Partnerships '98 home
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"The
benefits of online services are less emergency room
visits, less physician visits, and greater negotiation of
doctors with skills."
Tom Ferguson, Senior Associate, Harvard Center
for Clinical Computing, Partnerships '97
POLICY ISSUES IN CONSUMER HEALTH
INFORMATICS
Partnerships for Networked Consumer Health
Information
Sponsored by the U.S. Department of Health and Human
Services and the Annenberg School for Communication and
Annenberg Public Policy Center, University of
Pennsylvania
Washington, D.C. National Press Club
Tuesday, April 28, 1998
9:30 am - 5:00 pm
Registration
10:00 - 11:30 am
Internet Training Session for Health Media
- Doug Levy,
Technology and Medical Reporter, USA Today
Health writers, editors, and other news staff will
learn about key Internet sites and resources to help
them identify emerging stories, get background
information, and locate contacts.
10:00 am - 6:00 pm
Technology Showcase and Games
Developers and vendors will demonstrate interactive
consumer/patient applications and Web sites and engage in
optional, friendly competition.
12:00 - 1:30 pm
Luncheon
12:45 pm
Welcome
- Douglas Rivlin, Director, Washington Office,
Annenberg Public Policy Center, University of
Pennsylvania
- David Satcher,
M.D., Ph.D., Assistant Secretary for Health and
Surgeon General
- Donna E. Shalala,
Ph.D., Secretary of Health and Human Services
Presentation of healthfinderTM
Enhancements
- The Honorable Al Gore, Vice President of the
United States [invited]
The popular government health Web site
launched by the Secretary and the Vice President at
Partnerships '97 has a new look and enhancements to
help consumers prevent illness, take care of
themselves and their families, find quality health
care, and judge health information on the Internet.
"Talk Show"
- Warner V. Slack.
M.D., Co-President, Center for Clinical
Computing; Editor, M.D. Computing, and
author, Cybermedicine: How Computing Empowers
Doctors and Patients for Better Health Care
- Interviewed by David
Meyerson, M.D., Johns Hopkins University
1:30 - 2:00 pm
Break: Visit Showcase and Games
2:00 - 3:30 pm
Plenary Session
Chair: James
O'Hara, III, Deputy Assistant Secretary for Health,
U.S. Department of Health and Human Services
Keynote: Health Illiteracy Costs
and Opportunities Through TechnologyDavid
W. Baker, M.D., Assistant Professor
of Medicine and
Epidemiology-Biostatistics, Case Western
Reserve University
Many patients cannot
read basic materials they encounter in the health
care setting, such as prescriptions and appointment
slips. These individuals are less likely to
understand their diagnosis and treatment, and they
are more likely to be hospitalized. Computerized
learning packages and home monitoring tools may
ameliorate these problems.
Federal and State agencies play important
roles in promoting access to pertinent, credible, and
understandable health information. Policies,
programs, and specific services will be highlighted
by public sector panelists. Consumers too can take
action on their own behalf and promote the wider
availability of sound information.
- Is Federal Policy Keeping Up?
- John
M. Eisenberg, M.D., M.B.A.,
Administrator, Agency for Health Care
Policy and Research, U.S. Department of
Health and Human Services
- Whats Happening in the States?
- How Can Consumers be Proactive?
3:30 - 3:45 pm
Break
3:30 - 6:00 pm
Technology Showcase and Games
3:45 - 5:15 pm
Concurrent Breakout Groups or Visit the Showcase and
Games
- Innovative Programs for Ensuring Access to Health
Information and Education
Moderator:
Margaret Cary,
M.D., M.B.A., M.P.H., Regional Director, U.S.
Department of Health and Human Services
Those groups who are least likely to have
access to electronic health information resources
are also most likely to have more burdensome
health problems. To reduce the gap between the
health information "haves" and the
"have-nots," both the public and
private sectors are supporting programs to
enhance public access to technology in libraries,
shopping malls, and low-income housing. Other
innovative programs are designed for specific
high-risk populations.
- Panelist:
Victor
Strecher, Ph.D., M.P.H., Professor and
Associate Director, University of Michigan
Comprehensive Cancer Center (The Michigan
Community Kiosk Program, a Statewide Network
for Prevention Education)
- Panelist: Sandra B. McCray,
Executive Director, Colorado HealthNet
(Reaching Youth and Teens with Online
Programs)
- Panelist: Stephen J. Yank,
Project Manager, ICF Kaiser Consulting Group
(HUD's Neighborhood Networks Initiative,
Bringing Health Information into Low-Income
Housing)
- Benefits and Beyond: Moving
from Online Benefits Information to Multifunction
Consumer Services
Moderator: Shannah Koss, Program
Director for Government and Health Care, IBM, Inc.
Health plans and large employers that have
implemented electronic access to information and
services have generally only included descriptions of
benefits. Panelists will discuss issues associated
with offering members and employees a full spectrum
of functions, such as administrative, provider
selection, health information, and communication with
health professionals.
- Panelist: Jeffrey M.
Johnston, President and CEO, Decisions
Innovations, Inc. (Decision-Tools for Health
Plan Selection, including for the Federal
Employee Health Benefits Program)
- Panelist: David Cochran,
M.D., Associate Medical Director, Harvard
Pilgrim Health Care (Consumer Health Systems,
Clinical vs. Administrative Support)
- Approaches to Ensuring Quality
Health Information on the Internet
Moderator: Tom Eng, V.M.D.,
M.P.H., Study Director, Science Panel on
Interactive Communication and Health, U.S.
Department of Health and Human Services
There is increasing concern about the
accuracy, quality, and health impact of
Internet-based and other interactive health
communication technologies. Panelists will
discuss efforts in the public and private sectors
to identify key issues and strategies, including
policy and educational initiatives.
- Panelist: Farrokh Alemi,
Ph.D., Associate Professor of Health
Administration, Cleveland State University,
and Member, Science Panel on Interactive
Communication and Health (General Approaches:
Update from the Science Panel on Interactive
Communication and Health)
- Panelist: Helga Rippen,
M.D., Ph.D., M.P.H., Director, Health
Information Technology Institute, Mitretek
Systems (Consumer Tools: Work of the Mitretek
Health Summit)
- Panelist: Richard L. Cleland,
Assistant Director, Division of Service
Industry Practices, Federal Trade Commission
(Potential Regulatory Approaches)
- Internet Training Session for
Health Policy Professionals
This session will demonstrate important
Internet sites and resources for obtaining background
information on health issues and events; tracking
legislation; identifying, locating, and reaching key
players in government and the private sector; and
much more.
5:15
- 7:00 PM
Technology Games Awards (Reception with Cash Bar)
BRINGING KNOWLEDGE TO THE
POINT OF USE
American
Medical Informatics Association Spring Congress
in collaboration with the Partnerships
for Networked Consumer Health Information
Philadelphia,
PA Wyndham Franklin Plaza Hotel May
27-30, 1998
AMIAs 1998
Spring Congress will focus on exploring
knowledge-based systems for clinicians and
patients. The 3-day conference will explore three
separate aspects of this topic:
- Integrated clinical decision support: how it
works, who is using it, what is known
- The virtual library: tools and strategies for
searching, how to effectively provide literature
access wherever it is needed, links to knowledge
across campus and around the world
- Consumer/patient access to clinical knowledge:
who is providing online resources, how they are
being evaluated, what the latest developments are
A technology showcase featuring online
resources for consumers will be sponsored by
Partnerships for Networked Consumer Health
Information (DHHS) and run concurrently for the
first 2 days of the conference. All AMIA
registrants will have open access to the
showcase. The Consumer Health Informatics Games
will open Wednesday evening and end with a
closing awards ceremony on Thursday evening.
Kathleen Hall Jamieson, Dean of the Annenberg
School for Communication and Director of the
Annenberg Public Policy Center, will make the
presentations.
The Wednesday
afternoon plenary session will feature a
multimedia presentation of the history of
knowledge-based development efforts, followed by
a debate and interactive presentation on the
value of knowledge-based systems.
Thursday will be a
research day cosponsored with the Medical Library
Association. In the morning, keynote
presentations and discussions will focus on a
research agenda for the 21st century, exploring
each of the theme areas mentioned above. In the
afternoon, there will be breakout sessions to
develop a research agenda concept as it pertains
to each theme area.
Friday will be a
full day of scientific papers and panel
presentations on the theme areas.
Wednesday and
Saturday morning will provide tutorials,
workshops, and working group meetings. Site tours
of local health care facilities will also be
offered Wednesday morning.
Social
activities and local tours are planned for the
evenings and Saturday so that attendees may take
advantage of price breaks on airline tickets.
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