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Reports & Studies:

2004 Ryan White CARE Act Annual Data Book

   
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Ryan White Care Act grantees have numerous providers under subcontract and each of these providers completes the same CADR. While data are unduplicated at the provider level, any summary of the total number of clients served and their demographic characteristics at the grantee or national level may result in duplicated client counts.

Since these data are aggregated at the national or grantee level, clients that may have been new to one provider could be continuing services to another service provider.

Table of Contents:

  1. Types of CARE Act Provider Organizations / Agencies Serving Clients
  2. Ownership Status of CARE Act Provider Organizations/Agencies Serving Clients
  3. Number of Duplicated Clients Served by CARE Act Providers, 2002-04
  4. HIV/AIDS Status of Duplicated Clients Served by CARE Act Providers
  5. Gender of Duplicated Clients Served by CARE Act Providers
  6. Age of Duplicated Clients Served by CARE Act Providers
  7. Ethnicity of Duplicated Clients Served by CARE Act Providers
  8. Race of Duplicated Clients Served by CARE Act Providers
  9. Health Insurance Status of Duplicated Clients Served by CARE Act Providers
  10. Number of Visits for Health Care and Case Management Services to CARE Act Providers, 2002-04
  11. Number of Visits per Client to CARE Act Service Providers
  12. Number of Duplicated Clients Receiving Support Services from CARE Act Providers
  13. Percent of HIV Positive Clients Receiving Medical Care from CARE Act Providers by Gender
  14. Percentage Distribution of HIV Exposure among Duplicated HIV Positive Clients from CARE Act Providers

 

Types of CARE Act Provider Organizations / Agencies Serving Clients

N=2,567 providers

Pie Chart containing the following data...
Hospital or University, 360
Publicly funded community health center, 216
Publicly funded community mental health center, 28
Community-based service organization, 1,165
Health department, 333
Substance abuse treatment center, 73
Other*, 60
Other facility, 332

  • Source: 2004 CARE Act Data Report, Section 1, Item 7.
  • Percentages may not sum to 100 percent due to rounding error.
  • Other* includes solo/group private medical practice, agency reporting for multiple fee-for-service providers, PLWHA coalition, and VA facility.

TABLE OF CONTENTS


 

Ownership Status of CARE Act Provider Organizations/Agencies Serving Clients

N=2,567 providers

Pie chart containing the following data...
Public/local, 334
Public/state, 240
Public/federal, 18
Private, nonprofit (not faith-based), 1,656
Private, for-profit, 138
Unincorporated, 6
Faith-based organization, 113
Other, 62

  • Source: 2004 CARE Act Data Report, Section 1, Item 9.
  • Percentages may not sum to 100 percent due to rounding error.

TABLE OF CONTENTS


 

Number of Duplicated Clients Served by CARE Act Providers, 2002-2004

Bar Chart containing the following data...
HIV Positive
2002 New Clients, 256,467	
2003 New Clients, 241,757	
2004 New Clients, 224,641	
2002 Total Clients, 844,687
2003 Total Clients, 893,831	
2004 Total Clients, 878,078	

HIV Affected
2002 New Clients, 113,592
2003 New Clients, 161,548
2004 New Clients, 85,224
2002 Total Clients, 199,485
2003 Total Clients, 227,137
2004 Total Clients, 165,652

  • Source: 2004 CARE Act Data Report, Section 2, Items 24 and 25.

TABLE OF CONTENTS


 

HIV/AIDS Status of Duplicated Clients Served by CARE Act Providers

N=964,983 duplicated clients

Pie Chart containing the following data...
HIV Positive not AIDS, 362,797
HIV Positive, unknown AIDS, 193,202
AIDS, 322,082
HIV negative, 86,902

  • Source: 2004 CARE Act Data Report, Section 2, Item 33.
  • Percentages may not sum to 100 percent due to rounding error.
  • HIV/AIDS status was unknown or unreported for 78,750 clients.

TABLE OF CONTENTS


 

Gender of Duplicated Clients Served by CARE Act Providers

N=1,005,366 duplicated clients


Pie Chart containing the following data...
Male,668,087
Female, 331,918
Transgender, 5,361

  • Source: 2003 CARE Act Data Report, Section 2, Item 26
  • Percentages may not sum to 100 percent due to rounding error

TABLE OF CONTENTS


 

Age of Duplicated Clients Served by CARE Act Providers

N=1,001,714 duplicated clients

Pie Chart containing the following data...
Less than 2 years, 8,915
2-12 years, 24,052
13-24 years, 74,800
25-44 years, 535,355
45-64 years, 342,665
65 years or older, 15,927

  • Source: 2004 CARE Act Data Report, Section 2, Item 27.
  • Percentages may not sum to 100 percent due to rounding error.
  • Age was unknown or unreported for 42,016 clients.

TABLE OF CONTENTS


 

Ethnicity of Duplicated Clients Served by CARE Act Providers

N=972,205 duplicated clients

Pie Chart containing the following data...
Hispanic or Latino/a, 221,544
Non-Hispanic or Latino/a, 750,661

  • Source: 2004 CARE Act Data Report, Section 2, Item 28.
  • Percentages may not sum to 100 percent due to rounding error.
  • Ethnicity was unknown or unreported for 71,525 cases.

TABLE OF CONTENTS


 

Race of Duplicated Clients Served by CARE Act Providers

N=900,058 duplicated clients

Pie Chart containing the following data...
Black, 467,467
White, 372,907
More than one race, 42,635
Other race, 17,049

  • Source: 2004 CARE Act Data Report, Section 2, Item 29.
  • Percentages may not sum to 100 percent due to rounding error.
  • “Other race” category includes Asian, Native American or Other Pacific Islander, and American Indian or Alaska Native.
  • Race was unknown or unreported for 143,672 cases.

TABLE OF CONTENTS


 

Health Insurance Status of Duplicated Clients Served by CARE Act Providers

N=801,086 duplicated clients

Pie Chart containing the following data...
Private, 85,541
Medicare, 80,646
Medicaid, 287,990
Other Public, 72,930
No insurance, 251,492
Other, 22,484

  • Source: 2004 CARE Act Data Report, Section 2, Item 32.
  • Providers report the health insurance that provides the most reimbursement if a client has more than one source of health.
  • Other Public health insurance includes State-funded insurance plans, military health care (TRICARE/CHAMPUS, CHAMPVA, and care provided by the Department of Veterans Affairs), the State Children’s Health Insurance Program (SCHIP), and the Indian Health Service (IHS).
  • Percentages may not sum to 100 percent due to rounding error.
  • Health Insurance was unknown or unreported for 242,647 cases.

TABLE OF CONTENTS


 

Number of Visits for Health Care and Case Management Services to CARE Act Providers, 2002-2004

Bar Chart containing the following data...
Rehabilitation services: 23,057(2002); 26,592(2003); 14,530(2004)
Substance abuse services–residential: 115,006(2002); 101,687(2003); 153,250(2004)
Oral health care: 230,046(2002); 233,975(2003); 219,045(2004)
Home health*: 222,126(2002); 193,190(2003); 237,665(2004)
Mental health services: 531,829(2002); 570,550(2003); 609,314(2004)
Substance abuse services–outpatient: 551,891(2002); 553,957(2003); 630,175(2004)
Ambulatory/outpatient medical care: 2,347,692(2002); 2,468,419(2003); 2,099,774(2004)
Case management services (HIV+ clients): 4,173,378(2002); 4,199,537(2003); 3,689,838(2004)

  • Source: 2004 CARE Act Data Report, Section 3, Item 35.
  • Home health* includes para-professional care, professional care, and specialized care.

TABLE OF CONTENTS


 

Number of Visits per Client to CARE Act Service Providers

Service Number of Service Provider Percent of service providers (N=1,520) Average number of visits per client per provider * Median number of visits per client * Range number of visits per client *
Ambulatory/outpt. medical care
877
34%
6.7
5.1
1-142
Mental health services
853
33%
7.2
4.4
1-185
Oral health care
542 21% 2.4 2.1 1-13
Substance abuse services–outpatient
443
17%
19.9
5.4
1-389
Substance abuse services–residential
88
3%
29.2
11.9
1-180
Rehabilitation services
64 2% 12.9 3.5 1-240
Home health: para-professional care
136 5% 43.9 18.8 1-365
Home health: professional care
113 4% 15.8 4.5 1-199
Home health: specialized care 41 1% 7.8 2.0 1-78
Case management services
(among HIV + clients)
1,305 51% 13.9 9.3 1-206
  • Source: 2004 CARE Act Data Report, Section 3, Item 35.
  • (*) Data reported in this table are based on valid reports only. Valid data are defined as providers reporting complete data for both the number of clients served and number of visits.
  • For each service type, the actual number of providers serving clients is higher. However, the average number of visits per client was calculated only for those providers with valid data for number of clients served and number of client visits. Providers may offer multiple services; thus, a provider may be included in more than one service category.
  • A client may only have one visit for each service per day. For residential substance abuse treatment, each day in a residence facility equals one visit.

TABLE OF CONTENTS


 

Number of Duplicated Clients Receiving Support Services from CARE Act Providers

Bar Chart containing the following data...
HIV Positive
Health education / risk reduction, 129,070	
Outreach services, 35,307	
Transportation services, 106,055
Food bank / home-delivered meals, 117,526	
Client advocacy, 117,032	
Psychosocial support services, 98,295	
Referral for health care / supportive services, 89,795	

Affected
Health education / risk reduction, 34,285
Outreach services, 58,774
Transportation services, 5,683
Food bank / home-delivered meals, 5,304
Client advocacy, 7,478
Psychosocial support services, 12,411
Referral for health care / supportive services, 9,069

Bar Chart containing the following data...
HIV Positive
Treatment adherence counseling, 124,000	
Other services, 94,976
Emergency financial assistance, 67,160	
Nutritional counseling, 83,893
Housing services, 44,090
Legal services, 23,739	
EIS* for Titles I and II, 13,991	

Affected
Treatment adherence counseling, 3,386
Other services, 5,757
Emergency financial assistance, 3,417
Nutritional counseling, 3,686
Housing services, 2,364
Legal services, 1,283
EIS* for Titles I and II, 8,319

Bar Chart containing the following data...
HIV Positive
Buddy / companion service, 7,313	
Child care services, 3,077
Day or respite care for adults, 4,852
Permanency planning, 3,908	
Developmental assessment / EIS*, 3,874
Child welfare services, 1,847
Residential or in-home hospice care, 1,885

Affected
Buddy / companion service, 851
Child care services, 2,591
Day or respite care for adults, 266
Permanency planning, 1,259
Developmental assessment / EIS*, 1,289
Child welfare services, 1,429
Residential or in-home hospice care, 326

  • Source: 2004 CARE Act Data Report, Section 3, Item 35.
  • Clients served include all individuals who had at least one visit for any eligible service during the reporting period.
  • (*) Early Intervention Services.

TABLE OF CONTENTS


 

Percent of HIV Positive Clients Receiving Medical Care from CARE Act Providers by Gender

N=360,895 duplicated clients

Pie Chart containing the following data...
Male medical clients, 242,126
Female medical clients, 117,088
Transgender medical clients, 1,681

  • Source: 2004 CARE Act Data Report, Section 5, Item 45.
  • These data are limited to medical service providers as reported in section 3, item 1a under ambulatory/outpatient medical care provider. Clients reported in section 5 may have received care other than medical and therefore the number of clients reported in section 5 may not agree with the number of clients reported in section 3 under ambulatory/outpatient medical care.
  • Percentages may not sum to 100 percent due to rounding error.
  • Gender was unknown or unreported for 465 clients.

TABLE OF CONTENTS


 

Percentage Distribution of HIV Exposure among Duplicated HIV Positive Clients from CARE Act Providers

N=322,436 duplicated clients

Pie Chart containing the following data...
MSM, 114,118
IDU, 42,756
MSM and IDU, 8,552
Hemophilia/ coagulation disorder/ blood or tissue, 4,233
Heterosexual contact, 132,279
Perinatal transmission, 9,356
Other, 11,142
No identifiable risk factor, 38,927

  • Source: 2004 CARE Act Data Report, Section 5, Item 46.
  • These data are limited to medical service providers as reported in section 3, item 1a under ambulatory/outpatient medical care provider. Clients reported in section 5 may have received care other than medical and therefore the number of clients reported in section 5 may not agree with the number of clients reported in section 3 under ambulatory/outpatient medical care.
  • Percentages may not sum to 100 percent due to rounding error.

TABLE OF CONTENTS

 


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