Overview of Data Collection in DDPIE Study
Overview of Data Collection in DDPIE Pilot Study
National Network of University Centers for Excellence in Developmental Disabilities Education, Research, and Service (UCEDDs)
Key Informant |
Type of Interview |
No. Interviewed per Site |
Duration of Interview |
Criteria/Method of Selection |
Executive Director (ED) with staff, as appropriate |
Individual, in-person |
1+ |
3-4 hours* |
- Additional staff at discretion of ED (e.g., Associate Director)
|
Consumer Advisory Committee (CAC) members |
Individual, in-person |
3 |
½ hour – 45 minutes |
- Chair (if there is one)
- All have at least 1 year on CAC
- At least one has gone through at least one 5-year plan development process
|
Current/former students |
Individual, telephone |
3 |
½ hour - 45 minutes |
- Could include:
- Students who graduated from core disability program
- Students who were exposed to disability content – could be current students
- Participants in continuing education classes
- Timeframe: within past 3 years
|
Researchers/colleagues/university administrator |
Individual, telephone |
3 |
½ hour - 45 minutes |
- External colleagues:
- not a staff member of a UCEDD or UCEDD’s university faculty
- collaborated on project or publication with a UCEDD faculty member or served on a professional committee with UCEDD faculty member
- University colleagues/ administrator – not a member of the UCEDD
|
Recipients of community services (or those trained to provide community services) |
Individual, in person |
3 |
½ hour - 45 minutes |
- Could include:
- People with developmental disabilities
- Family members
- Service providers to people with developmental disabilities
- People who interact with people with developmental disabilities as part of the general public (e.g., employers, dentists, city officials, fitness instructors)
|
*Full interview will not take place all at once; staff may be interviewed separately, as appropriate.
Overview of Data Collection in DDPIE Pilot Study State Councils on Developmental Disabilities
Key Informant |
Type of Interview |
No. Interviewed per Site |
Duration of Interview |
Criteria/Method of Selection |
Executive Director (ED) with staff, as appropriate |
Individual, in-person |
1+ |
3-4 hours* |
- Additional staff at discretion of ED (e.g., Associate Director)
|
DD Council members |
Individual, in-person |
3 |
½ hour – 45 minutes |
- Chair
- 2 other members
- All have at least 1 year on DD Council
- At least one has gone through at least one State Plan development process
|
Mixed group to talk about systems design – policy makers, collaborators, contractors for systems design projects (as appropriate) |
Group, in person |
Up to 8** |
1 ½ - 2 hours |
Select a specific example with the ED and ask ED to select individuals from among the following categories:
- State directors
- Governor’s liaison
- Legislative committee staff
- City Council members
- Tribal and other community leaders
- Parents groups
- Other appropriate partners/collaborators
- Contractors that implemented project on behalf of DD Council
|
Recipients of advocacy/leadership training |
Individual, in person |
3 |
½ - 45 minutes |
- People with developmental disabilities
- Family members
- Received training within past 3 years
- Seek range of disabilities
|
Recipients of education and training to improve community capacity |
Individual, telephone |
3 |
½ - 45 minutes |
Ask ED to identify people in the following categories:
- Service providers to people with developmental disabilities
- People who interact with people with developmental disabilities as part of the general public (e.g., employers, dentists, city officials)
- People with developmental disabilities
- Family members
- Service providers to people with developmental disabilities
- People who interact with people with developmental disabilities as part of the general public (e.g., employers, dentists, city officials, fitness instructors)
|
*Full interview will not take place all at once; staff may be interviewed separately, as appropriate.
**Questions will vary according to type of experiences of group participants
Overview of Data Collection in DDPIE Pilot Study Protection and Advocacy System
Key Informant |
Type of Interview |
No. Interviewed per Site |
Duration of Interview |
Criteria/Method of Selection |
Executive Director (ED) |
Individual, in-person |
1+ |
3-4 hours* |
- Additional staff at discretion of ED (e.g., Legal Director)
|
P&A staff |
Individual, in-person |
3 |
½ hour – 45 minutes |
- Intake
- Advocacy/legal
- Public education
|
Board of Directors (Advisory Panel) |
Individual, telephone |
3 |
½ hour – 45 minutes |
- Chair and two members
- At least one with 1 year on Board
- At least one with 3+ years on Board
- Mix of background and expertise
- At least one person has a relationship with developmental disabilities (self, family member)
|
Policymakers/collaborators to talk about systemic advocacy activities |
Group, in person |
Up to 8** |
1 ½ - 2 hours |
Select a specific example with the ED and ask ED to select individuals from among the following categories:
- State directors
- Governor’s liaison
- Legislative committee staff
- City Council members
- Tribal and other community leaders
- Parents groups
- Other appropriate partners/collaborators
|
Recipients of P&A-sponsored public education |
Individual, telephone |
3 |
½ - 45 minutes |
- Work with ED to randomly select 25 individuals, if sampling frame available
- ED purposefully selects 3 from 25 contacts
- ED selects from among following categories:
- employers
- city officials
- providers of services to people with developmental disabilities
|
P&A clients |
Individual, in person |
3 |
½ - 45 minutes |
- Work with ED to randomly select 25 clients using case file number within a specified time period as a sampling frame.
- Ask ED to purposefully select 3 individuals from among the 25.
- Select at least one client whose objective was not met.
- Personal assistant/family member may be present if client requests.
|
*Full interview will not take place all at once; staff may be interviewed separately, as appropriate.
**Questions will vary according to type of experiences of group participants
|