Division of Cancer Epidemiology and Genetics, National Cancer Institute
The responsibility of this division of the National Institutes of Health is to conduct population based research on environmental and genetics determinants of cancer. Interdisciplinary studies are con... Details >
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National Center for Biotechnology Information, National Library of Medicine
Established in 1988 as a national resource for molecular biology information, NCBI creates public databases; conducts research in computational biology; develops software tools for analyzing genome da... Details >
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National Human Genome Research Institute, National Institutes of Health
The National Human Genome Research Institute (NHGRI) led the National Institutes of Health's contribution to the International Human Genome Project, which had as its primary goal the sequencing of th... Details >
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National Institute of Child Health and Human Development, National Institutes of Health
The National Institute of Child Health and Human Development (NICHD) conducts and supports basic and clinical research in maternal and child health and the population sciences. It will respond to ind... Details >
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National Institute of General Medical Sciences, National Institutes of Health
The National Institute of General Medical Sciences (NIGMS) is one of the National Institutes of Health, the principal biomedical research agency of the United States Government. NIGMS primarily suppor... Details >
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National Library of Medicine, National Institutes of Health
The National Library of Medicine (NLM) was established in 1836 as the library of the Army Surgeon General's Office. It was transferred to the Department of Health, Education, and Welfare and became k... Details >
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National Office of Public Health Genomics- Centers for Disease Control and Prevention
The mission of the National Office of Public Health Genomics (NOPHG) is to integrate genomics into public health research, policy and programs. The office provides assistance to public health professi... Details >
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Office of Cancer Information Products and Systems
The Office of Cancer Information Products and Services manages the production of evidence-based information summaries on cancer topics including treatment, screening, prevention, genetics, supportive ... Details >
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American Society of Human Genetics 
The American Society of Human Genetics (ASHG) was established in 1948 to provide leadership in research, education and service in human genetics. ASHG is one of several human genetics societies and or... Details >
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Birth Defect Research for Children, Inc.
Birth Defect Research for Children provides information and support to families of children with birth defects. BDRC sponsors research on birth defects caused by exposures to environmental agents--dr... Details >
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Genetic Alliance
Genetic Alliance increases the capacity of genetic advocacy organizations to achieve their missions and leverages the voices of millions of individuals and families living with genetic conditions. We ... Details >
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March of Dimes Birth Defects Foundation
The March of Dimes Birth Defects Foundation was established in 1938. Its mission is to improve the health of babies by preventing birth defects and infant mortality. The mission is carried out throu... Details >
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Myelin Project
The Myelin Project is a non-profit organization, the goal of which is to accelerate research on the remyelination of the central nervous system. Successful research in this area will help those suffer... Details >
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National Foundation for Ectodermal Dysplasias
The National Foundation for Ectodermal Dysplasias, (NFED), was organized in order that accurate information on ectodermal dysplasias (ED) would be available to patients and their families dealing with... Details >
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National Fragile X Foundation
The National Fragile X Foundation unites the fragile X community to enrich lives through educational and emotional support, promote public and professional awareness, and advance research toward impro... Details >
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National Gaucher Foundation
The National Gaucher Foundation (NGF), founded in 1984, is a nonprofit organization whose primary objective is to help in finding a cure and viable treatment program for Gaucher's Disease (GD). NGF a... Details >
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National Society of Genetic Counselors
The National Society of Genetic Counselors (NSGC), formed in 1978, is a leading voice, authority and advocate for the genetic counseling profession. NSGC promotes the genetic counseling profession as... Details >
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Neurofibromatosis, Inc.
Neurofibromatosis, Inc., is a nonprofit organization that provides individuals and families affected by neurofibromatosis (NF) and related disorders with information on the disorder, referrals to phys... Details >
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Noonan Syndrome Support Group, Inc.
This international organization gives its members an opportunity to share experiences and exchange ideas on how to cope with Noonan Syndrome. The NSSG offers forums where physicians and other profess... Details >
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Stickler Involved People
Stickler Involved People (SIP) is a national network whose purpose is to increase awareness of Stickler syndrome by educating medical professionals, educators, and people with Stickler syndrome and th... Details >
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Williams Syndrome Association, Inc.
The Williams Syndrome Association, Inc., is a national, non-profit organization whose purpose is to provide support and the latest medical and educational information to individuals with Williams Synd... Details >
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Wilson's Disease Association
The Wilson's Disease Association is a volunteer organization whose purpose is to give aid and support to victims of Wilson's disease and related disorders of copper metabolism, such as Menkes' disease... Details >
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