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ELSI Policy and Legislation Online

• American Academy of Pediatrics: Ethical Issues With Genetic Testing in Pediatrics
  http://aappolicy.aappublications.org/cgi/reprint/pediatrics;107/6/1451.pdf
  Recommendations on newborn screening and genetic testing in children
  
  
• Bioethics Resources on the Web
  www.nih.gov/sigs/bioethics
  Links to bioethics resources
  
  
• bioethics.net
  www.bioethics.net/topics.php
  Links to articles on bioethics and genetics
  
  
• DNA Patent Database
  dnapatents.georgetown.edu
  Searchable database of U.S. DNA-based patents issued by the USPTO
  
  
• The Council for Responsible Genetics
  www.gene-watch.org
  Information on the social, ethical and environmental implications of genetic technologies
  
  
• Ethical, Legal, & Social Issues
  www.ornl.gov/hgmis/elsi/elsi.html and
  www.genome.gov/10001618
  Information, articles, and links on a wide range of issues
  
  
• Foundation for Genetic Medicine, Inc.
  http://ourworld.compuserve.com/homepages/CarolASThompson/geneticm.htm
  Information on the science of genetic medicine, genetic and genomic research, and ethical, legal and social dimensions and implications
  
  
• Genetics & Ethics
  www.genethics.ca/index.html
  Information on the social, ethical and policy issues associated with genetic and genomic knowledge and technology
  
  
• Genetics and Public Policy Center
  www.dnapolicy.org
  Information on genetic technologies and genetic policies for the public, media and policymakers
  
  
• Genome Technology and Reproduction: Values and Public Policy and The Communities of Color & Genetics Policy Project
  www.sph.umich.edu/genpolicy
  Two subprojects combined to form a five year project designed to provide policy recommendations based on public perceptions and responses to the explosion of genetic information and technology.
  
  
• HumGen
  www.humgen.umontreal.ca/en/
  Access to a comprehensive international database on the legal, social and ethical aspects of human genetics
  
  
• National Information Resources on Ethics & Human Genetics
  www.georgetown.edu/research/nrcbl/nirehg/index.htm
  Links to resources on ethics and human genetics
  
  
• NCSL - Genetic Technologies Project
  www.ncsl.org/programs/health/genetics.htm
  Status of legislative actions and acess to policy briefs on genetic issues of concern to state legislators
  
  
• The President's Council on Bioethics
  www.bioethics.gov
  Information on current bioethical issues
  
  
• Scope Note Series (Kennedy Institute of Ethics/ Georgetown University)
  www.georgetown.edu/research/nrcbl/nirehg/scope.htm
  Information on various aspects of genetics and ethics
  
  
• THOMAS Legislative Information on the Internet
  thomas.loc.gov
  Searchable database of U.S. legislation
  
  
• Your Genes Your Choices
  ehrweb.aaas.org/ehr/books/index.html
  Describes the Human Genome Project, the science behind it, and the ethical, legal, and social issues that are raised by the project

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Last Updated: August 19, 2008