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Reports & Studies:

2002 Ryan White CARE Act Title I Data Book

   
Printer-friendly:  Download the pdf versionPrinter-friendly slides (pdf 61KB)
 

Ryan White CARE Act Title I provides emergency assistance to eligible metropolitan areas (EMAs) most severely affected by the HIV/AIDS epidemic. These funds may be used to provide a range of community-based services for persons living with HIV (PLWH).

Fifty-one Ryan White CARE Act Title I EMAs (otherwise referred to as grantees) contracted with 1,554 agencies / organizations (otherwise referred to as providers) to provide CARE Act eligible services to HIV-positive individuals. These EMAs served a total of 778,457 clients of which 621,684 were HIV-positive duplicated clients and 156,773 were affected [1] duplicated clients.

Table of Contents:

  1. Types of Title I Provider Organizations / Agencies Serving Clients
  2. Ownership Status of Title I Organizations / Agencies Serving Clients
  3. Number of Duplicated Clients Served by Title I Providers
  4. HIV/AIDS Status of Duplicated Clients Served by Title I Providers
  5. Gender of Duplicated Clients Served by Title I Providers
  6. Age of Duplicated Clients Served by Title I Providers
  7. Ethnicity of Duplicated Clients Served by Title I Providers
  8. Race of Duplicated Clients Served by Title I Providers
  9. Health Insurance Status of Duplicated Clients Served by Title I Providers
  10. Number of Visits for Health Care and Case Management Services to Title I Providers
  11. Number of Visits per Client to Title I Service Providers
  12. Number of Duplicated Clients Receiving Support Services from Title Providers
  13. Percentage Distribution of HIV Positive Clients by Gender Receiving Medical Care from Title I Providers
  14. Percentage Distribution of HIV Exposure among Duplicated HIV Positive Clients from Title I Providers
  15. Data Considerations

 

Types of Title I Provider Organizations / Agencies Serving Clients

N=1,551 providers

Pie Chart
Hospital or University, 13%
Publicly funded community health center, 8%
Other community-based service organization, 53%
Health department, 8%
Substance abuse treatment center, 3%
Other*, 4%
Other facility, 11%

  • Source: 2002 CARE Act Data Report, Section 1, Item 7
  • Three providers did not report provider type information
  • Percentages may not sum to 100 percent due to rounding error
  • Other* includes Publicly funded community mental health center, solo/group private medical practice, agency reporting or multiple fee-for-service providers, PLWHA coalition, and VA facility

TABLE OF CONTENTS


 

Ownership Status of Title I Organizations / Agencies Serving Clients

N=1,552 providers

Pie Chart
Public/local, 11%
Public/state, 6%
Public/federal, 1%
Private, nonprofit (not faith-based), 69%
Private, for-profit, 5%
Unincorporated, less than 1%
Faith-based organization, 7%
Other, 1%

  • Source: 2002 CARE Act Data Report, Section 1, Item 9
  • Two providers did not report ownership information
  • Percentages may not sum to 100 percent due to rounding error

TABLE OF CONTENTS


 

Number of Duplicated Clients Served by Title I Providers

Bar Chart
New HIV Positive, 69% or 194,937
New Affected, 31% or 87,039
Total HIV Positive, 80% or 621,684
Total Affected, 20% or 156,773

  • Source: 2002 CARE Act Data Report, Section 2, Items 24 & 25

TABLE OF CONTENTS


 

HIV/AIDS Status of Duplicated Clients Served by Title I Providers

N=778,457 duplicated clients

Pie Chart
HIV Positive not AIDS, 34%
HIV Positive, unknown AIDS, 19%
AIDS, 27%
HIV negative, 7%
Unknown, 13%

  • Source: 2002 CARE Act Data Report, Section 2, Items 33

TABLE OF CONTENTS


 

Gender of Duplicated Clients Served by Title I Providers

N=778,457 duplicated clients


Pie Chart
Male, 65%
Female, 34%
Transgender, 1%
Unknown, 1%

  • Source: 2002 CARE Act Data Report, Section 2, Item 26
  • Percentages may not sum to 100 percent due to rounding error

TABLE OF CONTENTS


 

Age of Duplicated Clients Served by Title I Providers

N=778,457 duplicated clients

Pie Chart
Less than 2 years, 1%
2-12 years, 3%
13-24 years, 7%
25-44 years, 55%
45-64 years, 29%
65 years or older, 1%
Unknown, 4%

  • Source: 2002 CARE Act Data Report, Section 2, Item 27

TABLE OF CONTENTS


 

Ethnicity of Duplicated Clients Served by Title I Providers

N=778,457 duplicated clients

Pie Chart
Hispanic or Latino/a, 22%
Non-Hispanic or Latino/a, 71%
Unknown, 7%

  • Source: 2002 CARE Act Data Report, Section 2, Items 28

TABLE OF CONTENTS


 

Race of Duplicated Clients Served by Title I Providers

N=778,457 duplicated clients

Pie Chart
White, 32%
Black, 46%
Other race, 2%
More than one race, 4%
Unknown, 17%

  • Source: 2002 CARE Act Data Report, Section 2, Items 29
  • Percentages may not sum to 100 percent due to rounding error
  • “Other race” category includes Asian, Native American or Other Pacific Islander, and American Indian or Alaska Native.

TABLE OF CONTENTS


 

Health Insurance Status of Duplicated Clients Served by Title I Providers

N=778,457 duplicated clients

Pie Chart
Private, 7%
Medicare, 6%
Medicaid, 25%
Other Public, 6%
No insurance, 21%
Other, 4%
Unknown, 32%

  • Source: 2002 CARE Act Data Report, Section 2, Items 32
  • Providers report the medical insurance that provides the most reimbursement if a client has more than one source of medical insurance.
  • Examples of Other Public medical insurance include State-funded insurance plans, military health care (CHAMPUS), State Children’s Health Insurance Program (SCHIP), Indian Health Services, and Veterans Health Administration.
  • Percentages may not sum to 100 percent due to rounding error

TABLE OF CONTENTS


 

Number of Visits for Health Care and Case Management Services to Title I Providers

Bar Chart
Rehabilitation services, 12,436
Substance abuse services–residential, 150,355
Oral health care, 174,782
Home health*, 363,389
Mental health services, 509,236
Substance abuse services–outpatient, 597,101
Ambulatory/outpt. medical care, 1,580,882
Case management services (among HIV positive clients), 2,377,751

  • Source: 2002 CARE Act Data Report, Section 3, Items 35
  • Home health* includes para-professional care, professional care, and specialized care

TABLE OF CONTENTS


 

Number of Visits per Client to Title I Service Providers

Service Number of Service Provider Percent of service providers (N=1,554) Average number of visits per client per provider * Median number of visits per client * Range number of visits per client *
Ambulatory/outpt. medical care
473
30%
8.65
5.79
1-166.7
Mental health services
558
36%
9.29
6.18
1-96.8
Oral health care
239 15% 3.58 2.68 1-67.8
Substance abuse services–outpatient
340
22%
23
9.32
1-321.5
Substance abuse services–residential
63
4%
40.7
23.7
1-360.0
Rehabilitation services
32 2% 11.83 2.90 1-74.6
Home health: para-professional care
76 5% 47.65 30.04 1-320.9
Home health: professional care
53 3% 17.99 9.09 1-163.9
Home health: specialized care 33 2% 14.17 9.34 1-68.1
Case management services
(among HIV + clients)
770 50% 15.03 8.91 1-239.4
  • Source: 2002 CARE Act Data Report, Section 3, Items 35
  • (*) Data reported in this table are based on valid reports only. Valid data are defined as providers reporting complete data for both the number of clients served and number of visits.
  • For each service type, the actual number of providers serving clients is higher. However, the average number of visits per client was calculated only for those providers with valid data for number of clients served and number of client visits. Providers may offer multiple services; thus, a provider may be included in more than one service category.
  • A client may only have one visit for each service per day. For residential substance abuse treatment, each day in a residence facility equals one visit.

TABLE OF CONTENTS


 

Number of Duplicated Clients Receiving Support Services from Title Providers

Bar Chart
HIV + Health education / risk reduction, 69,244
HIV + Outreach services, 36,345
HIV + Referral for health care / supportive services, 58,345
HIV + Client advocacy, 81,313
HIV + Food bank / home-delivered meals, 82,351
HIV + Transportation services, 66,402
HIV + Other services, 56,761
Affected Health education / risk reduction, 55,776
Affected Outreach services, 74,181
Affected Referral for health care / supportive services, 33,290
Affected Client advocacy, 5,755
Affected Food bank / home-delivered meals	3,838
Affected Transportation services, 3,522
Affected Other services, 11,638


Bar Chart
HIV + Psychosocial support services, 60,519
HIV + Nutritional counseling, 53,108
HIV + Treatment adherence counseling, 50,274
HIV + Emergency financial assistance, 46,554
HIV + Housing services, 30,788
HIV + Legal services, 17,177
HIV + Referrals to clinical research, 11,579
Affected Psychosocial support services, 7,087
Affected Nutritional counseling, 2,068
Affected Treatment adherence counseling, 820
Affected Emergency financial assistance, 3,082
Affected Housing services, 1,091
Affected Legal services, 852
Affected Referrals to clinical research, 754

 

Bar Chart
HIV + EIS* for Titles I and II, 7,473
HIV + Permanency planning, 4,606
HIV + Buddy / companion service, 5,106
HIV + Child care services, 2,437
HIV + Day or respite care for adults, 4,048
HIV + Developmental assessment / EIS*, 1,903	
HIV + Child welfare services, 648	
HIV + Residential or in-home hospice care, 866
Affected EIS* for Titles I and II, 2,547
Affected Permanency planning, 1,447
Affected Buddy / companion service, 347
Affected Child care services, 2,487
Affected Day or respite care for adults, 462
Affected Developmental assessment / EIS*, 534
Affected Child welfare services, 334
Affected Residential or in-home hospice care, 42

  • Source: 2002 CARE Act Data Report, Section 3, Items 35
  • Clients served include all individuals who had at least one visit for any eligible service during the reporting period.
  • (*) Early Intervention Services

TABLE OF CONTENTS


 

Percentage Distribution of HIV Positive Clients by Gender Receiving Medical Care from Title I Providers

N=225,441 duplicated clients

Pie Chart
Male medical clients, 67%
Female medical clients, 33%
Transgender medical clients, less than 1%
Unknown/unreported medical clients, less than 1%

  • Source: 2002 CARE Act Data Report, Section 5, Items 45
  • These data are limited to medical service providers as reported in section 3, item 1a under ambulatory/outpatient medical care provider. Clients reported in section 5 may have received care other than medical and therefore the number of clients reported in section 5 may not agree with the number of clients reported in section 3 under ambulatory/outpatient medical care.
  • Percentages may not sum to 100 percent due to rounding error

TABLE OF CONTENTS


 

Percentage Distribution of HIV Exposure among Duplicated HIV Positive Clients from Title I Providers

N=219,738 duplicated clients

Pie Chart
MSM, 28%
IDU, 14%
MSM and IDU, 3%
Hemophilia/coagulation disorder/blood or tissue, 1%
Heterosexual contact, 34%
Perinatal transmission, 3%
Other 3%
No identifiable risk factor, 14%

  • Source: 2002 CARE Act Data Report, Section 5, Items 46
  • These data are limited to medical service providers as reported in section 3, item 1a under ambulatory/outpatient medical care provider. Clients reported in section 5 may have received care other than medical and therefore the number of clients reported in section 5 may not agree with the number of clients reported in section 3 under ambulatory/outpatient medical care.
  • HIV exposure information was not reported for 5,703 HIV positive duplicated medical clients
  • Percentages may not sum to 100 percent due to rounding error

TABLE OF CONTENTS


 

Data Considerations

Data in this presentation were submitted by Title I providers, many of whom also receive funds from other sources, including other CARE Act Titles (i.e., Title II, Title III, Title IV, and/or Title IV-Youth). Since many providers do receive funds from multiple CARE Act Titles, it is often impossible for them to distinguish which funds paid for various services they provide. Therefore, the data in these slides do not necessarily reflect services rendered or clients served exclusively with Title I funds. Rather, it is a presentation of provider, client, and service characteristics for providers who received Title I funds.

These data can not be compared with Title I, II, III, IV, or Title IV-Youth data collected prior to 2002. In previous years, HRSA/HAB used separate, Title-specific data systems to collect client and service information from CARE Act grantees and providers. Providers were required to complete separate data reporting forms for each Title-funding they received. Under the new CADR reporting system implemented in 2002, all providers, even those who are multiply-funded, complete one CADR, and report on all clients served regardless of funding source.

Ryan White CARE Act providers have the option of reporting on eligible or funded services[2]. When they report on eligible services, providers are reporting on any service permitted under any Title of the CARE Act, regardless of whether or not the providers use a specific Title to pay for these services. Conversely, if providers report on funded services, the data they report only includes those services that were actually paid for using CARE Act funds. Reporting eligible services provides a comprehensive picture of the services being delivered to HIV-positive clients.

Title I grantees have numerous providers under subcontract and each of these providers completes the same CADR. While data are unduplicated at the provider level, any summary of the total number of clients served and their demographic characteristics at the grantee or national level may result in duplicated client counts.

Since these data are aggregated at the national or grantee level, clients that may have been new to one provider could be continuing services to another service provider.

Clients served include all individuals who had at least one visit for any eligible service provided by a Title I provider during the reporting period, regardless of additional funding source.

An affected client is a family member or partner of an infected client who received case management or other supportive services during the calendar year. Affected clients include those who are HIV negative as well as those with unknown HIV status. Affected clients include those receiving Title I and II Early Intervention Services. Affected family members of HIV positive patients are served under Title IV.

“New” clients include clients whose first receipt of services from the provider agency occurred during the reporting period.


 

[1] An affected client is a family member or partner of an infected client who received case management or other supportive services during the calendar year.

[2] All grantees and providers must report on eligible services unless they have prior permission from their HRSA project officer to report only funded services.

 


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