. Washington (DC): Department of health and Human Services (US); [updated 2004 Apr 15; cited 2004 May 8]. Available from: http://www.usability.gov/
This publication is not copyrighted and may be freely reproduced. However any reproductions of this bibliography, in whole or in part, should include all credits. If you wish to cite this bibliography, the correct format is:
Zorn, Marcia; Allen, Marin P.; Horowitz, Alice M., compilers. Understanding health literacy and its barriers [bibliography on the Internet]. Bethesda (MD): National Library of Medicine (US); 2004 May [cited YYYY MMM DD]. Available from: http://www.nlm.nih.gov/pubs/cbm/healthliteracybarriers.html
BACKGROUND
Advancing public policy. Proceedings of the National Conference on Health Literacy; 2000 Jan 18-19; Washington, DC. New York (NY): Pfizer, Inc.; 2000? [cited 2004 Apr 30]. 19 p.
American Academy of Medical Administrators, Partnership for Clear Health Communication Steering Committee. Eradicating low health literacy: the first public health movement of the 21st century: overview white paper [Internet]. Des Plaines (IL): The Academy; 2003 Mar [cited 2004 Apr 22]. 14 p. a href="http://www.aameda.org/MemberServices/Exec/Articles/sum03/EradicatingLowHealthcareLiteracy.pdf"> http://www.aameda.org/MemberServices/Exec/Articles/sum03/EradicatingLowHealthcareLiteracy.pdf
American Medical Association, Council on Scientific Affairs Ad Hoc Committee on Health Literacy. Health literacy: report of the Council on Scientific Affairs. JAMA. 1999 Feb 10;281(6):552-7. Comment in: JAMA. 1999 Aug 11;282(6):525-6; discussion 526-7; JAMA. 1999 Aug 11;282(6):526-7. Available from: PubMed; PMID 10022112 Also available from: http://jama.ama-assn.org/cgi/content/full/281/6/552
AMSN Official Position Statement on: health literacy [Internet]. Pitman (NJ): Academy of Medical-Surgical Nurses; c2000 [modified 2003 Jan 28; 2004 Apr 30]. [about 4 screens]. Available from: http://www.medsurgnurse.org/cgi-bin/WebObjects/AMSNMain.woa/1/wa/viewSection?wosid=Ga6F5kCTIbUy2pR6iun5GC1fiZH&s_id=1073744079&ss_id=536873229&tName=positionsHealthLiteracy Also at: AMSN News. 2000 Nov-Dec;9(6):2.
Andrus MR, Roth MT. Health literacy: a review. Pharmacotherapy. 2002 Mar;22(3):282-302. Available from: PubMed; PMID 11898888
Baker DW. Reading between the lines: deciphering the connections between literacy and health. J Gen Intern Med. 1999 May;14(5):315-7. Comment on: J Gen Intern Med. 1999 May;14(5):267-73. Available from: PubMed; PMID 10337042
Baker DW, Parker RM, Williams MV, Clark WS. Health literacy and the risk of hospital admission. J Gen Intern Med. 1998 Dec;13(12):791-8. Comment in: J Gen Intern Med. 1998 Dec;13(12):850-1. Available from: PubMed; PMID 9844076
Baker DW, Parker RM, Williams MV, Clark WS, Nurss J. The relationship of patient reading ability to self-reported health and use of health services. Am J Public Health. 1997 Jun;87(6):1027-30. Available from: PubMed; PMID 9224190
Baker DW, Parker RM, Williams MV, Pitkin K, Parikh NS, Coates W, Imara M. The health care experience of patients with low literacy. Arch Fam Med. 1996 Jun;5(6):329-34. Available from: PubMed; PMID 8640322
Bar Yam NB. Political issues. Low health literacy: a problem for all in the health care circle. Int J Childbirth Educ. 2002 Sep;17(3):21-3.
Bennett IM, Kripalani S, Weiss BD, Coyne CA. Combining cancer control information with adult literacy education: opportunities to reach adults with limited literacy skills. Cancer Control. 2003 Sep-Oct;10(5 Suppl):81-3. Available from: PubMed; PMID 14581908
Berkman ND, DeWalt DA, Pignone MP, Sheridan SL, Lohr KN, Lux L, Sutton SF, Swinson T, Bonito AJ (RTI International-University of North Carolina Evidence-based Practice Center, Research Triangle Park, North Carolina). Literacy and health outcomes. Summary [Internet]. Rockville (MD): Agency for Healthcare research and Quality (US); 2004 Jan [cited 2004 Apr 30]. 8 p. (AHRQ publication; no. 04-E007-1). Available from: http://www.ahrq.gov/clinic/epcsums/litsum.pdf
Berland GK, Morales LS, Elliott MN, Algazy JI, Kravitz RL, Broder MS, Kanouse DE, Muñoz JA, Hauser J, Lara M, Watkins K, Yang H, Puyol JA, Escalante L, Hicks J, Griffin A, Ricci K, Brook RH, McGlynn EA. Evaluation of English and Spanish health information on the Internet [Internet]. Santa Monica (CA): California HealthCare Foundation; c2001 [cited 2004 Apr 30]. Available from: http://www.rand.org/publications/documents/interneteval/interneteval.pdf/
Bernhardt JM, Cameron KA. Accessing, understanding, and applying health communication messages: the challenge of health literacy. In: Thompson TL, Dorsey AM, Miller KI, Parrott R, editors. Handbook of health communication. Mahwah (NJ): Lawrence Erlbaum Associates; 2003. p. 583-605.
Brandt D. Literacy in American lives [Internet]. Cambridge (UK): Cambridge University Press; c2001 [2007 Jan]. 25 p. Available from: http://assets.cambridge.org/97805217/83156/sample/9780521783156ws.pdf
Brodie M, Kjellson N, Hoff T, Parker M. Perceptions of Latinos, African Americans, and Whites on media as a health information source. Howard J Commun. 1999 Jul-Sep;10(3):147-67.
Canadian Association of Occupational Therapists. Position statement on health and literacy. Can J Occup Ther. 2001 Apr;68(2):130-1.
The captain's log: charting the course for literacy and health in the new millennium [Internet]. 1st Canadian Conference on Literacy and Health; 2000 May 28-30; Ottawa. Ottawa (ON): Canadian Public Health Association; 2001 Jan [cited 2004 Apr 30]. 69 p. Available from: http://www.nlhp.cpha.ca/conference/c_log_e.pdf
Chung V, Horowitz AM, Canto MT, Siriphant P. Oral cancer educational materials for the general public: 1998. J Public Health Dent. 2000 Winter;60(1):49-52. Available from: PubMed; PMID 10734617
Conerly R. Communicating cancer control messages to low-literate and diverse audiences. J Psychosoc Oncol. 2001;19(3-4):147-59.
Cunningham AE, Stanovich KE. What reading does for the mind. Am Educ. 1998;22:8-15.
Currier GW, Sitzman R, Trenton A. Literacy in the psychiatric emergency service. J Nerv Ment Dis. 2001 Jan;189(1):56-8. Available from: PubMed; PMID 11206666
Davis TC, Dolan NC, Ferreira MR, Tomori C, Green KW, Sipler AM, Bennett CL. The role of inadequate health literacy skills in colorectal cancer screening. Cancer Invest. 2001;19(2):193-200. Available from: PubMed; PMID 11296623
Definitions, standards, and competencies related to information literacy [Internet]. San Jose (CA): San Jose State University, National Forum on Information Literacy; [modified 2003 Jul 29; cited 2004 Apr 23]. Available from: http://www.infolit.org/definitions.html
Dent T. Part I. Patient education. Dis Mon. 2000 Dec;46(12):785-97. Available from: PubMed; PMID 11191460
The directory of plain language health information [Internet]. Ottawa (OT): Canadian Public Health Association, Plain Language Service; c1999 [cited 2004 Apr 30]. Available from: http://www.pls.cpha.ca/english/english.pdf
Eng TR, Maxfield A, Patrick K, Deering MJ, Ratzan SC, Gustafson DH. Access to health information and support: a public highway or a private road? JAMA. 1998 Oct 21;280(15):1371-5. Available from: PubMed; PMID 9794322
Estrada C, Barnes V, Collins C, Byrd JC. Health literacy and numeracy. JAMA. 1999 Aug 11;282(6):527. Comment on: JAMA. 1999 Feb 10;281(6):545-51. Available from: PubMed; PMID 10450711
Evaluation of health literacy work among libraries and community organizations in the New York City area: report highlights [Internet]. New York (NY): Americans for Libraries Council, Libraries for the Future; 2002 [cited 2004 Apr 30]. 4 p. Available from: http://www.lff.org/programs/hlconfeval.pdf
Fortenberry JD, McFarlane MM, Hennessy M, Bull SS, Grimley DM, St Lawrence J, Stoner BP, VanDevanter N. Relation of health literacy to gonorrhoea related care. Sex Transm Infect. 2001 Jun;77(3):206-11. Available from: PubMed; PMID 11402232
Freebody P, Freiburg J. Health literacy and social practice: response to Nutbeam. Lit Numer Stud. 1999;9:257-66.
Friedland RB, O'Neill G. Understanding health literacy: new estimates of the costs of inadequate health literacy. Washington (DC): National Academy on Aging Society (US); 1988. 30 p.
Functional health literacy & colorectal cancer outcomes [Internet]. Bethesda (MD): National Cancer Institute (US), Cancer Care Outcomes Research and Surveillance Consortium; [cited 2004 Apr 22]. [about 2 screens].
Gazmararian J, Baker D, Parker R, Blazer DG. A multivariate analysis of factors associated with depression: evaluating the role of health literacy as a potential contributor. Arch Intern Med. 2000 Nov 27;160(21):3307-14. Available from: PubMed; PMID 11088094
Gazmararian JA, Baker DW, Williams MV, Parker RM, Scott TL, Green DC, Fehrenbach SN, Ren J, Koplan JP. Health literacy among Medicare enrollees in a managed care organization. JAMA. 1999 Feb 10;281(6):545-51. Comment in: JAMA. 1999 Aug 11;282(6):527. Available from: PubMed; PMID 10022111
Gazmararian JA, Williams MV, Peel J, Baker DW. Health literacy and knowledge of chronic disease. Patient Educ Couns. 2003 Nov;51(3):267-75. Available from: PubMed; PMID 14630383
Glassby PF. Health illiteracy--the hidden handicap. J Ir Dent Assoc. 2002;48(2):65, 67-8. Available from: PubMed; PMID 12138747
Goldbloom R. Illiteracy – fighting the hidden epidemic [editorial]. Paediatr Child Health [Internet]. 2002 Jul-Aug [modified 2004 Feb 24; cited 2004 Apr 24];7(6):[about 3 p.]. Available from: http://www.pulsus.com/Paeds/07_06/edie_ed.htm
Green L. Determining patient illiteracy in managed care plans [Internet]. Princeton (NJ): Robert Wood Johnson Foundation; 1997 May [updated 2000 Dec 8; cited 2004 Apr 30] . [about 6 p.]. Available from: http://www.rwjf.org/reports/grr/030763s.htm Report Prepared by: Lauren Green.
Greenberg D. A critical look at health literacy. Adult Basic Educ. 2001 Summer;11(2):67-79.
Greenberg J. An updated overview of medical and public health literature addressing literacy issues: an annotated bibliography of articles published in 2000 [Internet]. Boston (MA): The Harvard School of Public Health, Department of Society, Human Development and Health; [cited 2004 Apr 23]. [about 10 p.]. Available from: http://www.hsph.harvard.edu/healthliteracy/lit_2000.html
Grosse RN, Auffrey C. Literacy and health status in developing countries. Annu Rev Public Health. 1989;10:281-97. Available from: PubMed; PMID 2655635
Health Literacy Project, phase 1: Needs assessment of the health education and information needs of hard-to-reach patients. Part 1. Background document on literacy and health [Internet]. Montreal (QC): The Centre for Literacy of Quebec; c2001 [cited 2004 Apr 30]. 44 p. Available from: http://www.nald.ca/PROVINCE/QUE/litcent/health/finalsum/bd/backdoc.pdf
Health literacy rated low in one third of Medicare managed care enrollees. Am J Health Syst Pharm. 1999 Apr 15;56(8):709-10. Available from: PubMed; PMID 10326612
Healthy People 2010: understanding and improving health [Internet]. 2nd ed. Washington (DC): Department of Health and Human Services (US); 2000 Nov. 62 p. Available from: http://www.healthypeople.gov/Document/pdf/uih/2010uih.pdf
Hibbard J, Dubow J. An assessment of Medicare beneficiaries' understanding of the differences between the traditional Medicare programs and HMOs [Internet]. Washington (DC): AARP, Public Policy Institute; 1998 Jun [cited 2007 Jan]. 76 p. (AARP publication; 9805). Available from: http://www.aarp.org/research/medicare/advantage/2006_12_medicare.html
Hochhauser M. Can consumers understand managed care report cards? Manag Care Interface. 1998 Nov;11(11):91-5. Available from: PubMed; PMID 10187422
Hochhauser M. The continuing critical issue is health literacy. Manag Care Interface. 2003 Aug;16(8):23-4, 29. Available from: PubMed; PMID 12964549
Hochhauser M. Is it ethical to give out unreadable information? Manag Care Q. 2003 Spring;11(2):33-6. Available from: PubMed; PMID 12968442
Hohn MD. Empowerment health education in adult literacy: a guide for public health and adult literacy practitioners, policy makers and funders [Internet]. Washington (DC): National Institue for Literacy (US); c1998 [modified 2002 Mar 8; cited 2004 Apr 30]. [about 79 p.]. Available from: http://www.nifl.gov/nifl/fellowship/reports/hohn/HOHN.HTM by Marcia Drew Hohn .
The importance of health literacy and Internet usability. Facts Life [Internet]. 2002 Jun [cited 2004 Apr 23];7(6):[about 1 screen]. Available from: http://www.cfah.org/factsoflife/Vol7no6.cfm#5
Information literacy competency standards for higher education [Internet]. Chicago (IL): Association of College and Research Libraries; c2003 [revised 2004 Apr 8; cited 2004 Apr 22]. 20 p. Available from: http://www.ala.org/ala/acrl/acrlstandards/standards.pdf
Jennings CP, Thompson L, Roberts D. Policy spotlight: achieving health literacy. In: Mason DL, Leavitt JK, Chaffee MW, editors. Policy & politics in nursing and health care. 4th ed. St. Louis (MO): Saunders; 2002. p. 107-12.
Kalichman SC, Benotsch E, Suarez T, Catz S, Miller J, Rompa D. Health literacy and health-related knowledge among persons living with HIV/AIDS. Am J Prev Med. 2000 May;18(4):325-31. Available from: PubMed; PMID 10788736
Kalichman SC, Rompa D. Emotional reactions to health status changes and emotional well-being among HIV-positive persons with limited reading literacy. J Clin Psychol Med Settings. 2000 Dec;7(4):203-11.
Kalichman SC, Rompa D. Functional health literacy is associated with health status and health-related knowledge in people living with HIV-AIDS. J Acquir Immune Defic Syndr. 2000 Dec 1;25(4):337-44. Available from: PubMed; PMID 11114834
Kalichman SC, Rompa D, Cage M. Reliability and validity of self-reported CD4 lymphocyte count and viral load test results in people living with HIV/AIDS. Int J STD AIDS. 2000 Sep;11(9):579-85. Available from: PubMed; PMID 10997499
Kerka S. Health literacy beyond basic skills [Internet]. Washington (DC): Department of Education (US), Educational Resources Information Center; 2003 [cited 2004 Apr 23]. 2 p. (ERIC digest; no. 245). Available from: http://www.cete.org/acve/docs/dig245.pdf by Sandra Kerka.
Kickbusch I, Caldwell A, Hartwig K. Health literacy, empowerment and HIV/AIDS: striking a balance on an uneven playing field [Internet]. Washington (DC): National Commission on Libraries and Information Science (US); 2002 Jul [cited 2004 Apr 30]. Paper prepared for the Information Literacy Meeting of Experts held September 20-23, 2003, in Prague. 23 p. Available from: http://www.nclis.gov/libinter/infolitconf&meet/papers/kickbusch-fullpaper.pdf
Kickbusch I, Ratzan SC. Health literacy: making a difference in the USA. J Health Commun. 2001 Apr-Jun;6(2):87-8. Available from: PubMed; PMID 11405081
Kickbusch IS. Health literacy: addressing the health and education divide. Health Promot Int. 2001 Sep;16(3):289-97. Available from: PubMed; PMID 11509466
Kirsch IS, Jungeblut A, Jenkins L, Kolstad A. Adult literacy in America: a first look at the findings of the National Adult Literacy Survey. 2nd ed. Washington (DC): Department of Education (US), Office of Educational Research and Improvement; 1993 Sep.
Kreps GL. The evolution and advancement of health communication inquiry. Commun Yearb. 2001;24:231-53.
Lee PP. Why literacy matters. Links between reading ability and health. Arch Ophthalmol. 1999 Jan;117(1):100-3. Available from: PubMed; PMID 9930167
Literacy and health: a position paper adopted at the 1992 OPHA Annual General Meeting [Internet]. Toronto (ON): Ontario Public Health Association; 1992 [cited 2004 Apr 30]. 5 p. Available from: http://www.opha.on.ca/ppres/1992-01_pp.pdf
Literacy and health in the United States: selected annotations [bibliography on the Internet]. Atlanta (GA): Centers for Disease Control (US), Center for Chronic Disease Prevention and Health Promotion; 1991 Mar [cited 2004 Apr 22]. 73 p. Available from: http://aspe.hhs.gov/pic/pdf/4895.pdf
Low health literacy hurts patient compliance: costing the health care system $73 billion a year. Case Manage Advis. 2001 Sep;12(9):141-2, 144.
Merriman B, Ades T, Seffrin JR. Health literacy in the information age: communicating cancer information to patients and families [Internet]. CA Cancer J Clin [Internet]. 2002 May-Jun [cited 2004 Apr 22];52(3):130-3. Available from: http://caonline.amcancersoc.org/cgi/reprint/52/3/130.pdf
Michielutte R, Alciati MH, el Arculli R. Cancer control research and literacy. J Health Care Poor Underserved. 1999 Aug;10(3):281-97. Available from: PubMed; PMID 10436728
Miles S, Davis T. Patients who can't read. Implications for the health care system. JAMA. 1995 Dec 6;274(21):1719-20. Comment on: JAMA. 1995 Dec 6;274(21):1677-82. Available from: PubMed; PMID 7474280
Muscat M. Health literacy conference raises awareness, conveys latest information on a growing healthcare challenge [Internet]. La Habra (CA): Institute for Healthcare Advancement; [modified 2004 Mar 23; cited 2004 Apr 23]. [about 9 p.]. Available from: http://www.iha4health.org
National Assessment of Adult Literacy (NAAL): Fact sheet for states [Internet]. Washington (DC): Department of Education (US), National Center for Education Statistics; [cited 2007 Jan]. 2 p. NAAL Homepage at:http://nces.ed.gov/naal/
National Work Group on Literacy and Health. Communicating with patients who have limited literacy skills. J Fam Pract. 1998 Feb;46(2):168-76. Available from: PubMed; PMID 9487325
Nielsen-Bohlman L, Panzer AM, Kindig DA, editors. Health literacy: a prescription to end confusion [Internet]. Washington (DC): National Academies Press; 2004 [cited 2004 Apr 30]. 368 p. Available from: http://www.nap.edu/catalog/10883.html.
Nurss JR. Adult literacy and health care. In: Smith MC, editor. Literacy for the twenty-first century: research, policy, practices, and the National Adult Literacy Survey. Westport (CT): Praeger Publishers/Greenwood Publishing Group, Inc; 1998. p. 195-209.
Nutbeam D. Health literacy as a public health goal: a challenge for contemporary health education and communication strategies into the 21st century. Health Promot Int. 2000 Sep;15(3):259-67.
Nutbeam D, Kickbusch I. Advancing health literacy: a global challenge for the 21st century. Health Promot Int [Internett]. 2000 [cited 2004 Apr 30];15(3):183-4. Available from: http://www.ingenta.com/isis/browsing/TOC/ingenta;jsessionid=osno6d0n8ird.circus?issue=pubinfobike://oup/heapro/2000/00000015/00000003
Parikh NS, Parker RM, Nurss JR, Baker DW, Williams MV. Shame and health literacy: the unspoken connection. Patient Educ Couns. 1996 Jan;27(1):33-9. Available from: PubMed; PMID 8788747
Parker RM, Davis TC, Williams MV. Patients with limited health literacy. In: Bateman WB, Kramer EJ, Glassman KS, editors. Patient and family education in managed in managed care and beyond: seizing the teachable moment. New York (NY): Springer Pubblishing Co.; 1999. p. 63-71.
Parker RM, Gazmararian JA. Health literacy: essential for health communication. J Health Commun. 2003;8 Suppl 1:116-8. Available from: PubMed; PMID 14692576
Parker RM, Schwartzberg JG. What patients do--and don't--understand. Postgrad Med. 2001 May;109(5):13-6. Available from: PubMed; PMID 11381662
Parker RM, Williams MV, Baker DW, Nurss JR. Literacy and contraception: exploring the link. Obstet Gynecol. 1996 Sep;88(3 Suppl):72S-7S. Available from: PubMed; PMID 8752231
Patients' low health literacy is a 'significant threat' to quality care: problem has only begun to be addressed. QI TQM. 2001 Jun;11(6):61-5.
Payne JG, Schulte SK. Mass media, public health, and achieving health literacy. J Health Commun. 2003;8 Suppl 1:124-5. Available from: PubMed; PMID 14692579
Petersson KM, Reis A, Ingvar M. Cognitive processing in literate and illiterate subjects: a review of some recent behavioral and functional neuroimaging data. Scand J Psychol. 2001Jul;42(3):251-67. Available from: PubMed; PMID 11501739
Pirisi A. Low health literacy prevents equal access to care. Lancet. 2000 Nov 25;356(9244):1828. Available from: PubMed; PMID 11117924
Plain language and the challenge of health literacy: new directions in health communication. NIDCD Inside [Internet]. 2001 Winter [updated 2004 Feb 25; cited 2004 Apr 30]:[about 3 screens]. Available from: http://www.nidcd.nih.gov/health/inside/wtr01/pg2.asp
Porter S. Don't assume health literacy. FP Rep [Internet]. 2001 Jan [cited 2004 Apr 22];7(1):[about 2 p,]. Available from: http://www.aafp.org/fpr/20010100/10.html
Potter L, Martin C. Fact Sheets on Health Literacy bibliography [Internet]. Princeton (NJ): Center for Health Care Strategies, Inc; 2005 Aug [cited 2006 Oct]. 13 p. Available from: http://www.chcs.org/publications3960/publications_show.htm?doc_id=291711 OR http://www.chcs.org/usr_doc/Health_Literacy_Fact_Sheets.pdf
Potter L, Martin C. Health literacy and understanding medical information [Internet]. Princeton (NJ): Center for Health Care Strategies, Inc; 2005 Aug [cited 2006 Oct]. p. (Fact sheet; no. 4 ). Available from: http://www.chcs.org/publications3960/publications_show.htm?doc_id=291711 OR OR http://www.chcs.org/usr_doc/Health_Literacy_Fact_Sheets.pdf
Potter L, Martin C. What is health literacy? [Internet]. Princeton (NJ): Center for Health Care Strategies, Inc.; 2005 Aug [cited 2006 Oct]. 2 p. (Fact sheet; no. 1). Available from: http://www.chcs.org/publications3960/publications_show.htm?doc_id=291711 OR http://www.chcs.org/usr_doc/Health_Literacy_Fact_Sheets.pdf
Potter L, Martin C. Who has health literacy problems? [Internet]. Princeton (NJ): Center for Health Care Strategies, Inc.; 2005 Aug [cited 2006 Oct]. 2 p. (Fact sheet; no. 2). Available from: http://www.chcs.org/publications3960/publications_show.htm?doc_id=291711 OR http://www.chcs.org/usr_doc/Health_Literacy_Fact_Sheets.pdf
The Price We Pay for Illiteracy: Hearing Before the Senate Comm. on Labor and Human Resources, 105th Cong., 2nd Sess. (1998). 98 p. Available from: http://www.eric.ed.gov/sitemap/html_0900000b80090616.html
Promoting health literacy: a call to action. Proceedings; 1998 Oct 7-8; Washington, DC. New York (NY): Pfizer, Inc.; 1998? [cited 2004 Apr 30]. 13 p. Available from: www.pfizerhealthliteracy.com/Proceedings_1998.pdf
Putting the spotlight on health literacy to improve quality care. Qual Lett Healthc Lead. 2003 Jul;15(7):2-11, 1. Available from: PubMed; PMID 12918286
Quirk PA. Screening for literacy and readability: implications for the advanced practice nurse. Clin Nurse Spec. 2000 Jan;14(1):26-32. Available from: PubMed; PMID 11188460
Ratzan SC. Quality communication: the path to ideal health. J Health Commun. 2001 Jul-Sep;6(3):193-208. Available from: PubMed; PMID 21435378
Ratzan SC, Filerman GL, Lesar JW. Attaining global health: challenges and opportunities. Popul Bull. 2000 Mar;55(1):1-48. Available from: PubMed; PMID 12295795
Rogers EM, Ratzan SC, Payne JG. Health literacy: a nonissue in the 2000 presidential election. Am Behav Sci. 2001 Aug;44(12):2172-95.
Root J, Stableford S. Easy-to-read consumer communications: a missing link in Medicaid managed care. J Health Polit Policy Law. 1999 Feb;24(1):1-26. Available from: PubMed; PMID 10342253
Roter DL, Rudd RE, Comings J. Patient literacy. A barrier to quality of care. J Gen Intern Med. 1998 Dec;13(12):850-1. Comment on: J Gen Intern Med. 1998 Dec;13(12):791-8. Available from: PubMed; PMID 9844085
RTI International; University of North Carolina. Literacy and health outcomes [Internet]. Rockville (MD): Agency for Healthcare Quality and Research (US); 2004 Jan [cited 2004 Apr 22]. Available from: http://www.ahrq.gov/clinic/tp/littp.htm
Rudd RE. The challenges of functional health literacy: a role for libraries [Internet]. New York (NY): Americans for Libraries Council, Libraries for the Future; [modified 2003 Nov 19; cited 2004 Apr 30]. 32 slides. PowerPoint presentation. Available from: http://www.lff.org/programs/rudd_files/frame.htm
Rudd RE, Colton T. An overview of medical and public health literature addressing literacy issues: an annotated bibliography [Internet]. Cambridge (MA): Harvard Graduate School of Education, National Center for the Study of Adult Learning and Literacy; 1988 Aug [cited 2004 Apr 30]. (NCSALL reports; no. 7). 5 p. Available from: http://www.worlded.org/us/health/docs/annotatedbibliography/Bibliography/category6.pdf
Rudd RE, Colton T, Schacht R. An overview of medical and public health literature addressing lteracy issues: an annotated bibliography [Internet]. Boston (MA): Harvard Graduate School of Education, National Center for the Study of Adult Learning and Literacy; 2000 Jan [cited 2004 Apr 30]. 62 p. (NCSALL reports; no. 14). Available from: http://www.hsph.harvard.edu/healthliteracy/litreview.pdf National Inst. on Postsecondary Education, Libraries, and Lifelong Learning (ED/OERI), Washington, DC.
Rudd RE, Moeykens BA, Colton TC. Health and literacy: a review of medical and public health literature. In: Comings J, Garners SB, Smith C, editors. Annual review of adult learning literacy [Internet]. New York: Jossey-Bass; 1999 [cited 2004 Apr 22]. Chapter 5. Available from: http://www.hsph.harvard.edu/healthliteracy/litreview_final.pdf
Rudd RE, Zacharia C, Daube K. Integrating health and lliteracy: adult educators' experiences. Boston (MA): National Center for the Study of Adult Learning and Literacy (US); 1998. 143 p. (NCSALL reports; no. 5).
Sandiford P, Cassel J, Montenegro M, Sanchez G. The Impact of women's literacy on child health and its interaction with access to health services. Popul Stud (Camb). 1995;49(1):5-17. Available from: PubMed; PMID 14713424
Schillinger D. Improving the quality of chronic disease management for populations with low functional health literacy: a call to action. Dis Manage. 2001 Fall;4(3):103-9.
Schillinger D, Grumbach K, Piette J, Wang F, Osmond D, Daher C, Palacios J, Sullivan GD, Bindman AB. Association of health literacy with diabetes outcomes. JAMA. 2002 Jul 24-31;288(4):475-82. Comment in: JAMA. 2002 Dec 4;288(21):2687-8; JAMA. 2002 Dec 4;288(21):2688. Available from: PubMed; PMID 12132978 (eng).
Schloman BF. Health literacy: a key ingredient for managing personal health. Online J Issues Nurs [Internet]. 2994 Feb [cited 2004 May 3]:[about 9 p.]. Available from: http://nursingworld.org/ojin/infocol/info_13.htm
Selden C, Zorn ME, Parker R, Ratzan SC. Health literacy [Internet]. Bethesda (MD): National Library of Medicine (US); 2000 Feb [cited 2004 Apr 30]. (Current bibliographies in medicine; no. 2000-1). 479 citations from January 1990 through October 1999. Available from: http://www.nlm.nih.gov/pubs/cbm/hliteracy.html .
Sentell TL, Shumway MA. Low literacy and mental illness in a nationally representative sample. J Nerv Ment Dis 2003 Aug;191(8):549-52. Available from: PubMed; PMID 12972860 (eng).
Singleton K. Health literacy and adult English language learners [Internet]. Washington (DC): National Center for ESL Literacy Education (US); 2002 Feb [cited 2004 Apr 22]. [about 9 screens]. Available from: http://www.cal.org/ncle/digests/healthlitQA.htm
State official's guide to health literacy. Lexington (KY): The Council of State Governments; 2003.
Stauffer J, Frost R, Rybolt W. Literacy, illiteracy, and learning from television news. Commun Res. 1978;5:221-32.
Strategies to improve health care by removing communication barriers. Executive summary [Internet]. Proceedings; 2003 Nov 17; Washington, DC. Philadelphia (PA): American College of Physicians Foundation; 2003 Nov 17 [cited 2007 Jan]. 36 p. Available from: http://foundation.acponline.org/files/hcc2_exsum.pdf
Swedersky K. Medical perspective: worker literacy, a silent epidemic. Occup Health Tracker [Internet]. 2001 Autumn [cited 2004 Apr 30];4(3):[about 4 p.]. Available from: http://www.systoc.com/Tracker/Autumn01/WrkrLit.asp
Tomlinson LM. Patient and practitioner literacy and women's health: a global view from the closing decade 1990-2000. Ethn Dis. 2003 Spring;13(2):248-58. Available from: PubMed; PMID 12785423
The 2003 National Assessment of Adult Literacy (NAAL) [Internet]. Washington (DC): Department of Education (US), National Center for Education Statistics; 2003 [cited 2004 Apr 22]. 3 p. (NCES 2003–495). Available from: http://nces.ed.gov/pubs2003/2003495.pdf
Weiss BD. Health literacy: an important issue for communicating health information to patients. Zhonghua Yi Xue Za Zhi (Taipei). 2001 Nov;64(11):603-8. Available from: PubMed; PMID 11853212
Weiss BD. Identifying and communicating with patients who have poor literacy skills. Fam Med. 1993 Jun;25(6):369-70. Available from: PubMed; PMID 8349054
Weiss BD, Coyne C. Communicating with patients who cannot read. N Engl J Med. 1997 Jul 24;337(4):272-4. Available from: PubMed; PMID 9227936
Weiss BD, Hart G, McGee DL, D'Estelle S. Health status of illiterate adults: relation between literacy and health status among persons with low literacy skills. J Am Board Fam Pract. 1992 May-Jun;5(3):257-64. Available from: PubMed; PMID 1580173
Weiss R. Literacy issues in patient care. Health Prog. 2002 Nov-Dec;83(6):10, 58. Available from: PubMed; PMID 12420675
Wiley T. Measuring the nation's literacy: important considerations [Internet]. ERIC Digest [Internet]. 1991 Jul [modified May 16; cited 2004 Apr 23]:[about 5 p.]. Available from: http://www.ericfacility.net/ericdigests/ed334870.html
Williams MV, Baker DW, Parker RM, Nurss JR. Relationship of functional health literacy to patients' knowledge of their chronic disease. A study of patients with hypertension and diabetes. Arch Intern Med. 1998 Jan 26;158(2):166-72. Available from: PubMed; PMID 9448555
Wilson JF. The crucial link between literacy and health. Ann Intern Med. 2003 Nov 18;139(10):875-8. Available from: PubMed; PMID 14623636
Wong DW. Judge blocks State cutoff of welfare disability aid. Boston Globe. 1998 Dec 31.
Young CM. Health literacy a national epidemic [Internet]. Louisville (KY): University of Louisville; [modified 2004 Feb 13; cited 2004 Apr 30]. Available from: http://www.louisville.edu/~cmyoun02/firstpage.htm
Zarcadoolas C, Pleasant A, Greer DS. Elaborating a definition of health literacy: a commentary . J Health Commun. 2003;8 Suppl 1:119-20. Available from: PubMed; PMID 14692577
Ziegler J. How illiteracy drives up health costs. Bus Health. 1998 Apr;16(4):53-4, 57, 61. Available from: PubMed; PMID 10178402
Zobel BA. An updated overview of medical and public health literature addressing literacy issues: an annotated bibliography of articles published in 2001 [Internet]. Boston (MA): Harvard School of Public Health, Department of Society, Human Development and Health; 2002 Mar [cited 2004 Apr 23]. Available from: http://www.hsph.harvard.edu/healthliteracy/lit_2001.html
Zobel E, Rowe K, Gomez-Mandic, C. An updated overview of medical and public health literature addressing literacy issues: an annotated bibliography of articles published in 2002 [Internet]. Boston (MA): Harvard School of Public Health, Department of Society, Human Development and Health; 2003 Mar [cited 2007 Jan]. Available from: http://www.hsph.harvard.edu/healthliteracy/lit_2002.htmlADHERENCE/COMPLIANCE
Berger D, Inkelas M, Myhre S, Mishler A. Developing health education materials for inner-city low literacy parents. Public Health Rep. 1994 Mar-Apr;109(2):168-72. Available from: PubMed; PMID 8153268
Bower AB, Taylor VA. Increasing intention to comply with pharmaceutical product instructions: an exploratory study investigating the roles of frame and plain language. J Health Commun. 2003 Mar-Apr;8(2):145-56. Available from: PubMed; PMID 12746038
Charupatanapong N. Knowledge, perceived risks, and self-medication practices of the low-income elderly. J Geriatr Drug Ther. 1996;11(1):17-35.
Diabetes patients with low literacy more likely to have poorly controlled disease [Internet]. Madeira Beach (FL): Defeat Diabetes Foundation; 2002 Jul 30 [modified 2004 Apr 22; cited 2004 Apr 23]. [about 2 screens]. Available from: http://www.defeatdiabetes.org/Articles/literacy020730.htm
Dimou C. Patient education. Part III. Patient compliance. Dis Mon. 2000 Dec;46(12):811-22. Available from: PubMed; PMID 11191462
Farley D. Label literacy for OTC drugs. FDA Consum Mag [Internet]. 1997 May-Jun [cited 2004 Apr 23];41(4):[about 5 p.]. Available from: http://www.fda.gov/fdac/features/1997/497_otc.html
Health literacy and the prescription drug experience: the frontline perspective from patients, physicians and pharmacists [Internet]. New York (NY): Roper ASW LLC; 2002 Sep [cited 2004 Apr 30]. 6 p. Prepared for Pfizer, Inc. Available from: http://www.pfizerhealthliteracy.com/pdf/RoperASWHealthLiteracy.pdf
Hochhauser M. Medical jargon and legalese: constant threats to patients' "Bill of Rights" and other communications. Patient Care Manag. 2001 May;16(8):4-6.
Hunt LM, de Voogd KB, Akana LL, Browner CH. Abnormal Pap screening among Mexican-American women: impediments to receiving and reporting follow-up care. Oncol Nurs Forum. 1998 Nov-Dec;25(10):1743-9. Available from: PubMed; PMID 9826840
Hussey LC. Minimizing effects of low literacy on medication knowledge and compliance among the elderly. Clin Nurs Res. 1994 May;3(2):132-45. Available from: PubMed; PMID 7513587
Hutcheson S. Effective use of risk communication strategies for health & safety educational materials. J Extension [Internet]. 1999 Oct [cited 2004 Apr 30];37(5):[about 9 p.]. Available from: http://www.joe.org/joe/1999october/a1.html
Kalichman SC, Catz S, Ramachandran B. Barriers to HIV/AIDS treatment and treatment adherence among African-American adults with disadvantaged education. J Natl Med Assoc. 1999 Aug;91(8):439-46. Available from: PubMed; PMID 12656432
Kalichman SC, Ramachandran B, Catz S. Adherence to combination antiretroviral therapies in HIV patients of low health literacy. J Gen Intern Med. 1999 May;14(5):267-73. Comment in: J Gen Intern Med. 1999 May;14(5):315-7. Available from: PubMed; PMID 10337035
Kaufman H, Skipper B, Small L, Terry T, McGrew M. Effect of literacy on breast-feeding outcomes. South Med J. 2001 Mar;94(3):293-6. Available from: PubMed; PMID 11284516
Lutfey KE, Wishner WJ. Beyond "compliance" is "adherence." Improving the prospect of diabetes care. Diabetes Care. 1999 Apr;22(4):635-9. Comment in: Diabetes Care. 1999 Dec;22(12):2090-2; Diabetes Care. 2000 Jul;23(7):1034-5. Available from: PubMed; PMID 10189544
Miller LG, Liu H, Hays RD, Golin CE, Ye Z, Beck CK, Kaplan AH, Wenger NS. Knowledge of antiretroviral regimen dosing and adherence: a longitudinal study. Clin Infect Dis. 2003 Feb 15;36(4):514-8. Available from: PubMed; PMID 12567311
Moon RY, Cheng TL, Patel KM, Baumhaft K, Scheidt PC. Parental literacy level and understanding of medical information. Pediatrics. 1998 Aug;102(2):e25. Available from: PubMed; PMID 9685471
Murphy PW, Davis TC. When low literacy blocks compliance. RN. 1997 Oct;60(10):58-63; quiz 64. Available from: PubMed; PMID 9369773
New survey reveals uninformed consumers taking dangerous risks with OTC painkillers [Internet]. Washingon (DC): National Consumers League (US); 2003 Jan 20 [cited 2004 Apr 30]. [about 3 screens]. Available from: http://www.nclnet.org/otcpain/jan30release.htm
Van Servellen G, Brown JS, Lombardi E, Herrera G. Health literacy in low-income Latino men and women receiving antiretroviral therapy in community-based treatment centers. AIDS Patient Care STDS. 2003 Jun;17(6):283-98. Available from: PubMed; PMID 12880492
van Servellen G, Carpio F, Lopez M, Garcia-Teague L, Herrera G, Monterrosa F, Gomez R, Lombardi E. Program to enhance health literacy and treatment adherence in low-income HIV-infected Latino men and women. AIDS Patient Care STDS. 2003 Nov;17(11):581-94. Available from: PubMed; PMID 14746666
Volmink J, Matchaba P, Garner P. Directly observed therapy and treatment adherence. Lancet. 2000 Apr 15;355(9212):1345-50. Erratum in: Lancet 2000 Jul 29;356(9227):434. Comment in: Lancet. 2000 May 27;355(9218):1916; Lancet. 2000 Sep 16;356(9234):1030-1; discussion 1032; Lancet. 2000 Sep 16;356(9234):1030; discussion 1032; Lancet. 2000 Sep 16;356(9234):1031-2; Lance. Available from: PubMed; PMID 10776760
Williams MV. Recognizing and overcoming inadequate health literacy, a barrier to care. Cleve Clin J Med. 2002 May;69(5):415-8. Comment in: Cleve Clin J Med. 2002 May;69(5):355. Available from: PubMed; PMID 12022385
AGE FACTORS
Baker DW, Gazmararian JA, Sudano J, Patterson M. The association between age and health literacy among elderly persons. J Gerontol B Psychol Sci Soc Sci. 2000 Nov;55(6):S368-74. Available from: PubMed; PMID 11078114
Baker DW, Gazmararian JA, Sudano J, Patterson M, Parker RM, Williams MV. Health literacy and performance on the Mini-Mental State Examination. Aging Ment Health. 2002 Feb;6(1):22-9. Available from: PubMed; PMID 11827619
Barnes DE, Tager IB, Satariano WA, Yaffe K. The relationship between literacy and cognition in well-educated elders. J Gerontol A Biol Sci Med Sci. 2004 Apr;59(4):M390-5. Available from: PubMed; PMID 15071084
Estrada CA, Hryniewicz MM, Higgs VB, Collins C, Byrd JC. Anticoagulant patient information material is written at high readability levels. Stroke. 2000 Dec;31(12):2966-70. Available from: PubMed; PMID 11108757
Fox MS, Wong TK. What does health literacy mean to children? Contemp Nurse. 2002 Oct;13(2-3):249-58.
Gausman Benson J, Forman WB. Comprehension of written health care information in an affluent geriatric retirement community: use of the Test of Functional Health Literacy. Gerontology. 2002 Mar-Apr;48(2):93-7. Available from: PubMed; PMID 11867931
Goldstein D. Wired seniors: a real on-line E-health revolution. Manag Care Interface. 2000 Nov;13(11):50-2. Available from: PubMed; PMID 11188230
Hall JM. Women survivors of childhood abuse: the impact of traumatic stress on education and work. Issues Ment Health Nurs. 2000 Jul-Aug;21(5):443-71. Available from: PubMed; PMID 11261072
Jones AR, Thompson CJ, Oster RA, Samadi A, Davis MK, Mayberry RM, Caplan LS. Breast cancer knowledge, beliefs, and screening behaviors among low-income, elderly black women. J Natl Med Assoc. 2003 Sep;95(9):791-7, 802-5. Available from: PubMed; PMID 14527046
Kilker K. Considering health literacy. Issue Brief Cent Medicare Educ. 2000;1(6):1-8. Available from: PubMed; PMID 11817412
Miller M, Degenholtz H. The relationship between general functional literacy and use of preventive health care services among the elderly. Gerontologist. 2003 Oct 1;43 Spec Issue:74-5.
Roberts P, Fawcett G. At risk: a socioeconomic analysis of health and literacy among seniors [Internet]. Ottawa (OT): Statistics Canada; 1998 [cited 2004 Apr 30]. 68 p. (Statistics Canada; pub. 89-552-MIE, no. 5). Available from: http://www.nald.ca/NLS/ials/atrisk/atrisk.pdf
Roter DL. The outpatient medical encounter and elderly patients. Clin Geriatr Med. 2000 Feb;16(1):95-107. Available from: PubMed; PMID 10723621
Ryan HA, Bramble JD, Lee B, Mucker A, Kellner V. OTC product labels and older patients. US Pharm. 2000 Jan;25:38, 41-2, 44, 47.
Tooth L, Clark M, McKenna K. Poor functional health literacy: the silent disability for older people. Australas J Ageing. 2000 Feb;19(1):14-22.
Weiss BD, Reed R, Kligman EW, Abyad A. Literacy and performance on the Mini-Mental State Examination. J Am Geriatr Soc. 1995 Jul;43(7):807-10. Available from: PubMed; PMID 7602038
COMPREHENSION, READABILITY,
USABILITY,
AND OTHER ASSESSMENT
Adams JM, Hoffman L. Implications of issues in typographical design for readability and reading satisfaction in an aging population. Exp Aging Res. 1994 Jan-Mar;20(1):61-9. Available from: PubMed; PMID 8194577
Al-Tayyib AA, Rogers SM, Gribble JN, Villarroel M, Turner CF. Effect of low medical literacy on health survey measurements. Am J Public Health. 2002 Sep;92(9):1478-80. Available from: PubMed; PMID 12197979
Albright J, de Guzman C, Acebo P, Paiva D, Faulkner M, Swanson J. Readability of patient education materials: implications for clinical practice. Appl Nurs Res. 1996 Aug;9(3):139-43. Available from: PubMed; PMID 8771859
Alexander RE. Patient understanding of postsurgical instruction forms. Oral Surg Oral Med Oral Pathol Oral Radiol Endod. 1999 Feb;87(2):153-8. Available from: PubMed; PMID 10052368
Baker LM, Wilson FL, Kars M. The readability of medical information on Infotrac - Does it meet the needs of people with low literacy skills? Ref User Serv Q. 1997 Winter;37(2):155-60.
Berto D, Peroni M, Milleri S, Spagnolo AG. Evaluation of the readability of information sheets for healthy volunteers in phase-I trials. Eur J Clin Pharmacol. 2000 Aug;56(5):371-4. Available from: PubMed; PMID 11009044
Boswell C, Cannon S, Aung K, Eldridge J. An application of health literacy research. Appl Nurs Res. 2004 Feb;17(1):61-4. Available from: PubMed; PMID 14991557
Chesson AL Jr, Murphy PW, Arnold CL, Davis TC. Presentation and reading level of sleep brochures: are they appropriate for sleep disorders patients? Sleep. 1998 Jun 15;21(4):406-12. Available from: PubMed; PMID 9646386
Christensen RC, Grace GD. The prevalence of low literacy in an indigent psychiatric population. Psychiatr Serv. 1999 Feb;50(2):262-3. Available from: PubMed; PMID 10030488
Conlin KK, Schumann L. Literacy in the health care system: a study on open heart surgery patients. J Am Acad Nurse Pract. 2002 Jan;14(1):38-42. Available from: PubMed; PMID 11845640
D'Alessandro DM, Kingsley P, Johnson-West J. The readability of pediatric patient education materials on the World Wide Web. Arch Pediatr Adolesc Med. 2001 Jul;155(7):807-12. Available from: PubMed; PMID 11434848
Davis TC, Arnold C, Berkel HJ, Nandy I, Jackson RH, Glass J. Knowledge and attitude on screening mammography among low-literate, low-income women. Cancer. 1996 Nov 1;78(9):1912-20. Available from: PubMed; PMID 8909311
Davis TC, Fredrickson DD, Arnold C, Murphy PW, Herbst M, Bocchini JA. A polio immunization pamphlet with increased appeal and simplified language does not improve comprehension to an acceptable level. Patient Educ Couns. 1998 Jan;33(1):25-37. Available from: PubMed; PMID 9481346
Davis TC, Mayeaux EJ, Fredrickson D, Bocchini JA Jr, Jackson RH, Murphy PW. Reading ability of parents compared with reading level of pediatric patient education materials. Pediatrics. 1994 Mar;93(3):460-8. Available from: PubMed; PMID 8115206
Davis TC, Michielutte R, Askov EN, Williams MV, Weiss BD. Practical assessment of adult literacy in health care. Health Educ Behav. 1998 Oct;25(5):613-24. Available from: PubMed; PMID 9768381
Dollahite J, Thompson C, McNew R. Readability of printed sources of diet and health information. Patient Educ Couns. 1996 Mar;27(2):123-34. Available from: PubMed; PMID 8788342
Dowe MC, Lawrence PA, Carlson J, Keyserling TC. Patients' use of health-teaching materials at three readability levels. Appl Nurs Res. 1997 May;10(2):86-93. Available from: PubMed; PMID 9197048
Eberly S. Why is reading comprehension so important? Informatics Rev [Internet]. 2004 Apr 15 [cited 2004 Apr 23];7(8):[about 5 p.]. Available from: http://www.informatics-review.com/FAQ/comprehension.html
Endres LK, Sharp LK, Haney E, Dooley SL. Health literacy and pregnancy preparedness in pregestational diabetes. Diabetes Care. 2004 Feb;27(2):331-4. Available from: PubMed; PMID 14747209
Estey A, Musseau A, Keehn L. Patient's understanding of health information: a multihospital comparison. Patient Educ Couns. 1994 Aug;24(1):73-8. Available from: PubMed; PMID 7862597
Fisher E. Low literacy levels in adults: implications for patient education. J Contin Educ Nurs. 1999 Mar-Apr;30(2):56-61. Available from: PubMed; PMID 10382455
Foltz A, Sullivan J. Get real: clinical testing of patients' reading abilities. Cancer Nurs. 1998 Jun;21(3):162-6. Available from: PubMed; PMID 9615506
Foltz A, Sullivan J. Reading level, learning pesentation preference, and desire for information among cancer patients. J Cancer Educ. 1996 Spring;11(1):32-8. Available from: PubMed; PMID 8777153
Forbis SG, Aligne CA. Poor readability of written asthma management plans found in national guidelines. Pediatrics. 2002 Apr;109(4):e52. Available from: PubMed; PMID 11927725
Foster DR, Rhoney DH. Readability of printed patient information for epileptic patients. Ann Pharmacother. 2002 Dec;36(12):1856-61. Available from: PubMed; PMID 12452744
Galloway G, Murphy P, Chesson AL, Martinez K. MDA and AAEM informational brochures: can patients read them? J Neurosci Nurs. 2003 Jun;35(3):171-4. Available from: PubMed; PMID 12830665
Gannon W, Hildebrandt E. A winning combination: women, literacy, and participation in health care. Health Care Women Int. 2002 Sep-Nov;23(6-7):754-60. Available from: PubMed; PMID 12418994
Glazer HR, Kirk LM, Bosler FE. Patient education pamphlets about prevention, detection, and treatment of breast cancer for low literacy women. Patient Educ Couns. 1996 Mar;27(2):185-9. Available from: PubMed; PMID 8788348
Gordon MM, Hampson R, Capell HA, Madhok R. Illiteracy in rheumatoid arthritis patients as determined by the Rapid Estimate of Adult Literacy in Medicine (REALM) score. Rheumatology (Oxford). 2002 Jul;41(7):750-4. Available from: PubMed; PMID 12096223
Graber MA, Roller CM, Kaeble B. Readability levels of patient education material on the World Wide Web. J Fam Pract. 1999 Jan;48(1):58-61. Available from: PubMed; PMID 9934385
Grossman SA, Piantadosi S, Covahey C. Are informed consent forms that describe clinical oncology research protocols readable by most patients and their families? J Clin Oncol. 1994 Oct;12(10):2211-5. Available from: PubMed; PMID 7931491
Guidry JJ, Fagan P. The readability levels of cancer-prevention materials targeting African Americans. J Cancer Educ. 1997 Summer;12(2):108-13. Available from: PubMed; PMID 9229274
Hahn EA, Cella D. Health outcomes assessment in vulnerable populations: measurement challenges and recommendations. Arch Phys Med Rehabil. 2003 Apr;84(4 Suppl 2):S35-42. Available from: PubMed; PMID 12692770
Hanson-Divers EC. Developing a medical achievement reading test to evaluate patient literacy skills: a preliminary study. J Health Care Poor Underserved. 1997 Feb;8(1):56-69. Available from: PubMed; PMID 9019026
Hearth-Holmes M, Murphy PW, Davis TC, Nandy I, Elder CG, Broadwell LH, Wolf RE. Literacy in patients with a chronic disease: systemic lupus erythematosus and the reading level of patient education materials. J Rheumatol. 1997 Dec;24(12):2335-9. Comment in: J Rheumatol. 1998 Aug;25(8):1649-50. Available from: PubMed; PMID 9415638
Hopper KD, TenHave TR, Tully DA, Hall TE. The readability of currently used surgical/procedure consent forms in the United States. Surgery. 1998 May;123(5):496-503. Available from: PubMed; PMID 9591001
Horner SD, Surratt D, Juliusson S. Improving readability of patient education materials. J Community Health Nurs. 2000 Spring;17(1):15-23. Available from: PubMed; PMID 10778026
Improving employee comprehension: eight tips for communicating information. Health Care Food Nutr Focus. 2002 Sep;19(1):1, 3-4.
Johnson ME, Fisher DG, Davis DC, Cagle HH, Rhodes F, Booth R, Siegal H, Jones A. Assessing reading level of drug users for HIV and AIDS prevention purposes. AIDS Educ Prev. 1996 Aug;8(4):323-34. Available from: PubMed; PMID 8874649
Johnson ME, Mailloux SL, Fisher DG. The readability of HIV/AIDS educational materials targeted to drug users. Am J Public Health. 1997 Jan;87(1):112-3. Available from: PubMed; PMID 9065215
Jones D. Readability analysis of consumer health materials. In: Consumer health: an online manual [Internet]. Houston (TX): NN/LM South Central Region; [cited 2007 Jan]. [about 6 screens]. Available from: http://nnlm.gov/outreach/consumer/read.html
Kelly CK. Helping low-literacy patients: what they don't know can hurt them. PMA. 1999 Jan-Feb;32(1):8-13.
Khurana RN, Lee PP, Challa P. Readability of ocular medication inserts. J Glaucoma. 2003 Feb;12(1):50-3. Available from: PubMed; PMID 12567112
Klingbeil C, Speece MW, Schubiner H. Readability of pediatric patient education materials. Current perspectives on an old problem. Clin Pediatr (Phila). 1995 Feb;34(2):96-102. Available from: PubMed; PMID 7729114
Lasater L, Mehler PS. The illiterate patient: screening and management. Hosp Pract (Off Ed). 1998 Apr 15;33(4):163-5, 169-70. Available from: PubMed; PMID 9562838
MacDiarmid SA, Goodson TC, Holmes TM, Martin PR, Doyle RB. An assessment of the comprehension of the American Urological Association Symptom Index. J Urol. 1998 Mar;159(3):873-4. Available from: PubMed; PMID 9474172
Mailloux SL, Johnson ME, Fisher DG, Pettibone TJ. How reliable is computerized assessment of readability? Comput Nurs. 1995 Sep-Oct;13(5):221-5. Available from: PubMed; PMID 7585304
Michielutte R, Bahnson J, Dignan MB, Schroeder EM. The use of illustrations and narrative text style to improve readability of a health education brochure. J Cancer Educ. 1992;7(3):251-60. Available from: PubMed; PMID 1419592
Mohrmann CC, Coleman EA, Coon SK, Lord JE, Heard JK, Cantrell MJ, Burks EC. An analysis of printed breast cancer information for African American women. J Cancer Educ. 2000 Spring;15(1):23-7. Available from: PubMed; PMID 10730799
Mosenthal PB, Kirsch IS. A new measure for assessing document complexity: the PMOSE/IKIRSCH document readability. J Adoles Ad Lit. 1998;41(8):638-57.
Mumford ME. A descriptive study of the readability of patient information leaflets designed by nurses. J Adv Nurs. 1997 Nov;26(5):985-91. Available from: PubMed; PMID 9372404
Murero M, D'Ancona G, Karamanoukian H. Use of the Internet by patients before and after cardiac surgery: telephone survey. J Med Internet Res. 2001 Jul-Sep;3(3):E27. Available from: PubMed; PMID 11720969
Murphy PW, Chesson AL, Berman SA, Arnold CL, Galloway G. Neurology patient education materials: do our educational aids fit our patients' needs? J Neurosci Nurs. 2001 Apr;33(2):99-104. Available from: PubMed; PMID 11326625
Newton JT. The readability and utility of general dental practice patient information leaflets: an evaluation. Br Dent J. 1995 May 6;178(9):329-32. Available from: PubMed; PMID 7766454
Nordenberg T. New drug label spells it out simply. FDA Consum. 1999 Jul-Aug;33(4):29-32. Available from: PubMed; PMID 10443179
Oermann MH, Wilson FL. Quality of care information for consumers on the Internet. J Nurs Care Qual. 2000 Jul;14(4):45-54. Available from: PubMed; PMID 10881449
On the mark. Measuring literacy and readability -- check what patients really understand and act on, not how far they have gone in school. Jt Comm Benchmark. 2000 Jan;2(1):10.
Powell CK, Kripalani S. Low health literacy as a risk factor for hospital readmission [abstract]. J Gen Intern Med . 2003 Apr;18 Suppl 1:228-9. Available from: PubMed; PMID 12753119
Rolland PD. Reading level of drug information printouts: barrier to effective communication of patient medication information. Drug Inf J. 2000;34(4):1329-38.
Rudd R, Kirsch I, Yamamoto K. Literacy and health in America [Internet]. Princeton (NJ): Educational Testing Service; c2004 [cited 2005 Jan]. 48 p. Available from: http://www.ets.org/Media/Research/pdf/PICHEATH.pdf
Sentell TL, Ratcliff-Baird B. Literacy and comprehension of Beck Depression Inventory response alternatives. Community Ment Health J. 2003 Aug;39(4):323-31. Available from: PubMed; PMID 12908646
Singh J. Research briefs reading grade level and readability of printed cancer education materials. Oncol Nurs Forum. 2003 Sep-Oct;30(5):867-70. Available from: PubMed; PMID 12949600
TenHave TR, Van Horn B, Kumanyika S, Askov E, Matthews Y, Adams-Campbell LL. Literacy assessment in a cardiovascular nutrition education setting. Patient Educ Couns. 1997 Jun;31(2):139-50. Available from: PubMed; PMID 9216355
Thompson D, Williams P, Nicholas D, Huntington P. Accessibility and usability of a digital TV health information database. ASLIB Proc. 2002;54(5):294-308.
Traywick CA, Flacker JM. Is health literacy associated with performance on cognitive screening tests? J Am Geriat Soc. 2003 Apr;51(4 Suppl S):110.
Wegner MV, Girasek DC. How readable are child safety seat installation instructions? Pediatrics. 2003 Mar;111(3):588-91. Available from: PubMed; PMID 12612241
Wells JA, Ruscavage D, Parker B, McArthur L. Literacy of women attending family planning clinics in Virginia and reading levels of brochures on HIV prevention. Fam Plann Perspect. 1994 May-Jun;26(3):113-5, 131. Available from: PubMed; PMID 8070547
Williams DM, Counselman FL, Caggiano CD. Emergency department discharge instructions and patient literacy: a problem of disparity. Am J Emerg Med. 1996 Jan;14(1):19-22. Available from: PubMed; PMID 8630148
Williams MV, Parker RM, Baker DW, Parikh NS, Pitkin K, Coates WC, Nurss JR. Inadequate functional health literacy among patients at two public hospitals. JAMA. 1995 Dec 6;274(21):1677-82. Comment in: JAMA. 1995 Dec 6;274(21):1719-20; JAMA. 1996 Mar 20;275(11):840;JAMA. 2001 Nov 7;286(17):2092-3; discussion 2094-5. Available from: PubMed; PMID 7474271
Williams SA, Swanson MS. The effect of reading ability and response formats on patients' abilities to respond to a patient satisfaction scale. J Contin Educ Nurs. 2001 Mar-Apr;32(2):60-7.
Wilson FL. Measuring patients' ability to read and comprehend: a first step in patient education. Nursingconnections. 2000 Fall;13(3):19-27. Available from: PubMed; PMID 12017920
Wilson FL, Williams BN. Assessing the readability of skin care and pressure ulcer patient education materials. J Wound Ostomy Continence Nurs. 2003 Jul;30(4):224-30. Available from: PubMed; PMID 12851598
CULTURAL CONSIDERATIONS
Ades V. Lost in translation. Pharos Alpha Omega Alpha Honor Med Soc. 2002 Spring;65(2):20-5. Available from: PubMed; PMID 12099114
Alcalay R, Bell RA. Ethnicity and health knowledge gaps: impact of the California Wellness Guide on poor African American, Hispanic, and non-Hispanic White women. Health Commun. 1996;8(4):303-29.
Anderson LM, Scrimshaw SC, Fullilove MT, Fielding JE, Normand J; Task Force on Community Preventive Services. Culturally competent healthcare systems. A systematic review. Am J Prev Med. 2003 Apr;24(3 Suppl):68-79. Comment in: Am J Prev Med. 2003 Apr;24(3 Suppl):2-3; Am J Prev Med. 2003 Apr;24(3 Suppl):8-9. Available from: PubMed; PMID 12668199
Baker DW, Parker RM, Williams MV, Coates WC, Pitkin K. Use and effectiveness of interpreters in an emergency department. JAMA. 1996 Mar 13;275(10):783-8. Available from: PubMed; PMID 8598595
Barrett B, Shadick K, Schilling R, Spencer L, del Rosario S, Moua K, Vang M. Hmong/medicine interactions: improving cross-cultural health care. Fam Med. 1998 Mar;30(3):179-84. Available from: PubMed; PMID 9532439
Bauer HM, Rodriguez MA, Quiroga SS, Flores-Ortiz YG. Barriers to health care for abused Latina and Asian immigrant women. J Health Care Poor Underserved. 2000 Feb;11(1):33-44. Available from: PubMed; PMID 10778041
Beers BB, Mcdonald VJ, Quistberg DA, Ravenell KL, Asch DA, Shea JA. Disparities in health literacy between African American and not African American primary care patients [abstract]. J Gen Intern Med. 2003 Apr ;18 Suppl 1:169. Available from: PubMed; PMID 12753119
Bell RA, Alcalay R. The impact of the Wellness Guide/Guia on Hispanic women's well-being-related knowledge, efficacy beliefs, and behaviors: the mediating role of acculturation. Health Educ Behav. 1997 Jun;24(3):326-43. Available from: PubMed; PMID 9158977
Betancourt JR, Carrillo JE, Green AR. Hypertension in multicultural and minority populations: linking communication to compliance. Curr Hypertens Rep. 1999 Dec;1(6):482-8. Available from: PubMed; PMID 10981110
Betancourt JR, Green AR, Carrillo JE, Ananeh-Firempong O 2nd. Defining cultural competence: a practical framework for addressing racial/ethnic disparities in health and health care. Public Health Rep. 2003 Jul-Aug;118(4):293-302. Available from: PubMed; PMID 12815076
Bonacruz Kazzi G, Cooper C. Barriers to the use of interpreters in emergency room paediatric consultations. J Paediatr Child Health. 2003 May-Jun;39(4):259-63. Available from: PubMed; PMID 12755930
Brach C, Fraser I. Can cultural competency reduce racial and ethnic health disparities? A review and conceptual model. Med Care Res Rev. 2000;57 Suppl 1:181-217. Available from: PubMed; PMID 11092163
Crow K, Matheson L, Steed A. Informed consent and truth-telling: cultural directions for healthcare providers. J Nurs Adm. 2000 Mar;30(3):148-52. Available from: PubMed; PMID 10725944
Derose KP. Networks of care: how Latina immigrants find their way to and through a county hospital. J Immigr Health. 2000 Apr;2(2):79-87.
Derose KP, Baker DW. Limited English proficiency and Latinos' use of physician services. Med Care Res Rev. 2000 Mar;57(1):76-91. Available from: PubMed; PMID 10705703
Diaz E, Prigerson H, Desai R, Rosenheck R. Perceived needs and service use of Spanish speaking monolingual patients followed at a Hispanic clinic. Community Ment Health J. 2001 Aug;37(4):335-46. Available from: PubMed; PMID 11482751
Elderkin-Thompson V, Silver RC, Waitzkin H. When nurses double as interpreters: a study of Spanish-speaking patients in a US primary care setting. Soc Sci Med. 2001 May;52(9):1343-58. Available from: PubMed; PMID 11286360
Flores G, Abreu M, Olivar MA, Kastner B. Access barriers to health care for Latino children. Arch Pediatr Adolesc Med. 1998 Nov;152(11):1119-25. Available from: PubMed; PMID 9811291
Green AR, Betancourt JR, Carrillo JE. Integrating social factors into cross-cultural medical education. Acad Med. 2002 Mar;77(3):193-7. Available from: PubMed; PMID 11891153 (1040-2446.).
Guidry JJ, Fagan P, Walker V. Cultural sensitivity and readability of breast and prostate printed cancer education materials targeting African Americans. J Natl Med Assoc. 1998 Mar;90(3):165-9. Available from: PubMed; PMID 9549980
Guidry JJ, Walker VD. Assessing cultural sensitivity in printed cancer materials. Cancer Pract. 1999 Nov-Dec;7(6):291-6. Available from: PubMed; PMID 10732526
Hawthorne K, Tomlinson S. Pakistani moslems with Type 2 diabetes mellitus: effect of sex, literacy skills, known diabetic complications and place of care on diabetic knowledge, reported self-monitoring management and glycaemic control. Diabet Med. 1999 Jul;16(7):591-7. Available from: PubMed; PMID 10445836
Hayes RP, Bernard AM, Slocum W, el-Kebbi I, Ziemer D, Gallina D, Phillips LS. Diabetes in urban African Americans: assessment of diabetes-specific locus of control in patients with type 2 diabetes. Diabetes Educ. 2000 Jan-Feb;26(1):121-8. Available from: PubMed; PMID 10776104
Hodge FS, Weinmann S, Roubideaux Y. Recruitment of American Indians and Alaska Natives into clinical trials. Ann Epidemiol. 2000 Nov;10(8 Suppl):S41-8. Available from: PubMed; PMID 11189092
Kakai H, Maskarinec G, Shumay DM, Tatsumura Y, Tasaki K. Ethnic differences in choices of health information by cancer patients using complementary and alternative medicine: an exploratory study with correspondence analysis. Soc Sci Med. 2003 Feb;56(4):851-62. Available from: PubMed; PMID 12560017
Kandula NR, Kersey M, Lurie N. Assuring the health of immigrants: what the leading health indicators tell us. Ann Rev Public Health [Internet]. 2004;25:357-76. Available from: http://arjournals.annualreviews.org/doi/pdf/10.1146/annurev.publhealth.25.101802.123107
Kreuter MW, McClure SM. The role of culture in health communication. Ann Rev Public Health. 2004;25:439-55.
Li HZ, Browne AJ. Defining mental illness and accessing mental health services: perspectives of Asian Canadians. Can J Commun Ment Health. 2000 Spring;19(1):143-59. Available from: PubMed; PMID 12152173
Lindau ST, Tomori C, Lyons T, Langseth L, Bennett CL, Garcia P. The association of health literacy with cervical cancer prevention knowledge and health behaviors in a multiethnic cohort of women. Am J Obstet Gynecol. 2002 May;186(5):938-43. Available from: PubMed; PMID 12015518
Lipton RB, Losey LM, Giachello A, Mendez J, Girotti MH. Attitudes and issues in treating Latino patients with type 2 diabetes: views of healthcare providers. Diabetes Educ. 1998 Jan-Feb;24(1):67-71. Available from: PubMed; PMID 9526327
Meade CD, Calvo A, Cuthbertson D. Impact of culturally, linguistically, and literacy relevant cancer information among Hispanic farmworker women. J Cancer Educ. 2002 Spring;17(1):50-4. Available from: PubMed; PMID 12000108
Nance TA. Intercultural communication: finding common ground. J Obstet Gynecol Neonatal Nurs. 1995 Mar-Apr;24(3):249-55. Available from: PubMed; PMID 7782958
Nurss JR, el-Kebbi IM, Gallina DL, Ziemer DC, Musey VC, Lewis S, Liao Q, Phillips LS. Diabetes in urban African Americans: functional health literacy of municipal hospital outpatients with diabetes. Diabetes Educ. 1997 Sep-Oct;23(5):563-8. Available from: PubMed; PMID 9355373
Piette JD, Schillinger D, Potter MB, Heisler M. Dimensions of patient-provider communication and diabetes self-care in an ethnically diverse population. J Gen Intern Med. 2003 Aug;18(8):624-33. Available from: PubMed; PMID 12911644
Rickert VI, Berenson AB, Williamson AJ, Wiemann CM. Immediate recall of oral contraceptive instructions: implications for providers. Am J Obstet Gynecol. 1999 Jun;180(6 Pt 1):1399-406. Available from: PubMed; PMID 10368477
Schaafsma ES, Raynor TD, de Jong-van den Berg LT. Accessing medication information by ethnic minorities: barriers and possible solutions. Pharm World Sci. 2003 Oct;25(5):185-90. Available from: PubMed; PMID 14584223
Sensky T. Eliciting lay beliefs across cultures: principles and methodology. Br J Cancer Suppl. 1996 Sep;29:S63-5. Available from: PubMed; PMID 8782802
Sharp LK, Zurawski JM, Roland PY, O'Toole C, Hines J. Health literacy, cervical cancer risk factors, and distress in low-income African-American women seeking colposcopy. Ethn Dis. 2002 Fall;12(4):541-6. Available from: PubMed; PMID 12477141
Shire N. Effects of race, ethnicity, gender, culture, literacy, and social marketing on public health. J Gend Specif Med. 2002 Mar-Apr;5(2):48-54. Available from: PubMed; PMID 11974675
Wilson FL, Racine E, Tekieli V, Williams B. Literacy, readability and cultural barriers: critical factors to consider when educating older African Americans about anticoagulation therapy. J Clin Nurs. 2003 Mar;12(2):275-82. Available from: PubMed; PMID 12603561
Wolff M, Bates T, Beck B, Young S, Ahmed SM, Maurana C. Cancer prevention in underserved African American communities: barriers and effective strategies--a review of the literature. WMJ. 2003;102(5):36-40. Available from: PubMed; PMID 14621929
Zarcadoolas C, Blanco M, Boyer JF, Pleasant A. Unweaving the Web: an exploratory study of low-literate adults' navigation skills on the World Wide Web. J Health Commun. 2002 Jul-Sep;7(4):309-24. Available from: PubMed; PMID 12356289
DECISION-MAKING
Agich GJ. Can the patient make treatment decisions? Evaluating decisional capacity. Cleve Clin J Med. 1997 Oct;64(9):461-4. Available from: PubMed; PMID 9339043
Anderson B, Hall B. Parents' perceptions of decision making for children. J Law Med Ethics. 1995 Spring;23(1):15-9. Available from: PubMed; PMID 7627297
Armstrong K, Popik S, Guerra C, Ubel PA. Beliefs about breast cancer risk and use of postmenopausal hormone replacement therapy. Med Decis Making. 2000 Jul-Sep;20(3):308-13. Available from: PubMed; PMID 10929853
Arora NK, McHorney CA. Patient preferences for medical decision making: who really wants to participate? Med Care. 2000 Mar;38(3):335-41. Available from: PubMed; PMID 10718358
Artnak KE. Informed consent in the elderly: assessing decisional capacity. Semin Perioper Nurs. 1997 Jan;6(1):59-64. Available from: PubMed; PMID 9087123
Braddock CH 3rd, Edwards KA, Hasenberg NM, Laidley TL, Levinson W. Informed decision making in outpatient practice: time to get back to basics. JAMA. 1999 Dec 22-29;282(24):2313-20. Comment in: JAMA. 1999 Dec 22-29;282(24):2356-7; JAMA. 2000 May 10;283(18):2390-1; author reply 2391-2; JAMA. 2000 May 10;283(18):2390; author reply 2391-2; JAMA. 2000 May 10;283(18):2390; author reply 2391-2; JAMA. 2000 May 10;283(18):2391; author reply 2391-2. Available from: PubMed; PMID 10612318
Davis TC, Berkel HJ, Arnold CL, Nandy I, Jackson RH, Murphy PW. Intervention to increase mammography utilization in a public hospital. J Gen Intern Med. 1998 Apr;13(4):230-3. Available from: PubMed; PMID 9565385
DePalma A. Prostate Cancer Shared Decision: a CD-ROM educational and decision-assisting tool for men with prostate cancer. Semin Urol Oncol. 2000 Aug;18(3):178-81. Available from: PubMed; PMID 10975488
Dybdal L, Sondag KA. Developing decision-making skills through the use of critical incidents. J Health Educ. 2000 Mar-Apr;31(2):115-7.
Elwyn G, Edwards A, Mowle S, Wensing M, Wilkinson C, Kinnersley P, Grol R. Measuring the involvement of patients in shared decision-making: a systematic review of instruments. Patient Educ Couns. 2001 Apr;43(1):5-22. Available from: PubMed; PMID 11311834
Evensen S. Teaching the standards: decision making skills enhance student health [Internet]. Honolulu (HI): Pacific Resources for Education and Learning; [modified 2003 Apr 8; cited 2004 Apr 30]. [about 2 p.]. Available from: http://www.prel.org/products/paced/feb03/nh_standards.htm Sonja Evensen.
Frader J. Minors and health care decisions: broadening the scope. Bioethics Forum. 1995 Winter;11(4):13-6. Available from: PubMed; PMID 11654285
Ganiats TG, Carson RT, Hamm RM, Cantor SB, Sumner W, Spann SJ, Hagen MD, Miller C. Population-based time preferences for future health outcomes. Med Decis Making. 2000 Jul-Sep;20(3):263-70. Available from: PubMed; PMID 10929848
Gattellari M, Butow PN, Tattersall MH. Sharing decisions in cancer care. Soc Sci Med. 2001 Jun;52(12):1865-78. Available from: PubMed; PMID 11352412
Hibbard JH, Peters E. Supporting informed consumer health care decisions: data presentation approaches that facilitate the user of information in choice. Ann Rev Public Health. 2003 Jan;24:413-33.
Hodne CJ, Reiter RC. Decision-making in women's health care. Clin Obstet Gynecol. 1994 Mar;37(1):162-79. Available from: PubMed; PMID 8194207
Hollen PJ. Psychometric properties of two instruments to measure quality decision making. Res Nurs Health. 1994 Apr;17(2):137-48. Available from: PubMed; PMID 8127994
Kim SP, Knight SJ, Tomori C, Colella KM, Schoor RA, Shih L, Kuzel TM, Nadler RB, Bennett CL. Health literacy and shared decision making for prostate cancer patients with low socioeconomic status. Cancer Invest. 2001;19(7):684-91. Available from: PubMed; PMID 11577809
Levin-Zamir D, Peterburg Y. Health literacy in health systems: perspectives on patient self-management in Israel. Health Promot Int. 2001 Mar;16(1):87-94. Available from: PubMed; PMID 11257858
Lipkus IM, Samsa G, Rimer BK. General performance on a numeracy scale among highly educated samples. Med Decis Making. 2001 Jan-Feb;21(1):37-44. Available from: PubMed; PMID 11206945
McQuiston C, Choi Hevel S, Clawson M. Protegiendo Nuestra Comunidad: empowerment participatory education for HIV prevention. J Transcult Nurs. 2001 Oct;12(4):275-83. Available from: PubMed; PMID 11989218
Mezey M, Mitty E, Ramsey G. Assessment of decision-making capacity. Nursing's role. J Gerontol Nurs. 1997 Mar;23(3):28-35. Available from: PubMed; PMID 9111419
O'Connor AM, Stacey D, Entwistle V, Llewellyn-Thomas H, Rovner D, Holmes-Rovner M, Tait V, Tetroe J, Fiset V, Barry M, Jones J. Decision aids for people facing health treatment or screening decisions. Cochrane Database Syst Rev. 2004;(1):CD001431.
O'Dell KJ, Volk RJ, Cass AR, Spann SJ. Screening for prostate cancer with the prostate-specific antigen test: are patients making informed decisions? J Fam Pract. 1999 Sep;48(9):682-8. Comment in: J Fam Pract. 1999 Sep;48(9):679-81. Available from: PubMed; PMID 10498074
Schwitzer G. A review of features of Internet consumer health decision-support tools. J Med Internet Res. 2002 Apr-Nov;4(2):E11. Available from: PubMed; PMID 12554558
Tones K. Health literacy: new wine in old bottles? Health Educ Res. 2002 Jun;17(3):287-90. Available from: PubMed; PMID 12120844
Towle A, Godolphin W. Framework for teaching and learning informed shared decision making. BMJ. 1999 Sep 18;319(7212):766-71. Comment in: BMJ. 1999 Sep 18;319(7212):719-20; BMJ. 1999 Sep 18;319(7212):770; BMJ. 1999 Sep 18;319(7212):770-1. Available from: PubMed; PMID 10488010
Woloshin S, Schwartz LM, Moncur M, Gabriel S, Tosteson AN. Assessing values for health: numeracy matters. Med Decis Making. 2001 Sep-Oct;21(5):382-90. Available from: PubMed; PMID 11575488
ECONOMIC AND OTHER ACCESS BARRIERS
Address low literacy issues to improve Medicaid risk member compliance, reduce costs. Public Sect Contract Rep. 1998 Feb;4(2):27-30. Available from: PubMed; PMID 10177570
Baker DW, Gazmararian JA, Williams MV, Scott T, Parker RM, Green D, Ren J, Peel J. Functional health literacy and the risk of hospital admission among Medicare managed care enrollees. Am J Public Health. 2002 Aug;92(8):1278-83. Available from: PubMed; PMID 12144984
Bennett CL, Ferreira MR, Davis TC, Kaplan J, Weinberger M, Kuzel T, Seday MA, Sartor O. Relation between literacy, race, and stage of presentation among low-income patients with prostate cancer. J Clin Oncol. 1998 Sep;16(9):3101-4. Available from: PubMed; PMID 9738581
Berry LL, Seiders K, Wilder SS. Innovations in access to care: a patient-centered approach. Ann Intern Med. 2003 Oct 7;139(7):568-74. Available from: PubMed; PMID 14530228
Facione NC. Breast cancer screening in relation to access to health services. Oncol Nurs Forum. 1999 May;26(4):689-96. Available from: PubMed; PMID 10337647
Gazmararian JA, Parker RM, Baker DW. Reading skills and family planning knowledge and practices in a low-income managed-care population. Obstet Gynecol. 1999 Feb;93(2):239-44. Available from: PubMed; PMID 9932563
Health literacy [Internet]. Reston (VA): Gerotech; c2002 [updated 2002 Jun 12; cited 2004 Apr 23]. [about 2 screens]. Available from: http://www.gerotech.com/literacy.html
Latino health, 2003 [Internet]. Durham (NC): North Carolina Institute of Medicine; 2003 [cited 2004 Apr 30]. Chapter 8, The challenge of health promotion & health literacy in North Carolina's Latino population; p. 117-24. Available from: http://www.nciom.org/projects/latino/latinopub/C8.pdf
Lee SY, Arozullah AM, Cho YI. Health literacy, social support, and health: a research agenda. Soc Sci Med. 2004 Apr;58(7):1309-21. Available from: PubMed; PMID 14759678
Maquire P. Health literacy: a hidden barrier for one-third of U.S. population [Internet]. Philadelphia (PA): American College of Physicians; c1999 [cited 2007 Jan]. [about 3 screens]. Available from: http://www.acponline.org/journals/news/jun99/literacy.htm
McElmurry BJ, Meehan M, Busch AG. Literacy for health: improving health literacy in the inner city. In: McElmurry BJ, Tyska C, Parker RS, editors. Primary health care in urban communities. Sudbury (MA): Jones and Bartlett Pub.; 1999. p. 127-40.
Parker RM, Ratzan SC, Lurie N. Health literacy: a policy challenge for advancing high-quality health care. Health Aff (Millwood). 2003 Jul-Aug;22(4):147-53. Available from: PubMed; PMID 12889762
Schillinger D, Chen AH. Literacy and language: disentangling measures of access, utilization, and quality. J Gen Intern Med. 2004 Mar;19(3):288-90. Available from: PubMed; PMID 15009787
Scott TL, Gazmararian JA, Williams MV, Baker DW. Health literacy and preventive health care use among Medicare enrollees in a managed care organization. Med Care. 2002 May;40(5):395-404. Available from: PubMed; PMID 11961474
Weiss BD, Reed RL, Kligman EW. Literacy skills and communication methods of low-income older persons. Patient Educ Couns. 1995 May;25(2):109-19. Available from: PubMed; PMID 7659623
INFORMED CONSENT
Appelbaum PS, Grisso T. Capacities of hospitalized, medically ill patients to consent to treatment. Psychosomatics. 1997 Mar-Apr;38(2):119-25. Available from: PubMed; PMID 9063042
Baird JF, Kiyak HA. The uninformed orthodontic patient and parent: treatment outcomes. Am J Orthod Dentofacial Orthop. 2003 Aug;124(2):212-5. Available from: PubMed; PMID 12923519
Barnes DM, Davis AJ, Moran T, Portillo CJ, Koenig BA. Informed consent in a multicultural cancer patient population: implications for nursing practice. Nurs Ethics. 1998 Sep;5(5):412-23. Available from: PubMed; PMID 9782926
Betancourt JR, Jacobs EA. Language barriers to informed consent and confidentiality: the impact on women's health. J Am Med Womens Assoc. 2000 Fall;55(5):294-5. Available from: PubMed; PMID 11070650
Braunack-Mayer A, Hersh D. An ethical voice in the silence of aphasia: judging understanding and consent in people with aphasia. J Clin Ethics. 2001 Winter;12(4):388-96. Available from: PubMed; PMID 12026745
Briguglio J, Cardella JF, Fox PS, Hopper KD, TenHave TR. Development of a model angiography informed consent form based on a multiinstitutional survey of current forms. J Vasc Interv Radiol. 1995 Nov-Dec;6(6):971-8. Available from: PubMed; PMID 8850679
Davis TC, Holcombe RF, Berkel HJ, Pramanik S, Divers SG. Informed consent for clinical trials: a comparative study of standard versus simplified forms. J Natl Cancer Inst. 1998 May 6;90(9):668-74. Comment in: J Natl Cancer Inst. 1998 May 6;90(9):644-5. Available from: PubMed; PMID 9586663
English DC. Valid informed consent: a process, not a signature. Am Surg. 2002 Jan;68(1):45-8. Available from: PubMed; PMID 12467316
For researchers and administrators: informed consent bibliography [Internet]. Washington (DC): Department of Veterans Affairs (US), VA Research Development; [updated 2004 Mar 15; cited 2004 Apr 30]. Available from: http://www.va.gov/resdev/fr/informed_consent/bibliography_notes.cfm
Fuller R, Dudley N, Blacktop J. How informed is consent? Understanding of pictorial and verbal probability information by medical inpatients. Postgrad Med J. 2002 Sep;78(923):543-4. Available from: PubMed; PMID 12357016
Goldstein AO, Frasier P, Curtis P, Reid A, Kreher NE. Consent form readability in university-sponsored research. J Fam Pract. 1996 Jun;42(6):606-11. Available from: PubMed; PMID 8656172
Gribble JN. Informed consent documents for BRCA1 and BRCA2 screening: how large is the readability gap? Patient Educ Couns. 1999 Nov;38(3):175-83. Available from: PubMed; PMID 10865683
Handelsman MM, Martinez A, Geisendorfer S, Jordan L, Wagner L, Daniel P, Davis S. Does legally mandated consent to psychotherapy ensure ethical appropriateness?: the Colorado experience. Ethics Behav. 1995;5(2):119-29. Available from: PubMed; PMID 11654196
Hochhauser M. Informed consent and patient's rights documents: a right, a rite, or a rewrite? Ethics Behav. 1999;9(1):1-20. Available from: PubMed; PMID 11657485
Hopper KD, TenHave TR, Hartzel J. Informed consent forms for clinical and research imaging procedures: how much do patients understand? AJR Am J Roentgenol. 1995 Feb;164(2):493-6. Available from: PubMed; PMID 7839996
Krause EM. An overview of medical and public health literature addressing literacy and informed consent for research participation: an annotated bibliography of articles published between January 2000 and May 2001. Boston (MA): Harvard School of Public Health, Department of Society, Human Development and health. Available from: http://www.hsph.harvard.edu/healthliteracy/literature/lit_informed.html
Kuczewski MG, Marshall P. The decision dynamics of clinical research: the context and process of informed consent. Med Care. 2002 Sep;40(9 Suppl):V45-54. Available from: PubMed; PMID 12226585
Mader TJ, Playe SJ. Emergency medicine research consent form readability assessment. Ann Emerg Med. 1997 Apr;29(4):534-9. Available from: PubMed; PMID 9095017
Mayberry MK, Mayberry JF. Towards better informed consent in endoscopy: a study of information and consent processes in gastroscopy and flexible sigmoidoscopy. Eur J Gastroenterol Hepatol. 2001 Dec;13(12):1467-76. Available from: PubMed; PMID 11742195
Meade CD. Improving understanding of the informed consent process and document. Semin Oncol Nurs. 1999 May;15(2):124-37. Available from: PubMed; PMID 10222512
Paasche-Orlow MK, Taylor HA, Brancati FL. Readability standards for informed-consent forms as compared with actual readability. N Engl J Med. 2003 Feb 20;348(8):721-6. Comment in: N Engl J Med. 2003 May 29;348(22):2262-3; author reply 2262-3; N Engl J Med. 2003 May 29;348(22):2262-3; author reply 2262-3. Available from: PubMed; PMID 12594317
Philipson SJ, Doyle MA, Gabram SG, Nightingale C, Philipson EH. Informed consent for research: a study to evaluate readability and processability to effect change. J Investig Med. 1995 Oct;43(5):459-67. Available from: PubMed; PMID 8528757
Raich PC, Plomer KD, Coyne CA. Literacy, comprehension, and informed consent in clinical research. Cancer Invest. 2001;19(4):437-45. Available from: PubMed; PMID 11405182
Rudd RE, Colton T, Schach R. An overview of medical and public health literature addressing literacy issues: an annotated bibliography [Internet]. Boston (MA): Harvard School of Public Health, Department of Society, Human Development and Health; 2000 Jan [cited 2004 Apr 23]. 62 p. Available from: http://www.hsph.harvard.edu/healthliteracy/litreview.pdf
Scales L. Informed consent and consent forms: what is the difference? [Internet]. Atlanta (GA): Emory University, The Center for Science Education; 1998 [cited 2004 Apr 30]. [about 2 screens]. Available from: http://www.sciencenet.emory.edu/undergrad/SURE/Articles/1998_art_scales.html
Simplification of informed consent documents: bibliography [Internet]. Bethesda (MD): National Cancer Institute (US); 1999 Dec 30 [updated: 2004 Mar 5; cited 2004 Apr 30]. [about 3 screens]. Available from: http://www.nci.nih.gov/clinicaltrials/understanding/simplification-of-informed-consent-docs/page6
Taylor HA. Barriers to informed consent. Semin Oncol Nurs. 1999 May;15(2):89-95. Available from: PubMed; PMID 10222508
INTERNET, E-HEALTH, AND INFORMATICS
Ball MJ, Lillis J. E-health: transforming the physician/patient relationship. Int J Med Inf. 2001 Apr;61(1):1-10. Available from: PubMed; PMID 11248599
Berland GK, Elliott MN, Morales LS, Algazy JI, Kravitz RL, Broder MS, Kanouse DE, Munoz JA, Puyol JA, Lara M, Watkins KE, Yang H, McGlynn EA. Health information on the Internet: accessibility, quality, and readability in English and Spanish. JAMA. 2001 May 23-30;285(20):2612-21. Comment in: JAMA. 2001 Nov 7;286(17):2092-3; author reply 2094-5; JAMA. 2001 Nov 7;286(17):2093-4; author reply 2094-5; JAMA. 2001 Nov 7;286(17):2093; author reply 2094-5; JAMA. 2001 Nov 7;286(17):2094-5. Available from: PubMed; PMID 11368735
Brennan PF. Health informatics and community health: support for patients as collaborators in care. Methods Inf Med. 1999 Dec;38(4-5):274-8. Available from: PubMed; PMID 10805012
Cline RJ, Haynes KM. Consumer health information seeking on the Internet: the state of the art. Health Educ Res. 2001 Dec;16(6):671-92. Available from: PubMed; PMID 11780707
Commission of the European Communities. eEurope 2002: quality criteria for health related Websites. J Med Internet Res. 2002 Dec;4(3):E15. Available from: PubMed; PMID 12554546
Edgar L, Greenberg A, Remmer J. Providing internet lessons to oncology patients and family members: a shared project. Psychooncology. 2002 Sep-Oct;11(5):439-46. Available from: PubMed; PMID 12228877
Eysenbach G, Diepgen TL. The role of e-health and consumer health informatics for evidence-based patient choice in the 21st century. Clin Dermatol. 2001 Jan-Feb;19(1):11-7. Available from: PubMed; PMID 11369478
Fogel J. Internet use for cancer information among racial/ethnic populations and low literacy groups. Cancer Control. 2003 Sep-Oct;10(5 Suppl):45-51. Available from: PubMed; PMID 14581904
Gimenez-Perez G, Gallach M, Acera E, Prieto A, Carro O, Ortega E, Gonzalez-Clemente JM, Mauricio D. Evaluation of accessibility and use of new communication technologies in patients with type 1 diabetes mellitus. J Med Internet Res. 2002 Dec;4(3):E16. Available from: PubMed; PMID 12554547
Hahn EA, Cella D, Dobrez D, Shiomoto G, Marcus E, Taylor SG, Vohra M, Chang CH, Wright BD, Linacre JM, Weiss BD, Valenzuela V, Chiang HL, Webster K. The talking touchscreen: a new approach to outcomes assessment in low literacy. Psychooncology. 2004 Feb;13(2):86-95. Available from: PubMed; PMID 14872527
Hardey M. 'E-health': the Internet and the transformation of patients into consumers and producers of health knowledge. Inf Commun Soc. 2001;4(3):388-405.
Kreps GL. Evaluating new health information technologies: expanding the frontiers of health care delivery and health promotion. Stud Health Technol Inform. 2002;80:205-12. Available from: PubMed; PMID 12026130
LaFlamme DJ. Online health information-seeking, health locus of control and health literacy among low-income internet users in east Baltimore [dissertation]. Baltimore (MD): Johns Hopkins Bloomberg School of Public Health; 2003.
Licciardone JC, Smith-Barbaro P, Coleridge ST. Use of the internet as a resource for consumer health information: results of the second osteopathic survey of health care in America (OSTEOSURV-II). J Med Internet Res. 2001 Oct-Dec;3(4):E31. Available from: PubMed; PMID 11772546
Randolfi EA. Teaching online consumer health skills. Int Electron J Health Educ. 1998 Oct 1;1(4):201-6.
Sagaram S, Walji M, Bernstam E. Evaluating the prevalence, content and readability of complementary and alternative medicine (CAM) web pages on the internet. Proc AMIA Symp. 2002:672-6. Available from: PubMed; PMID 12463909
Singh S, Gedeon TD, Rho Y. Enhancing comprehension of Web information for users with special linguistic needs. J Commun. 1998 Spring;48(2):86-108.
Sorensen AA. Promoting public health through electronic media: a challenge for schools of public health. Am J Public Health. 2001 Aug;91(8):1183-5. Available from: PubMed; PMID 11499098
Thobaben M. Technology and informatics. Accessibility, quality, and readability of health information on the internet: implication for home health care professionals. Home Health Care Manage Pract. 2002 Jun;14(4):295-6.
Wathen CN, Burkell J. Believe it or not: Factors influencing credibility on the web. J Am Soc Inf Sci Technol. 2002 Jan 15;53(2):134-44.
LANGUAGE AND OTHER COMMUNICATION BARRIERS
Alibhai SM, Han RK, Naglie G. Medication education of acutely hospitalized older patients. J Gen Intern Med. 1999 Oct;14(10):610-6. Available from: PubMed; PMID 10571706
Barnett S. Cross-cultural communication with patients who use American Sign Language. Fam Med. 2002 May;34(5):376-82. Available from: PubMed; PMID 12038720
David RA, Rhee M. The impact of language as a barrier to effective health care in an underserved urban Hispanic community. Mt Sinai J Med. 1998 Oct-Nov;65(5-6):393-7. Available from: PubMed; PMID 9844369
Davis TC, Williams MV, Marin E, Parker RM, Glass J. Health literacy and cancer communication. CA Cancer J Clin. 2002 May-Jun;52(3):134-49. Comment in: CA Cancer J Clin. 2002 May-Jun;52(3):130-3. Available from: PubMed; PMID 12018928
Dickerson SS, Stone VI, Panchura C, Usiak DJ. The meaning of communication: experiences with augmentative communication devices. Rehabil Nurs. 2002 Nov-Dec;27(6):215-20. Available from: PubMed; PMID 12432668
Dreger V, Tremback T. Optimize patient health by treating literacy and language barriers. AORN J. 2002 Feb;75(2):278, 280-5, 287, 289-93; quiz 297-300, 303-4. Available from: PubMed; PMID 11855224
Dwyer J. Babel, justice, and democracy: reflections on a shortage of interpreters at a public hospital. Hastings Cent Rep. 2001 Mar-Apr;31(2):31-6. Available from: PubMed; PMID 11478107
Elder JP, Candelaria JI, Woodruff SI, Criqui MH, Talavera GA, Rupp JW. Results of language for health: cardiovascular disease nutrition education for Latino English-as-a-second-language students. Health Educ Behav. 2000 Feb;27(1):50-63. Available from: PubMed; PMID 10709792
Enslein J, Tripp-Reimer T, Kelley LS, Choi E, McCarty L. Evidence-based protocol. Interpreter facilitation for persons with limited English proficiency. Iowa City (IA): University of Iowa, Gerontological Nursing Interventions Research Center, Research Dissemination Core; 2001 Apr. 32 p.
Gates R. Challenging health literacy as a language ideology: implications for African Americans. Gerontologist. 2003 Oct 1;43 Spec Issue:411.
Gerrish K. The nature and effect of communication difficulties arising from interactions between district nurses and South Asian patients and their carers. J Adv Nurs. 2001 Mar;33(5):566-74. Available from: PubMed; PMID 11298192
Hayes RP, Baker DW. Methodological problems in comparing English-speaking and Spanish-speaking patients' satisfaction with interpersonal aspects of care. Med Care. 1998 Feb;36(2):230-6. Available from: PubMed; PMID 9475476
Heaney C, Moreham S. Use of interpreter services in a metropolitan healthcare system. Aust Health Rev. 2002;25(3):38-45. Available from: PubMed; PMID 12136563
Herson L, Hart KA, Gordon MJ, Rintala DH. Identifying and overcoming barriers to providing sexuality information in the clinical setting. Rehabil Nurs. 1999 Jul-Aug;24(4):148-51. Available from: PubMed; PMID 10754902
Hochman F. Health care of the deaf--toward a new understanding. J Am Board Fam Pract. 2000 Jan-Feb;13(1):81-3. Comment on: J Am Board Fam Pract. 2000 Jan-Feb;13(1):17-22. Available from: PubMed; PMID 10682891
Kaufert JM, Putsch RW. Communication through interpreters in healthcare: ethical dilemmas arising from differences in class, culture, language, and power. J Clin Ethics. 1997 Spring;8(1):71-87. Comment in: J Clin Ethics. 1997 Spring;8(1):88-93. Available from: PubMed; PMID 9130112
Keeping LM, English LM. Informal and incidental learning with patients who use continuous ambulatory peritoneal dialysis. Nephrol Nurs J. 2001 Jun;28(3):313-4, 319-22; discussion 323. Available from: PubMed; PMID 12143453
Low literacy levels can limit effectiveness of DM programs. Dis Manag Advis. 2003 May;9(5):65-9. Available from: PubMed; PMID 12825392
Matson SC, Haglund KA. Relationship between scholastic and health behaviors and reading level in adolescent females. Clin Pediatr (Phila). 2000 May;39(5):275-80. Available from: PubMed; PMID 10826074
Ralston E, Zazove P, Gorenflo DW. Physicians' attitudes and beliefs about deaf patients. J Am Board Fam Pract. 1996 May-Jun;9(3):167-73. Comment in: J Am Board Fam Pract. 1996 Sep-Oct;9(5):392. Available from: PubMed; PMID 8743229
Read the Label. English as a second language initiative. Teacher's guide. New York (NY): Council on Family Health; 1997. 50 p. (ERIC document; no. ED411705).
Sadler GR, Huang JT, Padden CA, Elion L, Galey TA, Gunsauls DC, Brauer B. Bringing health care information to the deaf community. J Cancer Educ. 2001 Summer;16(2):105-8. Available from: PubMed; PMID 11440061
Singleton K. Health literacy: recognizing its importance in ESL Instruction. NCLEnotes [Internet]. 2002 Summer;11(1):1, 3. Available from: http://www.cal.org/ncle/Nnotes111.pdf
Snow CE. The theoretical basis for relationships between language and development. J Res Child Educ. 1991;6(1):10.
Spencer LJ, Barker BA, Tomblin JB. Exploring the language and literacy outcomes of pediatric cochlear implant users. Ear Hear. 2003 Jun;24(3):236-47. Available from: PubMed; PMID 12799546
Steinberg AG, Wiggins EA, Barmada CH, Sullivan VJ. Deaf women: experiences and perceptions of healthcare system access. J Womens Health (Larchmt). 2002 Oct;11(8):729-41. Available from: PubMed; PMID 12570039
Timmins CL. The impact of language barriers on the health care of Latinos in the United States: a review of the literature and guidelines for practice. J Midwifery Womens Health. 2002 Mar-Apr;47(2):80-96. Available from: PubMed; PMID 12019990
Tuffrey-Wijne I. The palliative care needs of people with intellectual disabilities: a literature review. Palliat Med. 2003 Jan;17(1):55-62. Available from: PubMed; PMID 12597467
Virnig BA, Morgan RO. Assessing capacity for clinical decisions and research for persons with low English proficiency: ethical and practical challenges. HEC Forum. 2002 Sep;14(3):235-40. Available from: PubMed; PMID 12405043
Welner SL. Screening issues in gynecologic malignancies for women with disabilities: critical considerations. J Womens Health. 1998 Apr;7(3):281-5. Available from: PubMed; PMID 9580906
What we do [Internet]. Wivenhoe (Colchester, UK): Deaf Women Against Breast Cancer; c1998-2001 [updated 2001 Jan 16; cited 2004 Apr 22]. [about 3 screens]. Available from: http://dspace.dial.pipex.com/town/parade/ni30/dwabc/interest.htm
Wiley T. Measuring the nation's literacy: important considerations. ERIC Digest [Internet]. 1991 Jul [modified 2003 May 16; cited 2004 Apr 30]:[about 5 screens]. Available from: http://www.ericfacility.net/ericdigests/ed334870.html
Witte TN, Kuzel AJ. Elderly deaf patients' health care experiences. J Am Board Fam Pract. 2000 Jan-Feb;13(1):17-22. Comment in: J Am Board Fam Pract. 2000 Jan-Feb;13(1):81-3. Available from: PubMed; PMID 10682881
MATERIALS DEVELOPMENT AND STRATEGIES
Albright CL, Bruce B, Howardpitney B, Winkleby MA, Fortmann SP. Development of a curriculum to lower dietary fat intake in a multiethnic population with low literacy skills. J Nutr Educ. 1997 Jul-Aug;29(4):215-23.
Alexander K. Product alert. A selected list of Spanish language and low literacy patient education web sites. J Pediatr Health Care. 2002 May-Jun;16(3):151-5.
Alexander RE. Readability of published dental educational materials. J Am Dent Assoc. 2000 Jul;131(7):937-42. Available from: PubMed; PMID 10916332
Arnold CL, Davis TC, Berkel HJ, Jackson RH, Nandy I, London S. Smoking status, reading level, and knowledge of tobacco effects among low-income pregnant women. Prev Med. 2001 Apr;32(4):313-20. Available from: PubMed; PMID 11304092
Arthur VA. Written patient information: a review of the literature. J Adv Nurs. 1995 Jun;21(6):1081-6. Available from: PubMed; PMID 7665771
Aruffo S, Gardner C. Patient education. The importance of patient education materials. Case Manager. 2000 Mar-Apr;11(2):58-63. Available from: PubMed; PMID 11935526
Assessing the readability of your patient education materials. There's more to it than simply applying a formula. Health Care Food Nutr Focus. 1997 Oct;14(2):6-8. Available from: PubMed; PMID 10175261
Atkinson PM, Parks DK, Cooley SM, Sarkis SL. Reach Out and Read: a pediatric clinic-based approach to early literacy promotion. J Pediatr Health Care. 2002 Jan-Feb;16(1):10-5. Available from: PubMed; PMID 11802115
Baker DW, Williams MV, Parker RM, Gazmararian JA, Nurss J. Development of a brief test to measure functional health literacy. Patient Educ Couns. 1999 Sep;38(1):33-42. Available from: PubMed; PMID 14528569
Bass PF, Wilson JF, Griffith CH. A shortened instrument for literacy screening. J Gen Intern Med. 2003 Dec;18(12):1036-8. Available from: PubMed; PMID 14687263
Be informed: questions to ask your doctor before you have surgery [Internet]. Rockville (MD): Agency for Health Care Policy and Research (US); 1995 Jan [modified 2002 Sep 17; cited 2004 Apr 22]. [about 7 p.]. (AHCPR publication; no. 95-0027). Available from: http://www.ahrq.gov/consumer/surgery/surgery.htm
Being an informed patient: how to be a well-educated patient [Internet]. Chicago (IL): Mount Sinai Hospital; 2003 Jan 30 [cited 2004 Apr 30]. Available from: http://www.sinai.org/publications/sni_03130105513.pdf
Bennett IM, Robbins S, Al-Shamali N, Haecker T. Screening for low literacy among adult caregivers of pediatric patients. Fam Med. 2003 Sep;35(8):585-90. Available from: PubMed; PMID 12947522
Bernhardt BA, Chase GA, Faden RR, Geller G, Hofman KJ, Tambor ES, Holtzman NA. Educating patients about cystic fibrosis carrier screening in a primary care setting. Arch Fam Med. 1996 Jun;5(6):336-40. Available from: PubMed; PMID 8640323
Beyond the brochure: alternative approaches to health communication [Internet]. Denver (CO): AMC Cancer Research Center; 1994 [cited 2004 Apr 23]. 80 p. Available from: http://www.cdc.gov/cancer/nbccedp/bccpdfs/amcbeyon.pdf
Blalock SJ, Currey SS, DeVellis RF, DeVellis BM, Giorgino KB, Anderson JJ, Dooley MA, Gold DT. Effects of educational materials concerning osteoporosis on women's knowledge, beliefs, and behavior. Am J Health Promot. 2000 Jan-Feb;14(3):161-9. Available from: PubMed; PMID 10787768
Blalock SJ, DeVellis BM, Patterson CC, Campbell MK, Orenstein DR, Dooley MA. Effects of an osteoporosis prevention program incorporating tailored educational materials. Am J Health Promot. 2002 Jan-Feb;16(3):146-56. Available from: PubMed; PMID 11802260
Botvin GJ. Preventing drug abuse in schools: social and competence enhancement approaches targeting individual-level etiologic factors. Addict Behav. 2000 Nov-Dec;25(6):887-97. Available from: PubMed; PMID 11125777
Brock TP, Williams DM, Beauchesne MF. Assessment of the readability and comprehensibility of a CFC-transition brochure. Ann Allergy Asthma Immunol. 2000 Feb;84(2):211-4. Available from: PubMed; PMID 10719779
Brunt AR, Schafer E. Gem no 271. Helping consumers with low literacy interpret the new food label. J Nutr Educ. 1997 Jul-Aug;29(4):224-5.
Calabro K , Taylor WC, Kapadia A. Pregnancy, alcohol use and the effectiveness of written health education materials. Patient Educ Couns. 1996 Dec;29(3):301-9. Available from: PubMed; PMID 9006245
Chelf JH, Agre P, Axelrod A, Cheney L, Cole DD, Conrad K, Hooper S, Liu I, Mercurio A, Stepan K, Villejo L, Weaver C. Cancer-related patient education: an overview of the last decade of evaluation and research. Oncol Nurs Forum. 2001 Aug;28(7):1139-47. Available from: PubMed; PMID 11517847
Ciampa C. Tobacco education in low-literacy individuals. Indiana Med. 1996 Mar-Apr;89(2):188-92. Available from: PubMed; PMID 8867421
Coleman EA, Coon S, Mohrmann C, Hardin S, Stewart B, Gibson RS, Cantrell M, Lord J, Heard J. Developing and testing lay literature about breast cancer screening for African American women. Clin J Oncol Nurs. 2003 Jan-Feb;7(1):66-71, 65. Available from: PubMed; PMID 12629937
Cooley ME, Moriarty H, Berger MS, Selm-Orr D, Coyle B, Short T. Patient literacy and the readability of written cancer educational materials. Oncol Nurs Forum. 1995 Oct;22(9):1345-51. Comment in: Oncol Nurs Forum. 1996 Apr;23(3):421. Available from: PubMed; PMID 8539175
Corrarino JE, Freda MC, Barbara M. Development of a health education booklet for pregnant women with low literacy skills. J Perinat Educ. 1995;4(3):23-8.
Cotugna N, Vickery CE. Health literacy education and training: a student-professional collaboration. J Am Diet Assoc. 2003 Jul;103(7):878-80. Available from: PubMed; PMID 12830028
Davey HM, Butow PN, Armstrong BK. Cancer patients' preferences for written prognostic information provided outside the clinical context. Br J Cancer. 2003 Oct 20;89(8):1450-6. Available from: PubMed; PMID 14562016
Davis TC, Williams MV, Branch WT, Green KW. Explaining illness to patients with limited literacy. In: Whaley BB, et al. editors. Explaining illness: research, theory, and strategies. Mahwah (NJ): Lawrence Erlbaum Associates, Inc.; 2000. p. 123-46.
Delp C, Jones J. Communicating information to patients: the use of cartoon illustrations to improve comprehension of instructions. Acad Emerg Med. 1996 Mar;3(3):264-70. Comment in: Acad Emerg Med. 1996 Mar;3(3):200-1. Available from: PubMed; PMID 8673784
Doak CC, Doak LG, Friedell GH, Meade CD. Improving comprehension for cancer patients with low literacy skills: strategies for clinicians. CA Cancer J Clin. 1998 May-Jun;48(3):151-62. Available from: PubMed; PMID 9594918
Duffy MM, Snyder K. Can ED patients read your patient education materials? J Emerg Nurs. 1999 Aug;25(4):294-7. Available from: PubMed; PMID 10424958
Earp JA, Flax VL. What lay health advisors do: An evaluation of advisors' activities. Cancer Pract. 1999 Jan-Feb;7(1):16-21. Available from: PubMed; PMID 9892999
Eberly S. Reading comprehension and e-health information. Iowa City (IA): The University of Iowa, Center for Disabilities and Development. 2000 Mar.
Echeverry DM, Dike MR, Washington C, Davidson MB. The impact of using a low-literacy patient education tool on process measures of diabetes care in a minority population. J Natl Med Assoc. 2003 Nov;95(11):1074-81. Available from: PubMed; PMID 14651374
Elkind PD, Pitts K, Ybarra SL. Theater as a mechanism for increasing farm health and safety knowledge. Am J Ind Med. 2002 Aug;Suppl 2:28-35. Available from: PubMed; PMID 12210679
Endres J, Montgomery J, Welch P. Lead poison prevention: a comparative review of brochures. J Environ Health. 2002 Jan-Feb;64(6):20-5; quiz 35-6. Available from: PubMed; PMID 11826622
Ethier AK. Education essentials. Developing education materials for families. J Pediatr Oncol Nurs. 1996 Jul;13(3):146-9. Available from: PubMed; PMID 8755443
Feldman M, Stanford R, Catcheside A, Stotter A. The use of a prognostic table to aid decision making on adjuvant therapy for women with early breast cancer. Eur J Surg Oncol. 2002 Sep;28(6):615-9. Available from: PubMed; PMID 12359196
Finan N. Visual literacy in images used for medical education and health promotion. J Audiov Media Med. 2002 Mar;25(1):16-23. Available from: PubMed; PMID 12025486
Freda MC, Damus K, Merkatz IR. Evaluation of the readability of ACOG patient education pamphlets. The American College of Obstetricians and Gynecologists. Obstet Gynecol. 1999 May;93(5 Pt 1):771-4. Available from: PubMed; PMID 10912984
French KS, Larrabee JH. Relationships among educational material readability, client literacy, perceived beneficence, and perceived quality. J Nurs Care Qual. 1999 Aug;13(6):68-82. Available from: PubMed; PMID 10476626
Geiger BF, Petri CJ, Myers O, Lan J, Binkley D, Aldige CR, Berdebes J. Using technology to teach health: a collaborative pilot project in Alabama. J Sch Health. 2002 Dec;72(10):401-7. Available from: PubMed; PMID 12617026
Glascoe FP. Safety words inventory and literacy screener: standardization and validation. Clin Pediatr. 2002 Nov-Dec;41(9):697-704. Available from: PubMed; PMID 12462320
Goldberg JH, Probart CK, Zak RE. Visual search of food nutrition labels. Hum Factors. 1999 Sep;41(3):425-37. Available from: PubMed; PMID 10665210
Hahn EA, Cellal D, Dobrez DG, Shiomoto G, Taylor SG, Galvez AG, Diaz P, Valenzuela V, Chiang HL, Khan S, Hudgens SA, Du H. Quality of life assessment for low literacy Latinos: a new multimedia program for self-administration. J Oncol Manag. 2003 Sep-Oct;12(5):9-12. Available from: PubMed; PMID 14619989
Haldeman L, Perez Escamilla R, Ferris AM, Drake L, Himmelgreen D, Bonello H, Gonzalez A, Segura Millan S, Mendez I, Bermudez A, Domero Daza N. Development of a color-coded bilingual food label for low-literacy Latino caretakers. J Nutr Educ. 2000 May-Jun;32(3):152-60.
Hammond D, Fong GT, Mcdonald PW, Cameron, R., Brown KS. Impact of the graphic Canadian warning labels on adult smoking behaviour. Tob Control. 2003 Dec;12(4):391-5. Available from: PubMed; PMID 14660774
Harvey HD, Fleming P. A rapid appraisal method for the selection and pre-testing of environmental health leaflets. J R Soc Health. 2000 Jun;120(2):112-6. Available from: PubMed; PMID 10944886
Hayes KS. Literacy for health information of adult patients and caregivers in a rural emergency department. Clin Excell Nurse Pract. 2000 Jan;4(1):35-40. Available from: PubMed; PMID 11858294
Health check: a health and literacy program [Internet]. Yellowknife (NT): NWT Literacy Council; [modified 2004 Apr 16; cited 2004 Apr 30]. 23 p. Available from: http://www.nwt.literacy.ca/adultlit/hlthchk/intro/intro.pdf
Health literacy: an overview and research-supported solutions [Internet]. La Habra (CA): Institute for Health Care Advancement; [modified 2004 Jan 22; cited 2004 Apr 24]. 5 p. Available from: http://www.iha4health.org/index.cfm/MenuItemID/174.htm
Health Literacy Project, phase 2. More than plain language: adapting health communication for hard-to-reach patients [Internet]. Montreal (QC): The Centre for Literacy of Quebec; c2002 [cited 2004 Apr 30]. 17 p. Available from: http://www.nald.ca/province/que/litcent/health/phase2/morethan.pdf
Health literacy: strategies for effective communication. Rootstown (OH): Northeastern Ohio Universities College of Medicine, Department of Family Medicine; 2002 Sep 11 [cited 204 Apr 22]. 2 p. Available from: http://darla.neoucom.edu/DEPTS/FamilyMed/LiteracyBrochure.pdf
Higher risk of re-admits when patient can't read. Hosp Case Manage. 2001 Feb;9(2):27-8. Available from: PubMed; PMID 11213755
Hill J, Bird H. The development and evaluation of a drug information leaflet for patients with rheumatoid arthritis. Rheumatology (Oxford). 2003 Jan;42(1):66-70. Available from: PubMed; PMID 12509615
Hochhauser M. Which prescription for the illegible and unreadable DTC (direct-to-consumer) brief summary--major surgery or euthanasia? Manag Care Q. 2002 Summer;10(3):6-10. Available from: PubMed; PMID 12476659
Holdich P. Pilot study of a novel approach to education: the Diabyte flyer. J Diabetes Nurs. 2000 Jul-Aug;4(4):116-20.
Hong O. Limited English proficiency workers. Health and safety education. AAOHN J. 2001 Jan;49(1):21-6. Available from: PubMed; PMID 11760274
Houts PS, Bachrach R, Witmer JT, Tringali CA, Bucher JA, Localio RA. Using pictographs to enhance recall of spoken medical instructions. Patient Educ Couns. 1998 Oct;35(2):83-8. Available from: PubMed; PMID 10026551
Houts PS, Witmer JT, Egeth HE, Loscalzo MJ, Zabora JR. Using pictographs to enhance recall of spoken medical instructions II. Patient Educ Couns. 2001 Jun;43(3):231-42. Available from: PubMed; PMID 11384821
Howard-Pitney B, Winkleby MA, Albright CL, Bruce B, Fortmann SP. The Stanford Nutrition Action Program: a dietary fat intervention for low-literacy adults. Am J Public Health. 1997 Dec;87(12):1971-6. Available from: PubMed; PMID 9431286
Jacobson TA, Thomas DM, Morton FJ, Offutt G, Shevlin J, Ray S. Use of a low-literacy patient education tool to enhance pneumococcal vaccination rates. A randomized controlled trial. JAMA. 1999 Aug 18;282(7):646-50. Available from: PubMed; PMID 10517717
Jazieh AR, Brown D. Development of a patient information packet for veterans with cancer receiving chemotherapy. J Cancer Educ. 1999 Summer;14(2):96-8. Available from: PubMed; PMID 10397485
Johnson A, Sandford J, Tyndall J. Written and verbal information versus verbal information only for patients being discharged from acute hospital settings to home. Cochrane Database Syst Rev. 2003;(4):CD003716. Available from: PubMed; PMID 14583990
Kaelin MA, Huebner WW. Epidemiology, health literacy, and health education. Am J Health Educ. 2002 Nov-Dec;33(6):362-4.
Keller HH, Hedley MR, Wong Brownlee S. The development of seniors in the community: risk evaluation for eating and nutrition (SCREEN). Can J Diet Pract Res. 2000 Summer;61(2):67-72. Available from: PubMed; PMID 11551350
Kimble LP, Dunbar SB, McGuire DB, De A, Fazio S, Strickland OL. Cardiac instrument development in a low-literacy population: the revised Chest Discomfort Diary. Heart Lung. 2001 Jul-Aug;30(4):312-20. Available from: PubMed; PMID 11449218
Kinnersley P, Butler CC, Prout H, Butow P, Owen D, MacBeth F. Interventions before consultations for helping patients address their information needs (Protocol). Cochrane Database Syst Rev. 2004;(1):CD004565.
Kolasa KM, Peery A, Harris NG, Shovelin K. Food Literacy Partners Program: a strategy to increase community food literacy. Top Clin Nutr. 2001 Sep;16(4):1-10, 77-9.
Koo MM, Krass I, Aslani P. Factors influencing consumer use of written drug information. Ann Pharmacother. 2003 Feb;37(2):259-67. Available from: PubMed; PMID 12549958
Krackow KA, Buyea CM. Use of audiotapes for patient education, medical record documentation, and informed consent in lower extremity reconstruction. Orthopedics. 2001 Jul;24(7):683-5. Available from: PubMed; PMID 11478555
Kubba H. An evidence-based patient information leaflet about otitis media with effusion. Clin Perform Qual Health Care. 2000;8(2):93-9. Available from: PubMed; PMID 11184057
Landoni M, Gibb F. The role of visual rhetoric in the design and production of electronic books: the visual book. Electron Libr. 2000;18(3):190-201.
Ley P. The use and improvement of written communication in mental health care and promotion. Psychol Health Med. 1998 Feb;3(1):19-53.
Liaw ST, Marty JJ. Learning to consult with computers. Med Educ. 2001 Jul;35(7):645-51. Available from: PubMed; PMID 11437966
Lobach DF, Hasselblad V, Wildemuth BM. Evaluation of a tool to categorize patients by reading literacy and computer skill to facilitate the computer-administered patient interview. Proc AMIA Symp. 2003:391-5. Available from: PubMed; PMID 14728201
Macario E, Emmons KM, Sorensen G, Hunt MK, Rudd RE. Factors influencing nutrition education for patients with low literacy skills. J Am Diet Assoc. 1998 May;98(5):559-64. Available from: PubMed; PMID 9597029
Mansoor LE, Dowse R. Effect of pictograms on readability of patient information materials. Ann Pharmacother. 2003 Jul-Aug;37(7-8):1003-9. Available from: PubMed; PMID 12841808
Marchand-Martella N, Wasta S, Martella RC. Applying the K-W-L reading strategy in health education. J Sch Health. 1996 Apr;66(4):153-4. Available from: PubMed; PMID 8683951
Massett HA. Appropriateness of Hispanic print materials: a content analysis. Health Educ Res. 1996 Jun;11(2):231-42. Available from: PubMed; PMID 10163408
Mayeaux EJ Jr, Murphy PW, Arnold C, Davis TC, Jackson RH, Sentell T. Improving patient education for patients with low literacy skills. Am Fam Physician. 1996 Jan;53(1):205-11. Available from: PubMed; PMID 8546047
Mazor KM, Billings-Gagliardi S. Does reading about stroke increase stroke knowledge? The impact of different print materials. Patient Educ Couns. 2003 Nov;51(3):207-15. Available from: PubMed; PMID 14630377
McGee J. Writing and designing print materials for beneficiaries: a guide for state Medicaid agencies. Baltimore (MD): Department of Health and Human Services (US), Health Care Financing Administration, Center for Medicaid and State Operations; 1999 Oct. 316 p. (HCFA publication; no.10145 ).
McKinney J, Kurtz-Rossi S. Culture, health and literacy: a guide to health education materials for adults with limited English literacy skills [Internet]. Boston (MA): World Education; 2000 Nov [updated 2002 Apr 10; cited 2004 Apr 30]. Available from: http://www.worlded.org/us/health/docs/culture/
Miller B, Capps E. Meeting JCAHO patient-education standards. Nurs Manage. 1997 May;28(5):55-8. Available from: PubMed; PMID 9287798
Mishima N, Iwata N, Shimizu T. Creating notifications tailored for individual workers by using a database: a conceptual framework and its application. Ind Health. 2000 Jul;38(3):331-7. Available from: PubMed; PMID 10943083
Monsivais D, Reynolds A. Developing and evaluating patient education materials. J Contin Educ Nurs. 2003 Jul-Aug;34(4):172-6. Available from: PubMed; PMID 12887228
Murphy PW, Chesson AL, Walker L, Arnold CL, Chesson LM. Comparing the effectiveness of video and written material for improving knowledge among sleep disorders clinic patients with limited literacy skills. South Med J. 2000 Mar;93(3):297-304. Available from: PubMed; PMID 10728518
Murphy PW, Davis TC, Mayeaux EJ, Sentell T, Arnold C, Rebouche C. Teaching nutrition education in adult learning centers: linking literacy, health care, and the community. J Community Health Nurs. 1996;13(3):149-58. Available from: PubMed; PMID 8916604
Nath CR, Sylvester ST, Yasek V, Gunel E. Development and validation of a literacy assessment tool for persons with diabetes. Diabetes Educ. 2001 Nov-Dec;27(6):857-64. Available from: PubMed; PMID 12211925
Nelson D, Coleman K, Walker J. Why are you waiting? Formulating an information pamphlet for use in an accident and emergency department. Accid Emerg Nurs. 1997 Jan;5(1):39-41. Available from: PubMed; PMID 9069734
Nicklin J. Improving the quality of written information for patients. Nurs Stand. 2002 Aug 21-27;16(49):39-44. Available from: PubMed; PMID 12242847
Overland JE, Hoskins PL, McGill MJ, Yue DK. Low literacy: a problem in diabetes education. Diabet Med. 1993 Nov;10(9):847-50. Available from: PubMed; PMID 8281731
Pande KC, de Takats D, Kanis JA, Edwards V, Slade P, McCloskey EV. Development of a questionnaire (OPQ) to assess patient's knowledge about osteoporosis. Maturitas. 2000 Dec 29;37(2):75-81. Available from: PubMed; PMID 11137326
Parker RM, Baker DW, Williams MV, Nurss JR. The test of functional health literacy in adults: a new instrument for measuring patients' literacy skills. J Gen Intern Med. 1995 Oct;10(10):537-41. Available from: PubMed; PMID 8576769
Patients first: a campaign for intensive diabetes self-management [Internet]. Jacksonville (FL): American Association of Clinical Endocrinologists; c2004 [cited 2004 Apr 22]. [about 4 screens]. Available from: http://www.aace.com/
Perdue BJ, Degazon C. You make the diagnosis. Case study: diagnoses and interventions with low literacy. Nurs Diagn. 1999 Jan-Mar;10(1):4, 36-9. Available from: PubMed; PMID 10358518
Plimpton S, Root J. Materials and strategies that work in low literacy health communication. Public Health Rep. 1994 Jan-Feb;109(1):86-92. Available from: PubMed; PMID 8303020
Prevention from the harm of health illiteracy in Ohio [Internet]. Cincinnati (OH): The Health Foundation of Greater Cincinnati; 2000 Nov [updated 2004 Apr 14; cited 2004 Apr 23]. [about 26 p.]. Available from: http://www.healthfoundation.org/thf/thf.nsf/114a175a853e065d8525687c00532762/8cedd0408046a5de85256a020061b5e4?OpenDocument
Price JH, Everett SA. Developing cancer pamphlets for economically disadvantaged African Americans. Patient Educ Couns. 1996 Jul;28(2):159-67. Available from: PubMed; PMID 8852089
Pruski LA, Blalock CL, Plaetke R, Murphy DL, Marshall CE, Lichtenstein MJ. "Watch Your Mouth!" - Teaching oral health and aging in the reading classroom. Educ Gerontol. 2003 Jun-Jul;29(6):551-64.
Rakowski W. The potential variances of tailoring in health behavior interventions. Ann Behav Med. 1999 Fall;21(4):284-9. Available from: PubMed; PMID 10721434
Ratzan SC. Health literacy: communication for the public good. Health Promot Int. 2001 Jun;16(2):207-14. Available from: PubMed; PMID 11356759
Renkert S, Nutbeam D. Opportunities to improve maternal health literacy through antenatal education: an exploratory study. Health Promot Int. 2001 Dec;16(4):381-8. Available from: PubMed; PMID 11733456
Rose TA, Worrall LE, Mckenna KT. The effectiveness of aphasia-friendly principles for printed health education materials for people with aphasia following stroke. Aphasiology. 2003 Nov;17(10):947-63.
Singh J. The readability of HIV/AIDS education materials. AIDS Educ Prev. 2000 Jun;12(3):214-24. Available from: PubMed; PMID 10926125
Skinner CS, Schildkraut JM, Berry D, Calingaert B, Marcom PK, Sugarman J, Winer EP, Iglehart JD, Futreal PA, Rimer BK. Pre-counseling education materials for BRCA testing: does tailoring make a difference? Genet Test. 2002 Summer;6(2):93-105. Available from: PubMed; PMID 12215248
The Smog Readability Formula [Internet]. Salt Lake City (UT): University of Utah Health Sciences Center; [modified 1997 Dec 31; cited 2004 Apr 30]. [about 4 screens]. Available from: http://www.med.utah.edu/pated/authors/readability.html
St Leger L. Schools, health literacy and public health: possibilities and challenges. Health Promot Int. 2001 Jun;16(2):197-205. Available from: PubMed; PMID 11356758
Sutherland LA, Campbell M, Ornstein K, Wildemuth B, Lobach D. Development of an adaptive multimedia program to collect patient health data. Am J Prev Med. 2001 Nov;21(4):320-4. Available from: PubMed; PMID 11701304
Tappe MK, Galer-Unti RA. Health educators' role in promoting health literacy and advocacy for the 21st century. J Sch Health. 2001 Dec;71(10):477-82. Available from: PubMed; PMID 11816395
Temple MA. Teaching techniques. Using debate to develop health literacy. J Sch Health. 1997 Mar;67(3):116-7.
Think it through: a guide to managing the benefits and risks of medicines [Internet]. Rockville (MD): Food and Drug Administration (US), Center for Drug Evaluation and Research; [updated 2002 Sep 19; cited 2004 Apr 23]. [about 5 screens]. Available from: http://www.fda.gov/cder/consumerinfo/think.htm
Thomas JJ. Enhancing patient education: addressing the issue of literacy. Phys Disabil Spec Interest Sect Q. 1999 Dec;22(4):3-4.
Torgerson CJ, Porthouse J, Brooks G. A systematic review and meta-analysis of randomised controlled trials evaluating interventions in adult literacy and numeracy. J Res Read. 2003 Oct;26(3):234-55.
Tutty L, O'Connor G. Patient information leaflets: some pertinent guidelines. Radiography. 1999 Feb;5(1):11-4.
Walker EA. Characteristics of the adult learner. Diabetes Educ. 1999 Nov-Dec;25(6 Suppl):16-24. Available from: PubMed; PMID 10711081
Walsh D, Shaw DG. The design of written information for cardiac patients: a review of the literature. J Clin Nurs. 2000 Sep;9(5):658-67.
Webber D, Higgins L, Baker V. Enhancing recall of information from a patient education booklet: a trial using cardiomyopathy patients. Patient Educ Couns. 2001 Sep;44(3):263-70. Available from: PubMed; PMID 11553427
When to fret a fever. Newswise [Internet]. 2002 Jun 22 [cited 2004 Apr 30]:[1 screen]. Available from: http://www.newswise.com/articles/2002/6/FRET.UAB.html
Wilson FL. Are patient information materials too difficult to read? Home Healthc Nurse. 2000 Feb;18(2):107-15. Available from: PubMed; PMID 11040642
Wilson FL, McLemore R. Patient literacy levels: a consideration when designing patient education programs. Rehabil Nurs. 1997 Nov-Dec;22(6):311-7. Available from: PubMed; PMID 9416192
Wilson FL, Mood DW, Risk J, Kershaw T. Evaluation of education materials using Orem's self-care deficit theory. Nurs Sci Q. 2003 Jan;16(1):68-76. Available from: PubMed; PMID 12593317
Winslow EH. Patient education materials. Am J Nurs. 2001 Oct;101(10):33-8; quiz 39. Available from: PubMed; PMID 11680342
Wofford JL, Currin D, Michielutte R, Wofford MM. The multimedia computer for low-literacy patient education: a pilot project of cancer risk perceptions. MedGenMed. 2001 Apr 20;3(2):23. Available from: PubMed; PMID 11549972
Wright P. Criteria and ingredients for successful patient information. J Audiov Media Med. 2003 Mar;26(1):6-10. Available from: PubMed; PMID 12916632
PROFESSIONAL-PATIENT COMMUNICATION
Bass PF 3rd, Wilson JF, Griffith CH, Barnett DR. Residents' ability to identify patients with poor literacy skills. Acad Med. 2002 Oct;77(10):1039-41. Available from: PubMed; PMID 12377684
Crane JA. Patient comprehension of doctor-patient communication on discharge from the emergency department. J Emerg Med. 1997 Jan-Feb;15(1):1-7. Available from: PubMed; PMID 9017479
Davidson DA; Risk Management Division of ISMIE Mutual Insurance Company. Health literacy: adverse implications for patients and physicians. J Med Pract Manage. 2004 Jan-Feb;19(4):207-10. Available from: PubMed; PMID 15018369
Defining the physician-patient relationship for the 21st Century [Internet]. 3rd Annual Disease Management Outcomes Summit; 2003 Oct 30 - Nov 2; Phoenix, AZ. Nashville (TN): American Healthways, Inc; c2004 [cited 2004 Apr 30]. 44 p. Available from: http://www.patient-physician.com/docs/PatientPhysician.pdf
Dent S. Illiteracy: 'Hidden disability' creates health care confusion. FP Rep [Internet]. 2000 Jan [cited 2004 Apr 22];6(1):[about 2 p.]. Available from: http://www.aafp.org/fpr/20000100/illiteracy.html
Ebert DA, Heckerling PS. Communication with deaf patients. Knowledge, beliefs, and practices of physicians. JAMA. 1995 Jan 18;273(3):227-9. Comment in: JAMA. 1995 Sep 13;274(10):794; author reply 795; JAMA. 1995 Sep 13;274(10):794; author reply 795; JAMA. 1995 Sep 13;274(10):795; JAMA. 1995 Sep 13;274(10):795. Available from: PubMed; PMID 7807662
Gardner SF, Stowe CD, Lewis YL. Reaching the patient with low literacy: elective for third year pharmacy students [abstract]. AACP Ann Meet. 2000 Jul;101:203.
Grissinger M, Globus NJ. Medication errors - ISMP series this month focuses on: To promote understanding, assume every patient has a health literacy problem. US Pharm. 2002;27(1):79.
Health literacy: do your patients understand you? Rural Clin Q. 2002 Winter;12(1):1, 3.
Improving health literacy: empathy exercises [Internet]. New York (NY): Pfizer, Inc.; c2003 [modified 2003 Jun 10; cited 2004 Apr 30]. [about 3 screens]. Available from: http://www.pfizerhealthliteracy.com/improving_empathy.html
Jacobs EA, Lauderdale DS, Meltzer D, Shorey JM, Levinson W, Thisted RA. Impact of interpreter services on delivery of health care to limited-English-proficient patients. J Gen Intern Med. 2001 Jul;16(7):468-74. Comment in: J Gen Intern Med. 2001 Jul;16(7):493-5. Available from: PubMed; PMID 11520385
Kalet A, Gany F, Senter L. Working with interpreters: an interactive Web-based learning module. Acad Med. 2002 Sep;77(9):927. Available from: PubMed; PMID 12228096
Kivela LM, Fitzsimmons DS, Wilt SC, Hoffman TA. Health literacy initiative in a public health system pharmacy [abstract]. ASHP Midyear Clin Meet. 2002 Dec;37:P-202D.
Kreps GL, Arora NK, Nelson DE. Consumer/provider communication research: directions for development. Patient Educ Couns. 2003 May;50(1):3-4. Available from: PubMed; PMID 12767575
Lagay F. Clinical pearl: reducing the effects of low health literacy. Virtual Mentor [Internet]. 2003 Jun [cited 2004 Apr 22];5(6):[about 3 screens]. Available from: http://www.ama-assn.org/ama/pub/category/10363.html
Lukoschek P, Fazzari M, Marantz P. Patient and physician factors predict patients' comprehension of health information. Patient Educ Couns. 2003 Jun;50(2):201-10. Available from: PubMed; PMID 12781935
Mace RL. Removing barriers to health care: a guide for health professionals [Internet]. Raleigh (NC): North Carolina State University, Center for Universal Design; [updated 2003 Apr 9; cited 2004 Apr 23]. Available from: http://www.fpg.unc.edu/~NCODH/RBar/
Maly RC, Frank JC, Marshall GN, DiMatteo MR, Reuben DB. Perceived efficacy in patient-physician interactions (PEPPI): validation of an instrument in older persons. J Am Geriatr Soc. 1998 Jul;46(7):889-94. Available from: PubMed; PMID 9670878
McKenzie PJ. Communication barriers and information-seeking counterstrategies in accounts of practitioner-patient encounters. Libr Inf Sci Res. 2002;24(1):31-47.
New American Academy of Dermatology survey finds patients do their homework [Internet]. Schaumburg (IL): American Academy of Dermatology ; 2002 Oct 23 [modified 2003 Nov 13; cited 2004 Apr 22]. [about 4 screens]. Available from: http://www.aad.org/public/News/NewsReleases/Press+Release+Archives/Other/Homework.htm
Olson RM, Blank D, Cardinal E, Hopf G, Chalmers RK. Understanding medication-related needs of low-literacy patients. J Am Pharm Assoc (Wash). 1996 Jul;NS36(7):424-9. Available from: PubMed; PMID 8840741
Parker R. Health literacy: a challenge for American patients and their health care providers. Health Promot Int. 2000 Dec;15(4):277-83.
Plomer K, Schneider L, Barley G, Cifuentes M, Dignan M. Improving medical students' communication with limited-literacy patients: project development and implementation. J Cancer Educ. 2001 Summer;16(2):68-71. Available from: PubMed; PMID 11440064
Rivadeneyra R, Elderkin-Thompson V, Silver RC, Waitzkin H. Patient centeredness in medical encounters requiring an interpreter. Am J Med. 2000 Apr 15;108(6):470-4. Comment in: Am J Med. 2000 Oct 15;109(6):515. Available from: PubMed; PMID 10781779
Sadler GR, Gunsauls DC, Huang J, Padden C, Elion L, Galey T, Brauer B, Ko CM. Bringing breast cancer education to deaf women. J Cancer Educ. 2001 Winter;16(4):225-8. Available from: PubMed; PMID 11848672
Schillinger D, Bindman A, Wang F, Stewart A, Piette J . Functional health literacy and the quality of physician-patient communication among diabetes patients. Patient Educ Couns. 2004 Mar;52(3):315-23. Available from: PubMed; PMID 14998602
Schillinger D, Bindman AB, Stewart A, Wang F, Piette JD. Functional health literacy and the quality of physician-patient communication [abstract]. J Gen Intern Med. 2003 Apr;18 Suppl 1:187. Available from: PubMed; PMID 12753119
Schillinger D, Piette J, Grumbach K, Wang F, Wilson C, Daher C, Leong-Grotz K, Castro C, Bindman AB. Closing the loop: physician communication with diabetic patients who have low health literacy. Arch Intern Med. 2003 Jan 13;163(1):83-90. Comment in: Arch Intern Med. 2003 Jul 28;163(14):1745-6; author reply 1746. Available from: PubMed; PMID 12523921
Schwartzberg JG. Low health literacy: what do your patients really understand? Nurs Econ. 2002 May-Jun;20(3):145-7. Available from: PubMed; PMID 12077967
Shea JA, Guerra C, Weiner J, Aguirre A, Schaffer M, Asch DA. Health literacy and patient satisfaction [abstract]. J Gen Intern Med. 2003 Apr;18 Suppl 1:187-8. Available from: PubMed; PMID 12753119
Talking the talk: improving patient-provider communication. Facts Life [Internet]. 2003 Mar [cited 2004 Apr 23];8(3):[about 12 screens]. Available from: http://www.cfah.org/factsoflife/vol8no3.cfm
Teutsch C. Patient-doctor communication. Med Clin North Am . 2003 Sep;87(5):1115-45. Available from: PubMed; PMID 14621334
To promote understanding, assume every patient has a health literacy problem . ISMP Medicat Saf Alert [Internet]. 2001 Oct 31[cited 2004 Apr 30]:[about 3 screens]. Available from: http://www.ismp.org/MSAarticles/promote.html
Vanderberg-Dent S. Part II. Challenges in educating patients. Dis Mon. 2000 Dec;46(12):798-810. Available from: PubMed; PMID 11191461
Wen L, Shepherd M. Patient health literacy - many patients are illiterate or have difficulty understanding written material provided by healthcare professionals. US Pharm. 2002;27(3):44, 46, 49-52.
Williams MV, Davis T, Parker RM, Weiss BD. The role of health literacy in patient-physician communication. Fam Med. 2002 May;34(5):383-9. Available from: PubMed; PMID 12038721
Youmans SL, Schillinger D. Functional health literacy and medication use: the pharmacist's role. Ann Pharmacother. 2003 Nov;37(11):1726-9. Available from: PubMed; PMID 14565798
RISK COMMUNICATION AND COMPREHENSION
Biehl M, Halpern-Felsher BL. Adolescents' and adults' understanding of probability expressions. J Adolesc Health. 2001 Jan;28(1):30-5. Available from: PubMed; PMID 11137903
Bostrom A. Vaccine risk communication: lessons from risk perception, decision making and environmental risk communication research. Risk [Internet]. 1997 Spring;8:[20 p.]. Available from: http://www.fplc.edu/RISK/vol8/spring/bostrom.htm
Covello VT. Best practices in public health risk and crisis communication. J Health Commun. 2003;8 Suppl 1:5-8; discussion 148-51. Available from: PubMed; PMID 14692565
Edwards A, Elwyn G, Mulley A. Explaining risks: turning numerical data into meaningful pictures. BMJ. 2002 Apr 6;324(7341):827-30. Available from: PubMed; PMID 11934777
Edwards A, Prior L. Communication about risk--dilemmas for general practitioners. The Department of General Practice Working Group, University of Wales College of Medicine. Br J Gen Pract. 1997 Nov;47(424):739-42. Available from: PubMed; PMID 9519524
Endres J, Welch T, Perseli T. Use of a computerized kiosk in an assessment of food safety knowledge of high school students and science teachers. J Nutr Educ. 2001 Jan-Feb;33(1):37-42. Available from: PubMed; PMID 12031204
Feldman JA, Risbano M, Mitchell PM, Metha SD, Fish SS. Evaluating acceptance and understanding of risk in the emergency department: are all risk statements created equally? Acad Emerg Med. 2002 Apr;9(4):309-16. Available from: PubMed; PMID 11927455
Fuller R, Dudley N, Blacktop J. Risk communication and older people-understanding of probability and risk information by medical inpatients aged 75 years and older. Age Ageing. 2001 Nov;30(6):473-6. Available from: PubMed; PMID 11742775
Griffin RJ, Friedman SM, Rich RC, editors. Risk communication in a democratic society: annotated subindex to a Risk symposium (Summer 1999) [Internet]. Concord (NH): Franklin Pierce Law Center; c1999 [modified 1999 Nov 20; cited 2000 Oct 13]. [about 1 screen]. Available from: http://www.fplc.edu/risk/demindx.htm by .
Grimes DA, Snively GR. Patients' understanding of medical risks: implications for genetic counseling. Obstet Gynecol. 1999 Jun;93(6):910-4. Available from: PubMed; PMID 10362153
Murphy DA, O'Keefe ZH, Kaufman AH. Improving comprehension and recall of information for an HIV vaccine trial among women at risk for HIV: reading level simplification and inclusion of pictures to illustrate key concepts. AIDS Educ Prev. 1999 Oct;11(5):389-99. Available from: PubMed; PMID 10555623
National Research Council (US), Committeee on Risk Perception and Communication. Improving risk communication [Internet]. Washington (DC): National Academy Press; 1989 [cited 2004 Apr 30]. Available from: http://www.nap.edu/books/0309039436/html/
Ratzan SC. Making sense of risk. J Health Commun. 2003 Sep-Oct;8(5):399-400. Available from: PubMed; PMID 14530142
Rudd RE, Comings JP, Hyde JN. Leave no one behind: improving health and risk communication through attention to literacy. J Health Commun. 2003;8 Suppl 1:104-15. Available from: PubMed; PMID 14692575
Salmon CT, Wooten K, Gentry E, Cole GE, Kroger F. AIDS knowledge gaps: Results from the first decade of the epidemic and implications for future public information efforts. J Health Commun. 1996 Jan-Mar;1(2):141-55.
Schwartz LM, Woloshin S, Black WC, Welch HG. The role of numeracy in understanding the benefit of screening mammography. Ann Intern Med. 1997 Dec 1;127(11):966-72. Comment in: Ann Intern Med. 1998 May 1;128(9):783. Available from: PubMed; PMID 9412301
Statistics training that helps doctors figure the odds of illness. Newswise [Internet]. 2001 Sep 17 [cited 2004 Apr 30]:[about 3 screens]. Available from: http://www.newswise.com/articles/2001/9/STATS.PSY.html
Stern PC, Fineberg HV, editors. Understanding risk: informing decisions in a democratic society [Internet]. Washington (DC): National Academy Press; 1996 [cited 2004 Apr 30]. Available from: http://www.nap.edu/books/030905396X/html/index.html
Zorn M, Ratzan S, compilers. Health risk communication [bibliography on the Internet]. Bethesda (MD): National Library of Medicine (US); 2000 Oct [cited 2004 Apr 30]. 847 citations. January 1990 through October 2000, plus selected earlier citations. (Current bibliographies in medicine; 2000-7). Available from: http://www.nlm.nih.gov/pubs/cbm/health_risk_communication.html
TOOLKITS, HANDBOOKS, AUDIOVISUALS
Beveridge J. Health, communication and literacy: an annotated bibliography [Internet]. Montreal (QC): Centre for Literacy of Quebec; 1998 Sep [cited 2004 Apr 30]. (ERIC document; no. ED448329). Available from: http://www.nald.ca/province/que/litcent/publication_products/hclbibli/content.htm
Davis T. Literacy and health: do patients understand? [videocassette]. Oakland (CA): Kaiser Foundation Health Plan; c1995. 1 videocassette: 50 min., sound, color, 1/2 in.
Davis TC, Williams MV, Branch WT Jr, Green KW. Explaining illness to patients with limited literacy. In: Whaley BB, editor. Explaining illness: research, theory, and strategies. Mahwah (NJ): Lawrence Erlbaum Associates; 2000. p. 123-46.
Health literacy: help your patients understand [multimedia]. Chicago (IL): American Medical Association Foundation; 2003. 1 videocassette, 1 CD-ROM, 1 manual, 1 brochure, 1 tabletop display with tear pad, 10 "Ask me I can help" buttons.
Health literacy: important links [Internet]. Richmond (VA): Virginia Adult Learning Resource Center; c2003 [updated 2003 Sep 30; cited 2004 Apr 22]. Available from: http://www.aelweb.vcu.edu/links/health.shtml
Hodorowski JK, compiler. Health information literacy resources [Internet]. New York (NY): Memorial Sloan-Kettering Cancer Center, Cancer Information Service of New York; 2003 Nov 3 [cited 2004 Apr 30]. 5 p. Available from: http://www.metro.org/SIGs/pdfs/chi_health_literacy.pdf
In plain language: the need for effective communication in medicine and public health [videocassette]. [Cambridge (MA)]: Harvard School of Public Health; c2000. 1 videocassette: 14 min., sound, color, 1/2 in.
Irvine C. Health and literacy compendium: an annotated bibliography of print and Web-based health materials for use with limited-literacy adults [Internet]. Boston (MA): World Education; 1999 [cited 2004 Apr 30]. 75 p. (ERIC document; no. ED469188). Available from: http://www.worlded.org/us/health/docs/comp/compendium.pdf
Joint Committee on National Health Education Standards; Association for the Advancement of Health Education (US); American School Health Association; American Public Health Association; American Cancer Society. National health education standards. Achieving health literacy: an investment in the future. New York (NY): American Cancer Society; 1998. 80 p.
Kiefer KM. Health literacy: responding to the need for help [Internet]. Washington (DC): Center for Medicare Education; 2001 Feb [cited 2004 Apr 30]. 33 p. Available from: http://www.medicareed.org/content/CMEPubDocs/Health_Literacy_Report_Feb2001.pdf.
Literacy and how it affects quality care [Internet]. Greenwood Village (CO): Thompson MICROMEDEX; [cited 2004 Apr 30]. [about 3 p.]. Available from: http://www.micromedex.com/products/carenotes/carenotes_white.html
Making health communication programs work [Internet]. Bethesda (MD): National Cancer Institute (US), Office of Cancer Communications; [cited 2004 Apr 30]. 251 p. Available from: http://www.nci.nih.gov/PDF/41f04dd8-495a-4444-a258-1334b1d864f7/Pink_Book.pdf
Matthews TL, Sewell JC. State official's guide to health literacy. Lexington (NY): Council of State Governments; 2002. 122 p.
Miller JD, Kimmel LG. Biomedical communications: purposes, audiences, and strategies. San Diego (CA): Academic Press; 2001. 458 p.
Morley G. Functional health literacy: a primer. Princeton (NJ) : Center for Health Care Strategies; 1997. 9 leaves.
Osborne H. Health Literacy from A to Z: practical ways to communicate your health. Sudbury (MA): Jones and Bartlett; 2004.
Schwartzberg J, VanGeest J, Wang CC, editors. Understanding health literacy: implications for medicine and public health. Chicago (IL): AMA Press. Forthcoming 2004.
Singleton K. Health lteracy and adult english language learners [Internet]. Washington (DC): National Center for ESL Literacy Education (US); 2002 Feb [cited 2004 Apr 30]. [about 7 p.]. Available from: http://www.cal.org/ncle/digests/healthlitQA.htm
Singleton K. Virginia Adult Education Health Literacy Toolkit [Internet]. Richmond (VA): Virginia Adult Learning Resource Center; c2003 [cited 2003 Apr 30]. Available from: http://www.aelweb.vcu.edu/publications/healthlit
Singleton K, Terrill L, compilers. Health literacy resources & programs for adult ESL [Internet]. Washington (DC): National Center for ESL Literacy Education (US); 2003 Jun [cited 2004 Apr 30]. [about 3 p.]. This bibliography was prepared with funding from the U.S. Department of Education (ED), Office of Vocational and Adult Education (OVAE), under Contract No. ED-99-CO-0008. Available from: http://www.cal.org/ncle/healthbibres.htm
Smoak R, Mahood W. Low health literacy: you can't tell by looking [videocassette]. Chicago (IL): American Medical Association; 2000. 1 videocassette: color, 1/2 in.
Thompson TL, Dorsey AM, Miller KI, Parrott R, editors. Handbook of health communication. Mahwah (NJ): Lawrence Erlbaum Associates; 2003. 753 p.
Whaley BB, editor. Explaining illness: research, theory, and strategies. Mahwah (NJ): Lawrence Erlbaum Associates; 2000.
Wilson KK. Promoting health literacy [Internet]. Clemson (SC): Clemson University, Institute on Family and Neighborhood Life; 2001[cited 2004 Apr 30]. 71 p. (ERIC document; ED466621).
WEB SITES
AMA Foundation. Health literacy [Internet]. Chicago (IL): American Medical Association; [updated 2003 Jun 7; cited 2004 Apr 22]. Available from: http://www.ama-assn.org/ama/pub/category/8115.html
AMA Foundation. Health literacy: help your patients understand [Internet]. Chicago (IL): American Medical Association; [updated 2003 Mar 26; cited 2004 Apr 22]. Available from: http://www.ama-assn.org/ama/pub/category/8115.html
Clear Health Comunication Initiative: It's About Improving Health [Internet]. New York (NY): Pfizer, Inc.; c2003 [updated 2004 Feb 27; cited 2004 Apr 30]. Available from: http://www.pfizerhealthliteracy.com/
Clear & Simple: developing effective print materials for low-literate readers [Internet]. Bethesda (MD): National Cancer Institute (US); [updated 2003 Feb 27; cited 2004 Apr 30]. Available from: http://www.nci.nih.gov/cancerinformation/clearandsimple
Communicating Health: Priorities and Strategies for Progress [Internet]. Bethesda (MD): National Institutes of Health (US), Office of Disease Prevention and Health Promotion; 2003 Jul [modified 2003 Sep 24; cited 2004 Apr 22]. Available from: http://odphp.osophs.dhhs.gov/projects/healthcomm/default.htm
Communicating With Your Healthcare Provider [Internet]. Bethesda (MD): National Library of Medicine (US); [reviewed 2004 Mar 30; cited 2004 Apr 30]. Available from: http://www.nlm.nih.gov/medlineplus/communicatingwithyourhealthcareprovider.html
Developing Low Literacy Materials - OSU [Internet]. Corvallis (OR): Oregon State University Extention Family & Community Development; [updated 2003 Feb 20; cited 2003 Aug 10]. Available from: http://oregonstate.edu/dept/ehe/nu_literacy.htm
Easy-to-Read Publications [Internet]. Rockville (MD): Food and Drug Administration (US); 2003 Jan 14 [cited 2004 Apr 23]. Available from: http://www.fda.gov/opacom/lowlit/7lowlit.html
The El Paso Collaborative Health Literacy Curriculum [Internet]. El Paso (TX): El Paso Community College, Community Education Program; 2001 Nov [modified 2002 May 07; cited 2004 Apr 30]. Available from: http://www.worlded.org/us/health/docs/elpaso/
Emergency and Risk Communication [Internet]. Atlanta (GA): Centers for Disease Control and Prevention (US); [updated 2004 Jan 20; cited 2004 Apr 30]. Available from: http://www.cdc.gov/communication/emergency/erc_overview.htm
Health Literacy [Internet]. Mount Pleasant (MI): Michigan Adult Learning & Technology Center; [modified 2003 Apr 16; cited 2004 Apr 30]. Available from: http://www.malt.cmich.edu/healthlit.htm
Health & Literacy [Internet]. Boston (MA): World Education, Inc.; [updated 2004 Feb 4; cited 2004 Apr 30]. Available from: http://www.worlded.org/us/health/lincs/
Health Literacy [Internet]. Washington (DC): National Academy of Sciences (US), Institute of medicine; c2004 [cited 2004 Apr 30]. Available from: http://www.iom.edu/project.asp?id=3827
Health Literacy [Internet]. Chicago (IL): Medical Library Association; [updated 2004 Apr 19; cited 2004 May 8] Available from: http://www.mlanet.org/resources/healthlit/
Health Literacy Month [Internet]. [place unknown]: Health Literacy Month; c2003 [cited 2004 Apr 23]. Available from: http://www.healthliteracymonth.com/
Health Literacy Studies [Internet]. Boston (MA): The Harvard School of Public Health, Department of Society, Human Development and Health; [cited 2004 Apr 23]. Available from: http://www.hsph.harvard.edu/healthliteracy/
Healthy People [Internet]. Washington (DC): Department of Health and Human Services (US), Office of Disease Prevention and Health Promotion; [modified 2004 Apr 14; cited 2004 Apr 23]. Available from: http://www.healthypeople.gov/
IHA's HELP Curriculum [Internet]. La Habra (CA): Institute for Healthcare Advancement; c2001 [modified 2004 Mar 23; cited 2004 Apr 23]. Available from: http://www.iha4health.org/healthlit_curriculum_intro.html
Improving Health Literacy [Internet]. Bethesda (MD): National Institute of Deafness and Other Communication Disorders (US); [updated 2004 Jan 6; cited 2004 Apr 30]. Available from: http://www.nidcd.nih.gov/health/education/news/improving_health_literacy.asp
In search of quality health care: helping consumers make informed choices [Internet]. Washington (DC): Alliance for Health Reform; 2002 Jul 19 [cited 2004 Apr 22]. Available from: http://www.allhealth.org/event_071902.asp
Informed Consent Overview [Internet]. Minneapolis (MN): University of Minnesota; c1998 [cited 2004 Apr 30]. Available from: http://www.research.umn.edu/consent/mod1med/mod1sec1.html
Literacy Breakthroughs [database on the Internet]. Tokyo (Japan): Asia/Pacific Cultural Center for UNESCO; c2000 [modified 2003 Jul 17; cited 2004 Apr 22]. Available from: http://www.accu.or.jp/litdbase/break/index.htm#1
NAAL 2003: Overview [Internet]. Washington (DC): Department of Education (US), National Center for Education Statistics, Institute of Education Sciences; [cited 2004 Apr 22]. Available from: http://nces.ed.gov/naal/design/about02.asp
National Forum on Information Literacy [Internet]. San Jose (CA): San Jose State University; [updated 2004 Mar 24; cited 2004 Apr 23]. Available from: http://www.infolit.org/
National Literacy and Health Program [Internet]. Ottawa (ON): Canadian Public Health Association; 1997 Jul 2 [modified 2004 Apr 27; cited 2004 Apr 28]. Available from: http://www.nlhp.cpha.ca/
NIFL Literacy Fact Sheets [Internet]. Washington (DC): National Institute for Literacy (US); [updated Spring 2002; cited 2004 Apr 30]. Available from: http://www.nifl.gov/lincs/facts_statistics/facts_statistics.html
Public Health Literacy for Lawyers [Internet]. Boston (MA): The Public Health Advocacy Institute, Inc.; c2004 [cited 2004 Apr 30]. Available from: http://www.phaionline.org/projects_phlp.html
Reading for Health Promotion N526 [Internet]. Kansas City (MO): University of Missouri-Kansas City, School of Nursing; [modified 2002 Nov 6; cited 2004 Apr 30]. Available from: http://www.umkc.edu/nursing/hp-jhunter-526.html
Related Web Page Links [Internet]. Boston (MA): Harvard School of Public Health, Department of Society, Human Development and Health; [cited 2004 Apr 23]. Available from: http://www.hsph.harvard.edu/healthliteracy/links.html
Risk Communication Bibliography [Internet]. Bethesda (MD): National Cancer Institute (US); [updated 2003 Sep; cited 2004 Apr 30]. Available from: http://dccps.nci.nih.gov/DECC/riskcommbib/
Rudd RE. Health Literacy Overview [Internet]. Boston (MA): Harvard School of Public Health, Department of Health and Social Behavior; [cited 2004 Apr 23]. 46 PowerPoint slides. Available from: http://www.hsph.harvard.edu/healthliteracy/slides/sld001.htm
Schrock K. Fry's Readability Graph: directions for use [Internet]. [Bethesda (MD)]: DiscoverySchool.com; c1995-2004 [cited 2004 Apr 22]. Available from: http://school.discovery.com/schrockguide/fry/fry.html
TalkingQuality.gov [Internet]. [Rockville (MD)]: Agency for Healthcare Research and Quality (US), Work Group on Consumer Health Information; [cited 2003 Apr 30]. Available from: http://www.talkingquality.gov/
Tinker TL, Silberberg PG. Evaluation primer on health risk communication programs: programs and outcomes [Internet]. [Atlanta (GA)]: Agency for Toxic Substances and Disease Registry (US), Environmental Health Policy Committee; 1997 May [updated 2002 May 28; cited 2004 Apr 22]. Available from: http://www.atsdr.cdc.gov/HEC/evalprmr.html
Last reviewed: 28 January 2008
Last updated: 17 December 2007
First published: 12 May 2004
Metadata| Permanence level: Permanent: Stable Content