Appendix 2. Project Interviewees, Experts
Consulted, and Reviewers
e-Health Tool Developers and Researchers Interviewed
Wendy Angst, M.H.A.
CapMed, a Division of Bioimaging Technologies
e-Tool: PHR (Personal Health Record) and Personal HealthKey
www.bioimaging.com
Dennis Ary, Ph.D.
Oregon Center for Applied Science (ORCAS)
General overview of ORCAS products
www.orcasinc.com
Sarah Berg
Ripple Effects
e-Tool: Bring It On
www.rippleeffects.com
Susan Brink, Dr.P.H.
Healthmark Multimedia
e-Tool: Adventures with the Shady Characters
www.healthmarkmultimedia.com
Vesta Brue, M.B.A.
Smoke Signals
e-Tool: SmokeSignals
www.smokesignals.net
Simon Budman, Ph.D.
Inflexxion
e-Tool: myStudentBody—Alcohol
www.mystudentbody.com
Ginger Carrieri-Kohlman, Ph.D.
University of California, San Francisco (UCSF) School of Nursing
e-Tool: eDSMP (Internet-based dyspnea self-management program)
www.managesob.org
Adrian Casillas, M.D.
Geffen School of Medicine, University of California, Los Angeles
(UCLA)
e-Tool: Airaware (IMMEX)
www.immex.ucla.edu
(background information)
www.immex.ucla.edu/docs/collaborations/airaware.htm
Brian Cuffel, Ph.D.
LifeMasters
e-Tool: LifeMasters
www.lifemasters.com
Adam Darkins, M.D., M.P.H., F.R.C.S.
Veterans Health Administration
e-Tool: Care Coordination, VHA Telehealth
www.va.gov/occ
David Feffer, M.P.H.
Health Dialog Services Corporation
e-Tool: HealthDialog.com
www.healthdialog.com
Barry Fortner, Ph.D.
Supportive Oncology Services
e-Tool: Supportive Oncology Services (SOS) information system
Patricia Franklin, M.D., M.P.H., M.B.A.
University of Massachusetts Medical School
e-Tool: RealAge
www.realage.com
Gilles Frydman
Association of Cancer Online Resources (ACOR)
e-Tool: ACOR
www.acor.org
Harold Goldberg, M.D., M.A.
University of Washington and NuMedics, Inc.
e-Tool: Internet Comanagement Module for Type 2 Diabetes: The
Living with Diabetes Project
Alan Greene, M.D., Cheryl Greene, and Beverly Richardson
Greene Ink, Inc.
e-Tool: drgreene.com and drgreene.org
www.drgreene.com and
www.drgreene.org
David Gustafson, Ph.D., M.S., and Fiona McTavish, M.S.
University of Wisconsin
e-Tool: CHESS (Comprehensive Health Enhancement Support System)
(overview)
http://chess.chsra.wisc.edu/chess
James Hereford, M.S.
Group Health Cooperative, Seattle
e-Tool: mygrouphealth.org
www.mygrouphealth.org
John Hsu, M.D., M.B.A.
Kaiser Permanente
e-Tool: www.kaiserpermanente.org
Sharmila Kamani
Degge Group
e-Tool: Kidz with Leukemia: A Space Adventure
www.kidzwithleukemia.com
Donald Kemper, M.P.H.
HealthWise
e-Tool: Information therapy
www.healthwise.org
Matthew Kreuter, Ph.D., M.P.H.
St. Louis University
e-Tool: Reflections of You
http://hcrl.slu.edu
Brian Laing, M.S.
Mayo Clinic
e-Tool: MayoClinic.com
www.mayoclinic.com
Kate Lorig, Ph.D.
Stanford University Department of Medicine
e-Tool: Diabetes self-management online
http://patienteducation.stanford.edu
Howard Mahran
NexCura
e-Tool: NexCura.com, cancerfacts.com, heartfacts.com
www.nexcura.com
Tami Mark, Ph.D.
Medstat
e-Tool: SOS (Supportive Oncology Services) Information Services
www.medstat.com
Phil Marshall, M.D., M.P.H.
WebMD
e-Tool: WebMD Health Manager and Personal Health Manager
www.webmd.com
Kevin Patrick, M.D., M.S.
University of California, San Diego
e-Tool: PACE I-DP (Patient-centered Assessment & Counseling
for Exercise & Nutrition Internet Diabetes Prevention)
http://paceproject.org
Ginger Price
Veterans Health Administration
e-Tool: My HealtheVet
www.myhealth.va.gov
Barbara Rapchak
Leap of Faith
e-Tool: One World
www.leapoffaith.com/products_oneworld.asp
Barbara Rimer, Dr.P.H., M.P.H.
University of North Carolina
e-Tool: ACOR
www.acor.org
Michael Roizen, M.D.
SUNY Upstate Medical University
e-Tool: RealAge
www.realage.com
Daniel Sands, M.D., M.P.H.
Beth Israel Deaconess Hospital/CareGroup
e-Tool: PatientSite, Beth Israel Deaconess/CareGroup
www.caregroup.org/patientsite.asp
Dirk Schroeder, Sc.D., M.P.H.
HispaniCare
e-Tool: DrTango
http://drtango.com
Skye Schulte, M.S., M.P.H.
HealthGate
e-Tool: HealthGate
www.healthgate.com
Ed Sharpless
Healthtrac
e-Tool: MyHealthtrac
www.healthtrac.com
Steven Shea, M.D.
Columbia University Division of General Medicine
e-Tool: IDEATel (Informatics for Diabetes Education and Telemedicine)
Project
www.ideatel.org
Cynthia Solomon
Access Strategies, Inc.
e-Tool: MiVIA.org and FollowMe.com
www.mivia.org and www.followme.com
Victor Strecher, Ph.D., M.P.H.
University of Michigan
e-Tool: NCI Centers of Excellence, Project 1
http://chcr.umich.edu
Paul Tang, M.D.
Palo Alto Medical Foundation (PAMF)
e-Tool: PAMFOnline
www.pamfonline.org
Richard Thorp
MultiMedia Systems, Inc.
e-Tool: Cervical Cancer MultiMedia Toolbox for Vietnamese American
Women
Armando Valdez, Ph.D.
Valdez & Associates
e-Tool: Breast Cancer Kiosk
Kevin Wildenhaus, Ph.D.
HealthMedia
e-Tool: Balance
www.healthmedia.com
Eric Zimmerman, M.P.H., M.B.A.
Relay Health Corporation
e-Tool: RelayHealth
www.relayhealth.com
Back to Top
General Background on e-Health
Connie Dresser, R.D.P.H., R.M.
National Cancer Institute (NCI)
Small Business Innovation Research Program
Tom Ferguson, M.D.
University of Texas
The Ferguson Report
Susan Fussell, Ph.D.
Human Computer Interaction Institute, Carnegie Mellon University
Ed Madara, M.S.
American Self-Help Clearinghouse
Dena Puskin, Sc.D.
Office of Health Information Technology
Health Resources and Services Administration (HRSA)
U.S. Department of Health and Human Services (HHS)
Back to Top
Meeting With HHS Staff on Consumer and Patient e-Health Tools
March 3, 2004
Purpose: To consult with HHS staff about
the direction and status of the project and identify e-health
research projects at HHS
Participants:
David Baker, ODPHP, HHS
Cynthia Baur, Ph.D., ODPHP, HHS
S. Scott Brown, M.P.H., Centers for Disease Control and Prevention
(CDC), HHS
Mary Jo Deering, Ph.D., ODPHP, HHS
Leslie Hsu, M.P.H., ODPHP, HHS
Susan Baird Kanaan, M.S.W., Consultant
Susan Katz, M.P.H., CDC, HHS
Sonya Lewis, M.A., R.D., CDC, HHS
Karen McCoy, Centers for Medicare & Medicaid Services
(CMS), HHS
Cecilia McNamara, Ph.D., National Institute on Drug Abuse
(NIDA), National Institutes of Health (NIH), HHS
Susan Newcomer, Ph.D., National Institute of Child Health
and Human Development (NICHD), NIH, HHS
Clara Olaya, M.A., CDC, HHS
Erica Talley, CDC, HHS
Margaret Tolbert, Food and Drug Administration, HHS
Back to Top
Conference Call on Audience Factors
April 1, 2004
Purpose: To expand on interview findings
regarding how e-health tool developers and researchers think
about audiences as they develop and evaluate their tools
Participants:
Cynthia Baur, Ph.D., ODPHP, HHS
Adrian Casillas, M.D., Geffen School of Medicine, UCLA (written
comments)
Sarah Berg, RippleEffects
Simon Budman, Ph.D., Inflexxion
Alan Greene, M.D., drgreene.com
Susan Baird Kanaan, M.S.W., Consultant
Jim Price, M.B.A., DrTango
Suzanne Suggs, Ph.D., M.Sc., HealthMedia
Back to Top
Conference Call on e-Health
and Community Technology Access
May 18, 2004
Purpose: To explore the role of community
technology in expanding access to e-health tools for underserved
populations
Participants:
Terry Baines, Telehealth Liaison, Alaska Department of Health
and Social Services
Cynthia Baur, Ph.D., ODPHP, HHS
Laura Breeden, America Connects Consortium, Education Development
Center
Richard Chabran, Community Partners
Ben Hecht, J.D., One Economy
Leslie Hsu, M.P.H., ODPHP, HHS
Susan Baird Kanaan, M.S.W., Consultant
Wendy Lazarus, M.P.H., Children’s Partnership
Laurie Lipper, Children’s Partnership
Patty Owen, Health Promotion Unit, Division of Public Health,
Alaska Department of Health and Social Services
Randal Pinkett, Ph.D., M.B.A., Building Community Technology
Partners, LLC
Alice Rarig, Office of Rural Health and Primary Care, Alaska
Department of Health and Social Services
Elisabeth Stock, M.C.P., M.Sc., Computers for Youth
Back to Top
Draft Report Review Meeting
November 22, 2004
Purpose: To review the first draft of the
present report
Participants:
David Ahern, Ph.D., Health e-Technologies Initiative, Brigham
and Women’s Hospital
Cynthia Baur, Ph.D., ODPHP, HHS
Sarah Brachle, One Economy
Susan Brink, Dr.P.H., Healthmark Multimedia, LLC
Simon Budman, Ph.D., Inflexxion
Tom Eng, V.M.D., M.P.H., eHealth Institute
Patricia Franklin, M.D., M.P.H., M.B.A., University of Massachusetts
Medical School
Susan Baird Kanaan, M.S.W., Consultant
Gary Kreps, Ph.D., George Mason University
Guadalupe Pacheco, M.S.W., Office of Minority Health, HHS
Randal Pinkett, Ph.D., Building Community Technology Partners,
LLC
Dirk Schroeder, Sc.D., M.P.H., HispaniCare
Kavita Singh, Ed.M., Community Technology Centers’ Network
(CTCNet)
Jessica Townsend, Office of Planning and Evaluation, HRSA,
HHS
Sandra Williams, M.A., NIH, HHS
Back to Top
Other Reviewers of the Report
Jeffrey Bauer, Ph.D., ACS Healthcare Solutions
Helen Burstin, M.D., Agency for Healthcare Research and Quality,
HHS
Jodi Daniel, J.D., M.P.H., Office of the National Coordinator
for Health Information Technology, HHS
Connie Dresser, R.D.P.H., R.M., NCI, NIH, HHS
Susannah Fox, Pew Internet & American Life Project
Miryam Granthon, M.P.H., Office of Minority Health, HHS
Linda Harris, Ph.D., NCI, NIH, HHS
Helga Rippen, M.D., Ph.D., M.P.H., Office of the Assistant
Secretary for Planning and Evaluation, HHS
Back to Top
Research Assistants
Leslie Hsu, M.P.H., ODPHP, HHS
Omar Passons, M.P.H., ODPHP, HHS
Rhonda Royster, M.P.H., IQ Solutions, Inc.
Sandra Saperstein, M.S., IQ Solutions, Inc.
Eva Tetteyfio, M.H.S., IQ Solutions, Inc. |
