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Organizations
11–20 of 22 Orgs | < Previous | Next > | Show All | See Categories and Related Topics | |
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Genetic Alliance 
Genetic Alliance increases the capacity of genetic advocacy organizations to achieve their missions and leverages the voices of millions of individuals and families living with genetic conditions. We ... Details >
List reviewed web resources | March of Dimes Birth Defects Foundation
The March of Dimes Birth Defects Foundation was established in 1938. Its mission is to improve the health of babies by preventing birth defects and infant mortality. The mission is carried out throu... Details >
List reviewed web resources | Myelin Project
The Myelin Project is a non-profit organization, the goal of which is to accelerate research on the remyelination of the central nervous system. Successful research in this area will help those suffer... Details >
List reviewed web resources | National Foundation for Ectodermal Dysplasias
The National Foundation for Ectodermal Dysplasias, (NFED), was organized in order that accurate information on ectodermal dysplasias (ED) would be available to patients and their families dealing with... Details >
List reviewed web resources | National Fragile X Foundation
The National Fragile X Foundation unites the fragile X community to enrich lives through educational and emotional support, promote public and professional awareness, and advance research toward impro... Details >
List reviewed web resources | National Gaucher Foundation
The National Gaucher Foundation (NGF), founded in 1984, is a nonprofit organization whose primary objective is to help in finding a cure and viable treatment program for Gaucher's Disease (GD). NGF a... Details >
List reviewed web resources | National Society of Genetic Counselors
The National Society of Genetic Counselors (NSGC), formed in 1978, is a leading voice, authority and advocate for the genetic counseling profession. NSGC promotes the genetic counseling profession as... Details >
List reviewed web resources | Neurofibromatosis, Inc.
Neurofibromatosis, Inc., is a nonprofit organization that provides individuals and families affected by neurofibromatosis (NF) and related disorders with information on the disorder, referrals to phys... Details >
List reviewed web resources | Noonan Syndrome Support Group, Inc.
This international organization gives its members an opportunity to share experiences and exchange ideas on how to cope with Noonan Syndrome. The NSSG offers forums where physicians and other profess... Details >
List reviewed web resources | Stickler Involved People
Stickler Involved People (SIP) is a national network whose purpose is to increase awareness of Stickler syndrome by educating medical professionals, educators, and people with Stickler syndrome and th... Details >
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