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Reports & Studies:

2002 Ryan White CARE Act Title III Data Book

   
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Table of Contents:

Description of Early Intervention Service (EIS) Providers

  1. Title III Early Intervention Services
  2. Types of Provider Organizations Receiving Title III EIS Funds
  3. Ownership Status of Provider Organizations Receiving Title III EIS Funds
  4. Populations Especially Targeted for Outreach or Services among Providers Receiving Title III EIS Funds

Description of Primary Care Clients Served by Title III EAS Programs

  1. Total HIV Positive Patients Receiving Primary Health Care Services from Title III Providers by Gender
  2. Total HIV Positive Patients Receiving Primary Health Care Services from Title III Providers by Age
  3. Total HIV Positive Patients Receiving Primary Health Care Services from Title III Providers by Ethnicity
  4. Total HIV Positive Patients Receiving Primary Health Care Services from Title III Providers by Race
  5. Total HIV Positive Patients Receiving Primary Health Care Services from Title III Providers by Exposure
  6. Data Considerations

DESCRIPTION OF EARLY INTERVENTION SERVICE PROVIDERS

Title III Early Intervention Services

  • 320 Title III EIS grantees received funds in 2002
  • 442 Title III EIS providers reported CADR data in 2002
  • 52 grantees contracted with multiple providers to deliver EIS services
  • More than three-quarters of organizations receiving Title III EIS funds also receive funds from other CARE Act Titles s

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Types of Provider Organizations Receiving Title III EIS Funds

N=442 Providers

Pie chart containing the following data...
Hospital or University, 117
Publicly funded community health center, 143
Publicly funded community mental health center, 4
Other community-based service organization, 99
Health department, 51
Substance abuse treatment center, 2
Solo/group Private medical practice, 6
Agency reporting for multiple fee-for-service providers, 3
PLWHA coalition, 0
VA facility, 0
Other facility,	17

  • Source: 2002 CARE Act Data Report, Section 1, Item 7
  • Percentages may not sum to 100 percent due to rounding error

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Ownership Status of Provider Organizations Receiving Title III EIS Funds

N=441 providers

Bar Chart containing the following data...
Public/local, 64
Public/state, 52
Public/federal, 7
Private, nonprofit (not faith-based), 295
Private, for-profit, 7
Unincorporated, 0
Faith-based organization, 9
Other, 7

  • Source: 2002 CARE Act Data Report, Section 1, Item 9
  • One provider did not report ownership information

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Populations Especially Targeted for Outreach or Services among Providers Receiving Title III EIS Funds

N=442 providers

Pie Chart containing the following data...
Other, 65
Runaways or street youth, 78
Migrant or seasonal farm workers, 80
Children, 142
Gay, lesbian, and bisexual youth, 146
Parolees, 146
Rural populations other than migrant or seasonal farm workers, 154
Incarcerated persons, 155
All adolescents, 162
Non-injection drug users, 218
Homeless, 235
Gay, lesbian, and bisexual adults, 263
Injection drug users, 273
Women, 330
Racial/ethnic minorities/communities of color, 352

  • Source: 2002 CARE Act Data Report, Section 1, Item 15

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DESCRIPTION OF PRIMARY CARE CLIENTS SERVED BY TITLE III EIS PROGRAMS

 

Total HIV Positive Patients Receiving Primary Health Care Services from Title III Providers by Gender

N=172,422 HIV Positive Patients

Pie Chart containing the following data...
Male, 120598
Female, 51167
Transgender, 657

  • Source: 2002 CARE Act Data Report, Section 6.1, Items 56, 57, and 59

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Total HIV Positive Patients Receiving Primary Health Care Services from Title III Providers by Age

N=172,422 HIV Positive Patients

Pie Chart containing the following data...
less than 2 years, 175
2-12 years, 1363
13-24 years, 6654
25-44 years, 108010
45-64 years, 53764
65 years or older, 2275
Unknown, 181

  • Source: 2002 CARE Act Data Report, Section 6.1, Items 56, 57, and 59
  • Percentages may not sum to 100 percent due to rounding error

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Total HIV Positive Patients Receiving Primary Health Care Services from Title III Providers by Ethnicity

N=172,422 HIV Positive Patients

Pie Chart containing the following data...
Hispanic or Latino/a, 18%
Non-Hispanic or Latino/a, 77%
Unknown, 5%

  • Source: 2002 CARE Act Data Report, Section 6.1, Items 56

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Total HIV Positive Patients Receiving Primary Health Care Services from Title III Providers by Race

N=172,422 HIV Positive Patients

Pie Chart containing the following data...
White, 38%
Black, 46%
Other race, 1%
More than one race, 3%
Unknown, 11%

  • Source: 2002 CARE Act Data Report, Section 6.1, Items 57

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Total HIV Positive Patients Receiving Primary Health Care Services from Title III Providers by Exposure

N=172,422 HIV Positive Patients

Bar Chart containing the following data...
MSM, 31%
IDU, 12%
MSM and IDU, 3%
Hemophilia/coagulation disorder, 1%
Heterosexual contact, 29%
Blood transfusion, 1%
Perinatal transmission, 1%
Other, 1%
Unknown, 22%

  • Source: 2002 CARE Act Data Report, Section 6.1, Items 59

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Data Considerations

These data can not be compared with previous Title I, II, III, IV, or Title IV/Youth Initiative data. In previous years, HRSA/HAB used separate, Title-specific data systems to collect client and service information from RWCA grantees and providers. Providers who received funding from multiple RWCA sources were required to complete separate data reporting forms for each Title-funding they received. Under the new CADR reporting system, all providers, even those who are multiply-funded, complete one CADR, and report on all clients served regardless of funding source. This provides HRSA/HAB with a comprehensive understanding of how RWCA funds are being used to deliver health care services to families living with and affected by HIV disease.

Ryan White CARE Act providers have the option of reporting on eligible or funded services[1]. When they report on eligible services, providers are reporting on any service permitted under any Title of the CARE Act, regardless of whether or not the providers use a specific Title to pay for these services. Conversely, if providers report on funded services, the data they report only includes those services that were actually paid for using CARE Act funds. Reporting eligible services provides a comprehensive picture of the services being delivered to HIV-positive clients.

The utility of CADR data is limited by duplicated client counts. CADR data as collected and reported by individual providers are generally unduplicated. However, since an individual client may receive services from more than one provider, there is no way of knowing that the counts of individuals served by one provider are not also included in the counts of another service provider. Thus, aggregating provider data to the national level result in duplicate client counts.

Clients served include all individuals who had at least one visit for any eligible service provided by a Title III EIS provider during the reporting period, regardless of additional funding source.

An affected client is a family member or partner of an infected client who received case management or other supportive services during the calendar year. Affected clients include those who are HIV negative as well as those with unknown HIV status. Affected clients include those receiving Title I and II Early Intervention Services. Affected family members of HIV positive patients are served under Title IV.

“New” clients include clients whose first receipt of services from the provider agency occurred during the reporting period.

Since these data are aggregated at the national or grantee level, clients that may have been new to one provider could be continuing services to another service provider.

Revisions to Office of Management and Budget (OMB) Directive 15, which provides recommendations to Federal agencies on standardized procedures for collecting and reporting race and ethnicity data, resulted in a change in the way CARE Act program data on race and ethnicity were collected in 2002. In accordance with OMB recommendations, providers were asked to report the number of unduplicated clients who identify themselves as Hispanic or Latino/a, regardless of race. Providers were then asked to report the number of unduplicated clients in each of six racial groups. Clients reported as Hispanic or Latino/a in the previous item were to be accounted for in the question about race. At the provider level, this allows for the distinction between persons identifying with, for example, Hispanic ethnicity/origin, African-American race and Hispanic ethnicity/origin, White race. Due to the fact that CADR data are aggregated they cannot be combined to determine the proportion of minority clients served.


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[1] All grantees and providers must report on eligible services unless they have prior permission from their HRSA project officer to report only funded services.


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