Final Agenda
Wilbur J. Cohen Building
300 C. Street, S.W., Room 5051
Washington, DC 20201
Wednesday, August 1Transcript |
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Context Setting, Background on Seminal Work |
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9:00 9:15 a.m. |
Introductions and Overview |
Simon Cohn, M.D., M.P.H., Chair, NCVHS and Ad Hoc Workgroup for Secondary Uses of Health Data |
9:15 10:00 a.m. |
Key Opportunities and Challenges in Framing Uses of Health Data |
John
Lumpkin, M.D., M.P.H.
Wendy Patterson, caBIG |
10:00 10:15 a.m. |
Break |
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Perspectives on Uses of Health Data |
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10:15 12:00 a.m. |
Quality Perspectives |
Joel
Goldwein, M.D., Oncology Data Alliance, Elekta, Inc., Impac
Scott Young, M.D., Archimedes DM Model (by
phone) |
12:00 1:15 p.m. |
Lunch |
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1:15 2:30 p.m. |
Secondary/Tertiary Uses |
Jean
Chenoweth, Solucient Top 100 Hospitals
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2:30 2:45 p.m. |
Break |
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2:45 - 4:00 p.m. | Public Health/Statewide Planning Perspectives | David
Carlisle, California Office of Statewide Health Planning
Leslie Lenert, M.D., Centers for Disease
Control and Prevention
Vickie Hohner, Fox Systems (by phone)
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4:00 5:30 p.m. |
Working Session |
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Thursday, August 2Transcript |
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Perspectives on Uses of Health Data, Con't. |
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8:30 10:00 a.m. |
Research Perspectives: Quality vs. Research; Data Use Agreements; IRB |
Marcelline
Harris, R.N., Ph.D., Mayo, ANA
Sharon Terry, Genetic Alliance
Margaret Gunter, HMO Research Network and
Lovelace Clinic Fdn/NM RHIO
|
10:00 10:15 a.m. |
Break |
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10:15 a.m. 11:45 a.m. |
Health Plan Perspectives |
Carmella
Bocchino, America's Health Insurance Plans
Shirley Lady, Blue Cross Blue Shield
Association - BHI
Deborah Peel, M.D., Patient Privacy Rights
Foundation
|
11:45 1:00 p.m. |
Lunch |
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1:00 2:30 p.m. |
Data Sharing Perspectives -Longitudinal Data in NHIN -New IOM Panel on Privacy -Transparency and Authorization/Consent "on the ground" |
Karen
Adams, M.D., NQF Senior Program Director
Sharyl Nass, Ph.D., Study Dir. IOM Privacy
Committee
Barbara Siegal, American Health Information
Management Association
|
2:30 2:45 p.m. |
Break |
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2:45 5:30 p.m. |
Working Session |
Friday, August 3Transcript |
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8:30 - 10:00 a.m. |
Working Session |
Dr. Cohn |
10:00 -10:55 a.m. |
Planning and Next Steps |
Dr. Cohn |
11:00 a.m. |
Adjourn |
Note: Written Testimony submitted by: Deborah Collyar, President, Patient Advocates in Research (PAIR)
August 10, 2007