Andreasen, A. (1995). Marketing social change: Changing behavior to promote health, social development, and the environment. San Francisco: Jossey-Bass.
Backer, T.E., Rogers, E.M., & Sopory, P. (1992). Designing health communication campaigns: What works. Thousand Oaks, CA: Sage.
Baker, D.W. (2006). [Literacy and Cognitive Measures Both Associated with Mortality]. Unpublished raw data.
Baker, D.W., Gazmararian, J.A., Williams, M.V., Scott, T., Parker, R.M., Green, D., et al. (2002). Functional health literacy and the risk of hospital admission among Medicare managed care enrollees. American Journal of Public Health, 92(8), 1278-83.
Baker, D.W., Parker, R.M., Williams, M.V., & Clark, W.S. (1998). Health literacy and the risk of hospitalization. Journal of General Internal Medicine, 13(12), 791-798.
Baker, D.W., Parker, R.M., Williams, M.V., Clark, W.S., & Nurss, J. (1997). The relationship of patient reading ability to self-reported health and use of health services. American Journal of Public Health, 87(6), 1027-1030.
Baker, D.W., Parker, R.M., Williams, M.V., Coates, W.C., & Pitkin, K. (1996). Use and effectiveness of interpreters in an emergency department. JAMA, 275(10), 783-788.
Baker, D.W., Wolf, M.S., Feinglass, J., Thompson, J.A., Gazmararian, J.A., & Huang, J. (2007). Health literacy and mortality among elderly persons. Archives of Internal Medicine, 167(14), 1503-1509.
Berkman, N.D., DeWalt, D.A., Pignone, M.P., Sheridan, S.L., Lohr, K.N., Lux, L., et al. (2004). Literacy and Health Outcomes. Evidence Report/Technology Assessment No. 87 (Prepared by RTI International-University of North Carolina Evidence-based Practice Center). Rockville, MD: Agency for Healthcare Research and Quality.
Bradshaw, M., Tomany-Korman, S.C., & Flores, G. (in press). Language barriers to prescriptions for patients with limited English proficiency: A survey of pharmacies. Pediatrics.
Brown, S. C., & Park, D. C. (2003). Theoretical models of cognitive aging and implications for translational research in medicine. The Gerontologist, 43, Special Issue I, 57-67.
Centers for Disease Control and Prevention. (2001). CDCynergy [CD-ROM]. Atlanta, GA.
Cooper, L.A., Beach, M.C., & Clever, S.L. (2005). Participatory decision-making in the medical encounter and its relationship to patient literacy. In Understanding Health Literacy. Schwartzberg JG, VanGeest JB, Wang CC, Editors. AMA Press, 141-154.
David, R.A. & Rhee, M. (1998). The impact of language as a barrier to effective health care in an underserved urban Hispanic community. Mount Sinai Journal of Medicine, 65, 393-397.
Davis, T.C., Holcombe, R.F., Berkel, H.J., Pramanik, S., & Divers, S.G. (1998). Informed consent for clinical trials: a comparative study of standard versus simplified forms. Journal of the National Cancer Institute, 90(9), 668-674.
Davis, T.C., Wolf, M.S., Bass III, P.F., Middlebrooks, M., Kennen, E., Baker, D.W., et al. (2006). Low Literacy Impairs Comprehension of Prescription Drug Warning Labels. Journal of General Internal Medicine, 21(8), 847-851.
DeWalt, D.A., Malone, R.M., Bryant, M.E., Kosnar, M.C., Corr, K.E., Rothman, R.L., et al. (2006). A heart failure self-management program for patients of all literacy levels: A randomized, controlled trial. BMC Health Services Research, 6, 30.
Ebden, P., Bhatt, A., Carey, O.J., & Harrison, B. (1988). The bilingual consultation. Lancet, 13, 347.
Eva, K.W., Cunnington, J.P.W., Reiter, H.I., Keane, D.R., & Norman, G.R. (2004). How can I know what I don't know? Poor self assessment in a well-defined domain. Advances in Health Sciences Education, 9, 211-224.
Fang, M., Machtinger, E.L., Wang, F., & Schillinger, D. (2006). Health literacy and anticoagulation-related outcomes among patients taking warfarin. Journal of General Internal Medicine, 21(8), 841-846.
Farrelly, M.C., Davis, K.C., Haviland, L., Messeri, P., & Healton, C.G. (2005). Evidence of a dose-response relationship between "truth" anti-smoking ads and youth smoking prevalence. American Journal of Public Health, 95, 425-431.
Flores, G. (2003). Providing culturally competent pediatric care: Integrating pediatricians, institutions, families, and communities into the process. Journal of Pediatrics, 143(1), 1-2.
Flores, G., Abreu, M., Olivar, M.A., & Kastner, B. (1998). Access barriers to health care for Latino children. Archives of Pediatrics and Adolescent Medicine, 152, 1119-1125.
Freeman, H. (2006). Patient navigation: A community centered approach to reducing cancer mortality. Journal of Cancer Education, 21(1), S11-S14.
Gustafson, D.H., Hawkins, R., Boberg, E., Pingree, S., Serlin, R.E., Graziano, F., &
Chan, C.L. (1999). Impact of a patient-centered, computer-based health information/support system. American Journal of Preventive Medicine, 16(1), 1-9.
Haven, J., Burns, A., Herring, D., & Britten, P. (2006). MyPyramid.gov provides consumers with practical nutrition information at their fingertips. Journal of Nutrition Education and Behavior, 38, S153-154.
Hayes, B.K., Hulleat, L.A., & Keil, F.C. (2004). Mechanisms Underlying the Illusion of Explanatory Depth. Manuscript submitted for publication.
Hentges, E.J. (2006). Development of the MyPyramid food guidance system. Journal of Nutrition Education and Behavior, 38, S77.
Hibbard, J.H., Greene, J., & Tusler, M. (2005). Screening Medicare Beneficiaries for Health Literacy: Is a Short Screening Test Feasible? (Publication I.D. 2005-08). Washington, DC: AARP Public Policy Institute.
Hibbard, J.H., Greene, J., & Tusler, M. (2006). An Assessment of Beneficiary Knowledge of Medicare Coverage Options and the Prescription Drug Benefit (Publication I.D. 2006-12). Washington, DC: AARP Public Policy Institute.
Hibbard, J.H., Mahoney, E.R., Stockard, J., & Tusler, M. (2005). Development and testing of a short form of the patient activation measure. Health Services Research, 40, 1918-1930.
Hibbard, J.H., Peters, E.M., Dixon, A., & Tusler, M. (2007). Consumer competencies and the use of comparative quality information: It isn't just about literacy. Medical Care Research and Review, 64(4), 379-394.
Hibbard, J.H., Stockard, J., Mahoney, E.R., & Tusler, M. (2004). Development of the Patient Activation Measure (PAM): Conceptualizing and measuring activation in patients and consumers. Health Services Research, 39, 1005-1026.
Hibbard, J.H.& Tusler, M. (2007). Assessing activation stage and employing a 'Next Steps' approach to supporting patient self-management. Journal of Ambulatory Care Management, 30(1), 2-8.
Huhman, M., Potter, L.D., Wong, F.L., Banspach, S.W., Duke, J.C., & Heitzer, C.D. (2005). Effects of a mass media campaign to increase physical activity among children: Year-1 results of the VERB campaign. Pediatrics, 116, 277-284.
Inagaki, K. & Hatano, G. (2002). Young children's naïve thinking about the biological world. Hove: Psychology Press.
Institute of Medicine. (2004). Health Literacy: A Prescription to End Confusion. Washington, DC: National Academies Press.
Jibala-Weiss, M.L., Volk, R.J., Friedman, L.C., Granchi, T.S., Neff, N.E., Spann, S.J.,
Robinson, E.K., Noriaki, A., & Beck, J.R. (2006). Preliminary testing of a just-in-time, user-defined values clarification exercise to aid lower literate women in making informed breast cancer treatment decisions. Health Expectations, 9(3), 218.
Juan, W.Y., Gerrior, S., & Hiza, H. (2006). MyPyramid Tracker assesses food consumption, physical activity, and energy balance status interactively. Journal of Nutrition Education and Behavior, 38, S155-157.
Katz, E. & Lazarsfeld, P.F. (1955). Personal influence: The part played by people in the flow of mass communication. NY: The Free Press.
Kline, K.N. (2003). Popular media and health: Images, effects, and institutions. In T.L.
Thompson, A.M. Dorsey, K.L. Miller, & R. Parrott (Eds.), Handbook of health communication (pp.557-582). Mahwah, NJ: Lawrence Erlbaum Associates.
Koyani, S.J., Balley, R.W., & Nall, J.R. (2006). Research-Based Web Design and Usability Guidelines. National Cancer Institute. Washington, DC: U.S. Department of Health and Human Services.
Kripalani, S., Henderson, L., Chui, E.Y., Robertson, R., Kolm, P., & Jacobson, T.A. (2006). Predictors of Medication Self-management Skill in Low-literacy Population. Journal of General Internal Medicine, 21(8), 852-856.
Kriz, S. & Hegarty, M. (2004). Constructing and revising mental models of a mechanical system: The role of domain knowledge in understanding external visualizations. In K. Forbus, D. Gentern, & T. Reiger (Eds.), Proceedings of the 26th Annual Conference of the Cognitive Science Society. Mahwah, NJ: Lawrence Erlbaum Associates.
Kutner, M., Greenberg, E., Jin, Y., & Paulsen, C. (2006). The Health Literacy of America's Adults: Results from the 2003 National Assessment of Adult Literacy. Washington, DC: National Center for Education Statistics.
Launer, J. (1978). Taking medical histories through interpreters: practice in a Nigerian outpatient department. British Medical Journal, 2, 934-935.
Lynch, P. & Horton, S. (2002). Web Style Guide (2nd ed.). Retrieved November 20, 2006, from http://www.webstyleguide.com
Maibach, E., & Parrott, R.L. (Eds.). (1995). Designing health messages: Approaches from communication theory and public health practice. Thousand Oaks, CA: Sage.
McCombs, M. & Shaw, D. (1973). The agenda-setting function of the mass media. Public Opinion Quarterly, 37, 62-75.
Mills, C. & Keil, F.C. (2004). Knowing the limits of one's understanding: The development of an awareness of an illusion of explanatory depth. Journal of Experimental Child Psychology, 87, 1-32.
Mosen, D., Schmittdiel, J., Hibbard, J.H., Sobel, D., Remmers, C., & Bellows, J. (2007). Is patient activation associated with outcomes of care for adults with chronic conditions? Journal of Ambulatory Care Management, 30(1), 21-29.
National Cancer Institute. (2001). Making Health Communication Programs Work. Bethesda, MD.
National Institute of Deafness and Other Communication Disorders. (2006). Mission statement. Retrieved May 18, 2007, from http://www.nidcd.nih.gov/about/learn/ mission.asp
Neuhauser, L. (2001). Participatory design for better interactive health communication: A statewide model in the U.S.A. Electronic Journal of Communication/La Revue Electronique de Communication, 11 (numbers 3 and 4).
Neuhauser, L., Constantine, W.L., Constantine, N.A., Sokal-Gutierrez, K., Obarski, S.K.,
Clayton, L., et al. (2007). Promoting prenatal and early childhood health: Evaluation of a statewide materials-based intervention for parents. American Journal of Public Health, 97(10), 1803-1807.
Neuhauser, L. & Kreps, G.L. (2003). Rethinking communication in the e-health era. Journal of Health Psychology, 8(1), 7-23.
Neuhauser, L., Rothschild, B., & Rodriguez, F. (2007). MyPyramid.gov: Assessment of literacy, cultural, and linguistic factors in the USDA Food Pyramid Website. Journal of Nutrition Education and Behavior, 39(4), 219-225.
Nielsen, J. (2000). Designing Web Usability. Indianapolis: New Riders Publishing.
Oluwole, S.F., Ali, A.O., Adu, A., Blane, B.P., Barlow, B., Oropeza, R., et al. (2003). Impact of a cancer screening program on breast cancer stage at diagnosis in a medically underserved urban community. Journal of the American College of Surgeons, 196(2), 180-188.
Paasche-Orlow, M.K., Schillinger, D., Green, S.M., & Wagner, E.H. (2006). How healthcare systems can begin to address the challenge of limited literacy. Journal of General Internal Medicine, 21(8):884-887.
Reardon, K.K. & Rogers, E.M. (1988). Interpersonal versus mass media communication: A false dichotomy. Human Communication Research, 15 (2), 284-303.
Rogers, E.M. (1983). Diffusion of innovations (3rd ed.). NY: The Free Press.
Rozenblit, L.R. & Keil, F.C. (2002). The misunderstood limits of folkscience: An illusion of explanatory depth. Cognitive Science, 26, 521-562.
Rudd, R.E. & Anderson, J.E. (2007). The Health Literacy Environment of Hospitals and Health Centers. Partners for Action: Making Your Healthcare Facility Literacy-Friendly. Cambridge, MA: National Center for the Study of Adult Learning and Literacy.
Rudd, R., Kirsch, I.S., Yamamoto, K. (2004). Literacy and Health in America. Princeton, NJ: Center for Global Assessment, Policy Information Center, Research and Development, Educational Testing Services.
Rudd, R.E., Soricone, L., & Santos, M. (2006a). Health Literacy Study Circles+: Skills for Chronic Disease Management. Boston, MA: National Center for the Study of Adult Learning and Literacy.
Rudd, R.E., Soricone, L., & Santos, M. (2006b). Health Literacy Study Circles+: Skills for Health Care Access and Navigation. Boston, MA: National Center for the Study of Adult Learning and Literacy.
Rudd, R.E., Soricone, L., & Santos, M. (2007). Health Literacy Study Circles+: Skills for Disease Prevention and Screening. Boston, MA: National Center for the Study of Adult Learning and Literacy.
Saba, G., Wong, S.T., Schillinger, D., Fernandez, A., Somkin, C.P., Wilson, C., et al. (2006). Shared decision making and the experience of partnership in primary care. Annals of Family Medicine, 4(1), 54-62.
Schillinger, D., Bindman, A., Stewart, A., Wang, F., & Piette, J. (2004). Health literacy and the quality of physician-patient interpersonal communication. Patient Education and Counseling, 3, 315-323.
Schillinger, D., Hammer, H., & Wang, F. (in press). Seeing in 3-D: Examining the reach of diabetes self-management support strategies in a public healthcare system. Health Education and Behavior.
Schillinger, D., Machtinger, E., Wang, F., Rodriguez, M., & Bindman, A. (2006). The importance of establishing regimen concordance in preventing medication errors in anticoagulant care. Journal of Health Communication, 11(6), 555-67.
Schillinger, D., Wang, F., Grumbach, K., Daher, C., Palacios, J., Diaz-Sullivan, G., et al. (2002). Association of health literacy with diabetes outcomes. JAMA, 288, 475-482.
Sentell, T.L. & Halpin, H.A. (2006). Importance of Adult Literacy in Understanding Health Disparities. Journal of General Internal Medicine, 21(8), 862-866.
Siegel, M., & Doner, L., (1998). Marketing Public Health: Strategies to promote social change. Gaithersburg, MD: Aspen.
Sigelman, C.K., Rinehart, C.S., Sorongon, AG., Bridges, L.J., & Wirtz, P.W. (2004). Teaching a coherent theory of drug action to elementary school children. Health Education Research, 19, 501-513.
Simons, D.J. & Keil, F.C. (1995). An abstract to concrete shift in the development of biological thought: The insides story. Cognition, 56, 129-163.
Skurnik, I., Yoon, C., Park, D., & Schwarz, N. (2005). How warnings about false claims become recommendations. Journal of Consumer Research, 31, 713-734.
Sudore, R.L., et al., (in press). An advance directive redesigned to meet the literacy level of most adults: A randomized trial. Patient Education and Counseling.
Sudore, R.L., Landefeld, C.S., Williams, B., Barnes, D., Lindquist, K., & Schillinger, D. (2006). Use of a modified informed consent process among vulnerable patients: A descriptive study. Journal of General Internal Medicine, 21(8), 867-873.
Sudore, R.L., Yaffe, K., Satterfield, S., Harris, T., Mehta, K., Simonsick, E., et al. (2006). Limited literacy and mortality in the elderly: The health, aging, and body composition study. Journal of General Internal Medicine, 21(8), 806-812.
Taub, H.A., Baker, M.T., & Sturr, J.F. (1986). Effects of readability, patient age, and education. Journal of the American Geriatrics Society, 34, 601-606.
Tichenor, P.J., Donohu, G.A., & Olien, G.N. (1970). Mass media flow and differential growth in knowledge. Public Opinion Quarterly, 34(2), 158-170.
Tichenor, P.J., Donohue, G.A., & Olien, C.N. (1980). Community conflict and the press. Newbury Park, CA: Sage.
United States Department of Health and Human Services, Office of Disease Prevention and Health Promotion (2006a). Quick Guide to health literacy. Accessed 8/1/06 from http://www.health.gov/communication/literacy/quickguide/
United States Departement of Health and Human Services, website on usability (2006b). Accessed 8/25/06 from http://www.usability.gov
Vaiana, M.E. & McGlynn, E.A. (2002). What cognitive science tells us about the design of reports for consumers. Medical Care Research and Review, 59(1), 3-35.
Weiss, B.D., Francis, L., Senf, J.H., Heist, K., & Hargraves, R. (2006). Literacy education as treatment for depression in patients with limited literacy and depression: A randomized controlled trial. Journal of General Internal Medicine, 21(8), 823-828.
Wolf, M.S., Gazmararian, J.A., & Baker, D.W. (2005). Health literacy and functional health status among older adults. Archives of Internal Medicine, 165(17), 1946-1952.
Zarcadoolas, C., Blanco, M., & Boyer, J.F. (2002). Unweaving the Web: An exploratory study of low-literate adults' navigation skills on the World Wide Web. Journal of Health Communication, 7(4), 309-224.
Zarcadoolas, C., Pleasant, A., & Greer, D.S. (2006). Advancing Health Literacy: A framework for understanding and action. San Francisco, CA: Jossey-Bass.
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