Judge not?

People are sometimes surprised when I say that I am incredibly judgmental. I probably don’t come across that way very often because I have worked very hard to integrate this aspect of my personality, rather than repress it and pretend that it doesn’t exist. I’m not sure if I’ll ever reach a point where my judgmental tendencies completely go away, but what I try to do is be aware of when I am looking at things from a place of judgment.

If I notice myself veering in that direction, I sit with it as if I am sitting with a friend and having a conversation. I ask myself what it is that bothers me, and then I try to see the situation from the other person’s point of view. I find that I’m less reactive and less likely to hold onto that initial impulse. I am able to release it more easily and move into a space of compassion and perhaps even a deeper understanding of the other person’s experience.

The beauty of life is to experience yourself

This morning I was thinking about how I’m more likely to be judgmental when I’m tired and when I’m in stressful situations. I was frustrated with a driver who was hovering between two lanes at a stoplight, to the point that I couldn’t get into the left turn lane. My initial thought: “What is wrong with this person? Doesn’t anyone know how to drive anymore?”

Then I thought about the times when I haven’t been the world’s greatest driver, and I reminded myself that others have probably had similar thoughts about me at some point or another. As I breathed more deeply, I imagined what types of distractions might be occupying the driver’s mind. Maybe she had just heard some bad news, or perhaps she was also tired and busy.

Ultimately, though, it doesn’t matter. I don’t need to know why she was blocking me. All I needed to do was focus on my own driving and personal safety, and let go of whatever anger and judgment I was holding inside of me. With the next exhale, I let it go, and I restored my sense of personal eace in the world.

Open your heart

I’ve found this practice to be incredibly beneficial in relating to others, and it’s also helped me to be less critical of myself. When I was younger, I hated my tendency to judge others, but as I’ve started to make peace with it, I find that I am more patient, compassionate, and willing to extend grace to others than I would be otherwise.

Because I regularly practice shifting from judgment to compassion in fleeting everyday situations, I’m also able to be less reactive when someone does something that hurts me or someone I love (to varying degrees of success, for sure). If I pretended like this part of myself (what is referred to as “the shadow” in Jungian terms) didn’t exist, I’d have a more difficult time moving beyond those impulses. Maybe that’s the real lesson after all…

How far would you go?

If your child were in immediate danger, how far would you go to protect your child from that danger? Would you risk your own life? Would you be willing to break the law?

I can’t count the number of times I’ve heard people say that they would respond with violence (legally or illegally) if someone tried to hurt their children. There are even t-shirts and bumper stickers marketed toward this demographic, including this slogan: “Guns don’t kill people. Dads with pretty daughters do.”

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There is usually some truth behind humorous statements, and while I’m not an advocate of violence, I can understand the emotions that would motivate such a view. Parents want to whatever they can to protect their children. It’s painful to witness a child being hurt (even if the hurt is due to cruel words), or to live in the aftermath of destruction.

To shift gears, how far would you go to protect someone else’s children? Would you risk your own life? Would you be willing to break the law?

Perhaps the answers to these questions are dependent on whose children I’m talking about. Would you go further to intervene if the kids were nieces or nephews? Or your best friend’s children? Or the students in your classroom at school? Or your next door neighbor?

What if the child was someone you didn’t know? Would that make a difference? Where would you draw the line for when to intervene versus when to walk away? Is there a point when you would say “Not my problem”?

This is a moral decision that we’re being asked to make at this very moment, as children are crossing the border into the U.S. to escape rape, gun violence, and even death.

Church leaders are standing up and advocating on behalf of these children, even when it means going to jail, as is the case with a United Methodist bishop and a Roman Catholic nun who were among those arrested during a protest rally outside of the White House today.

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There are those who quickly say “Not my problem.” They push the moral dilemma aside, arguing that it’s up to other countries to address the violence that’s endangering children (while ignoring the role that the U.S. has played in creating a huge demand for illegal drugs, with drug cartels contributing significantly to the violence that children are trying to escape…although even that has been twisted into false accusations that cartels are using children to smuggle drugs across the border and create “future terrorists”…I’ve even had people tell me that I’m “ignorant” and “misinformed” because I don’t buy into the paranoia).

As I’m sitting here typing this blog post, my stomach is in knots, and I’m fighting back tears. I try so hard to understand other people’s motivations, but no matter how hard I try, I simply cannot understand the callousness of those who believe that we should send these children back into dangerous environments. The best that I can conclude is that fear of the unknown must be a major underlying factor of these angry reactions.

I’m looking at a photograph posted by the Dallas Morning News, and all I see is hatred. Yesterday it was pointed out that the expression on these women’s faces is eerily similar to the expressions on the faces of those who protested the desegregation of schools in the 1950s.

Before you continue reading, please take a moment to click on the links to these photos. I’m not posting the pictures directly here because they are copyrighted, but I do think it’s important to see the images.

Protest in Dallas
School desegregation protest
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I’ve heard the argument that there are no parallels between desegregation and our immigration situation, but such an argument fails to acknowledge that the current situation is indeed a moral crisis, just as segregation was.

“But they’re breaking the law. It’s not fair.” (I’ve heard this said by people who have a known history of disregarding “inconvenient” laws, such as traffic speed limits and blood alcohol levels that were established to minimize the risk of fatal car accidents.)

“We can’t afford to…” (Would these same people sacrifice their own children’s physical safety due to financial limitations?)

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Beyond the obvious inconsistency of those who point a finger at others while not admitting to their own history of breaking laws and their expectations that double standards be applied when for their own personal benefit, I’d like to return to the questions that I posed at the beginning of this post:

If your child were in immediate danger, how far would you go to protect your child from that danger? Would you risk your own life? Would you be willing to break the law?

I’ve traveled far and wide, not to mention interacted extensively here at home with people from all over the world, and I can say with certainty that parents are the same everywhere: they want to protect their children. They will do whatever they can to ensure their children’s safety and security. If a child is being raped, terrorized by gang violence, or otherwise threatened, parents are going to intervene. That’s what parents sign up for when they have children.

My conclusion is not due to some sort of ignorance or naïveté on my part. I’m not getting my information radio and TV talk show commentators who react from the safety of their corporate offices and security alarmed mansions, without ever having engaged in conversations with parents around the world. I’m speaking from over two decades of first-hand global travel-based knowledge.

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I can assure you that these are very real situations. Last year, I listened in the hall outside of a Congressional hearing in D.C. to a child being interviewed by a TV news station, recounting the trauma of living in constant fear, with tears streaming down her face. After the interview was over, I asked her if I could give her a hug. We stood there hugging, and all I could think about was that I wanted to do what I could to make her life safer and more innocent, the same way that I would try to do for every single child I’ve ever encountered.

The question becomes: what are we going to do? 

We have several options:

1) Do what we can to help protect these children;

2) Dismiss the problem and pretend that these children are not actually in danger;

3) Even worse: blame these children for the situation they’re in, or try to rationalize fears and lack of empathy by accusing the children of smuggling drugs or being terrorists;

4) Say “It’s not my problem” and knowingly send children back into violent situations.

What would you do if it were your own child, or someone you loved?

When will we finally be willing to extend love and show compassion for every single person in this world, as we’re called to do?

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Silly Break

I’m way behind on blogging. Travel stuff on the way, and also part two of Poverty and the Doctrine of Shame. In the meantime, here is a silly break…a change of pace from the super-serious things I’ve been writing about lately.

As a child, I hated the color of my hair. It’s not fire-engine red, but reddish enough to where my hair was the source of endless teasing in a small town where my hair color was unusual. And given that I didn’t grow up near Dublin (the only place I’ve ever visited where I actually blended in), red hair wasn’t exactly common.

Me 3rd grade

Oh how I hated my hair. And yes, my fashion style hasn’t changed much over the years. I own a strikingly similar shirt now.

I also had a particularly vivid imagination throughout my childhood. Still do, in fact. At one point when I was feeling particularly self-conscious about my hair, I concocted a plan to rid myself of the redheaded curse. OK, so my original plan was to dye my hair black, but my mom vetoed my request. For some strange reason, she didn’t think that an 8-year old should go to such extremes, and her unconditional love for me made it impossible for her to understand why I hated my hair so much.

Then I came up with an even better plan. One that didn’t involve chemicals. (Or so I thought.) I’m not sure exactly how I came up with this idea, but I decided that I wanted to shave my head. But no, my vision wasn’t as simple as me walking around with no hair. I wanted to replace my hair with a whipped cream wig. For some reason, I seem to remember a book that included a picture of a man wearing a very full (and rather ridiculous-looking) shaving cream beard. My imagination ran with the concept….

Me with a beard

Not quite a shaving cream beard, but close…

The conversation went something like this.

Me: “I hate my hair. I want to shave it all off.”
Mom: “No, Cynthia, you can’t shave your head.”
Me: “Why not?”
Mom: “You’re not old enough to use a razor.”
Me: “You could do it.”
Mom: “I would have to shave it every few days, and we don’t have time for that.”
Me: “But I want to shave my head!!!!!”
Mom: “No.”
Me: “I could wear a whipped cream wig.”
Mom: “What?”
Me: “Instead of hair. I could have a wig. But made of whipped cream.”
Mom: “It would melt and run down your face.”
Me: “No, because I could eat it and carry Reddi-Whip with me to put more on.”
Mom: “Cynthia, we can’t afford Reddi-Whip. And we certainly can’t afford to buy a can a day.”
Me: “But it would be so much better than my hair.”
Mom: “If you think you get made fun of for your hair now, you would be picked on even more if you wore whipped cream on my head.”
Me: “Everyone likes whipped cream.”
Mom: “Not when it’s melting all over you in the hot Texas sun.”
Me: “Pleeeeaaaaassssseeeeee?????”
Mom: “No. You’ll thank me for this when you’re older.”

Whipped cream wig

I’m already wearing a cat costume. Why not add a whipped cream wig?

In hindsight, I guess that I can indeed thank her for not allowing me to fulfill all my childhood fantasies. Because, yeah, I would have looked rather silly wearing a whipped-cream wig. Probably…

P.S. I made the mistake of doing a Google search for “whipped cream wig” in hopes of finding an image to include in this blog post. Now I wish that my mom could have had a little talk with Katy Perry before she made her “California Gurls” video. Yikes! For a more whimsical picture (but I’m not posting it on this page because I assume it’s copyrighted), try this one.

Requiem for a Dog

Holly Beard came into the world in 1998, although it would be another year-and-a-half before she would meet her human “forever mommy” Cynthia. She quickly endeared herself to others, becoming the first dog ever allowed to sleep inside the home of Cynthia’s maternal grandmother.

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Holly wearing her Halloween-themed “boo bandana” (one of the very few items of clothing she would cooperate with)

OK, so in reality, after a long night of Holly yelping in the indoor back porch, the conversation actually went something like this:

“Cynthia, where does Holly usually sleep?”
“At the foot of my bed. I know…I tried to get her to sleep in the bathroom or on the floor, but she whined all night and I didn’t want to wake up the neighbors.”
“Well, why don’t we just let her do that from now on.”

Holly is confused about the weather blog

Occasionally she would get dressed up, but not for long. Here she is displaying her confusion about an unexpected Texas snowstorm in March.

Holly, ever the iconoclast, proceeded to challenge every established rule of social decorum, and became a constant companion to her mommy, both at home and on the road. Alas, one place Holly was not welcome: Chuck E. Cheese. A sweet then 3-year-old named Iris struggled to understand why Holly was not allowed to attend her birthday party, as Holly was every bit as much of a friend as the other guests.

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Holly’s adventuresome spirit sometimes landed her in predicaments, such as the time that she sprained her leg while jumping up onto the couch. Even while in a bandage, she threw her mommy for a loop by hopping up a flight of stairs and then intentionally entering a neighbor’s apartment. She always considered the entire building to be her extended home, and the neighbors usually obliged.

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A bandaged leg couldn’t slow her down

Although she had the appearance of a luxurious Yorkshire terrier, Holly was a rather scrappy little dog. She wasn’t a fan of costumes, bows, or froufrou haircuts (in spite of being subjected to them every once in a while for charity fundraisers). Her typical scrappy look occasionally led others to eye her with suspicion, including the running joke that she was merely an oversized rat. Joking aside, Holly’s energetic presence could intimidate the fiercest of creatures, and goats in particular would take great pains to avoid Holly’s licks of affection (aka, kisses). Even a Great Dane named Lady was known to hide out of reach whenever Holly visited.

She never intended any harm, and in spite of her breed’s rodent hunting nature, she rarely had the desire to eat anything without explicit permission. One incident with chocolate was enough to discourage her from exotic cuisine. She preferred her fancy dog treats, sometimes using bury them with air, like an invisibility cloak. She didn’t quite understand how her mommy could find these buried treasures, and would then move the treats to more remote locations where it might take several months for them to be discovered.

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In November of 2007, Holly embarked upon her most important job as caretaker and guardian of Cynthia’s mother Linda. Holly had always loved Linda and would stand by the front door staring at the lower corner whenever she heard Linda’s name, assuming that a visit was imminent. When Linda became disabled, Holly took the responsibility of guard dog very seriously and would cuddle up in the at-home hospital bed with her special friend. When Linda passed away in 2011, Holly cried for several hours after watching the medical equipment be hauled away. Even the two rescue kittens who boarded with Holly for the next month couldn’t console her. Life had changed, and not for the better.

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Holly slowed down in her later years, and eventually she stopped trying to lick every creature in sight (cats, ducklings, turtles, goats, even a deer…and in a rather gruesome episode, a dead mouse whom Holly attempted to resuscitate). Her lightning-speed games of chase (or, as she preferred, “I see you, and I’m going to get you!”) were replaced by increasingly long naps.

She accepted with grace that she could no longer jump on furniture or go on lengthy walks and jogs, and when her cataracts prevented her from seeing clearly, she seemed content with the fact that she would occasionally bump into things. Her declining ability to hear didn’t bother her too much, as she was less likely to be disturbed by sudden sounds that had in the past caused her to bark. As her hair thinned, she welcomed the warmth of her doggie Snuggie, and she contentedly curled up next to her mommy during the major ice storm that arrived a few short weeks before she passed.

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Holly was preceded in death by her beloved Linda, as well as two of Cynthia’s grandparents and a cherished aunt. She also lamented the loss of Grandpa’s dog Trixie, even though Trixie never quite knew what to make of Holly. She leaves behind her mommy Cynthia, aunt Sheryl, doggie cousin Penelope, and a huge number of friends whom she loved dearly. Dr. Wuensche also held a special place in her heart for all the loving care he provided over the 13-1/2 years as her veterinarian.

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Poverty and the Doctrine of Shame (part 1)

I’ve been mulling on this topic for a few days. It’s so complex that it could easily turn into a book, but I’m going to try to be semi-brief (well, in two parts, with this as part 1). Plenty of others have written about the complex factors that contribute to long-term poverty, so I’m not going to rehash those discussions. What I want to focus on is how our society shames and judges people who are poor.

A lot of the shaming comes in the form of puritanical super-virtuousness. The comment section of a recent blog post by emergent Christian author Rachel Held Evans was quickly filled with armchair poverty “experts” whose remarks were far removed from Jesus’ teachings that I wondered if we read from the same Bible.

This poster reads (and I cringe) "Welfare: You work hard so they don't have to!"

I hesitated about posting this pic, but I wanted to illustrate the stereotypes about welfare and poverty.

Here is an example from the blog comment section: “The poor fall into two categories – those without knowledge and the lazy.” During my childhood, my mother typically worked at least three jobs and still struggled at times to make ends meet. The blog reader’s declarative statement resembled childhood messages that I absorbed from the culture around me.

But generalizations sound quite different when we attach them to specific people. A rephrasing of the above comment might go like this: “Your mother’s struggles revealed that she fell into one of two categories – she lacked knowledge or she was lazy.”

Now, I have indeed encountered those who would have been so brazen as to insult my mother directly…or any other random person who has had financial difficulties. In general, though, a lot of these blanket statements are generic, and when pressed, the person doing the judging would most likely backtrack if I were to call out that kind of insult with a reminder that most of us know and love people who have faced financial challenges.

"Anyone who has ever struggled with poverty knows how extremely expensive it is to be poor." James Baldwin

This leads to another type of comment (here, I’m paraphrasing things I’ve heard frequently): “Your mother [or someone else we personally know] was different. She was doing the best she could, unlike those other lazy people.” My internal response: “Really? Are you absolutely sure about that? How do you know whether or not others were trying just as hard as she was?”

And then a typical followup from the armchair poverty expert: “I know this person who is collecting welfare and is on Medicaid, but she uses her food stamps to buy junk food, and she has an iPhone. She is always bragging about how she doesn’t have to work and can just live off the government.” (It’s usually a woman, thanks to the 1980s “welfare queen” myth.)

iPhone screen

There’s a lot to unpack in that kind of statement, but again, others have tackled the sociological aspects of this topic much better than I can here. A couple of things in the “I know this person who…” argument stand out to me, though. For one thing, there is an assumption that if one person in a particular situation is exhibiting a particular behavior (such as “taking advantage” of the system), it must be the norm, even when there is a lack of evidence to support such a questionable logical leap.

But I wonder what would happen if this same type of rhetorical formula were used in a different context. It might go something like this: “I know this person who speeds on the highway, but he has a radar detector and texts while driving. He is always bragging about how he never gets tickets and how he’d rather pay for a ticket than slow down anyway.” For whatever reason, speeding (which regularly endangers a whole lot of people’s lives, including children) is considered more socially acceptable behavior and far less dangerous than the possibility that someone might collect food stamps without actively looking for a job.

Another thought also comes to mind with the “I know this person who…” statement. Maybe the anecdotal woman really wishes that she could find a decent-paying job, and she is embarrassed that she can’t. There are times when we as humans might not want to admit to our own disappointments, so we minimize or dismiss our feelings in order to save face.

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It can be as simple as saying, “Well, I was going to break up with him anyway,” when the reality is that we weren’t expecting to get dumped. Or perhaps after getting passed over for a promotion, it’s justified with “I didn’t want the extra workload,” when in fact we were excitedly anticipating the challenge of new responsibilities. Or for women who have had no luck conceiving: “I love the freedom of not having kids,” when we secretly picked out baby names years ago.

Vulnerability is difficult stuff. We don’t always handle it well, and a lot of us will go to great lengths to avoid letting others know how we really feel about things that are emotionally painful. This is especially true about poverty. When someone says, “Poor people are lazy” (or “parasites” or “bums” or “stupid” or any number of other negative words that are often associated with poverty), maybe it’s just easier not to admit how difficult poverty really is.

When someone has applied for countless jobs, only to be rejected again and again, it’s demoralizing. But when that same person has to listen to judgmental comments from total strangers (not to mention supposed friends and family), it’s even worse. Because these insults might be confirming the deepest, darkest fears that many of us carry inside us: that there is something inherently, horribly wrong with us. Taken a step further, when these attitudes are taught in church, or articulated by those who claim to be Christian, this is what might be heard (whether or not it’s intended): “God does not approve of you. Poverty is your punishment.”

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But poverty is not a punishment. Regardless of what our worldly, materialistic consumer-driven society might tell us, it’s nothing to be ashamed of. Shame can drive us to do all sorts of destructive things to ourselves (physically, emotionally, and spiritually), and in my experience, I haven’t found a single beneficial value in shaming others. I’m going to continue this topic in a future post, but for now, I want to end with a message to the many friends I have who are struggling right now: I believe in your goodness. You matter. And no matter how difficult life might seem at times, I’m cheering you on.

Black Friday and American-style Materialism

I’m appalled at how Black Friday has evolved in recent years. Truly appalled.

From an economic perspective, I understand why stores market the way they do. Corporate number-crunchers in fancy suits worry about how stores will perform between Thanksgiving and New Year’s, when retailers attempt to make up for lackluster sales throughout the rest of the year.

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I listen to Marketplace on NPR enough to know that retail numbers are considered to be very important for our economy. Whether or not that’s how our economy should be measured, the reality is that this is the way we do things here in the US.

Our grandparents rationed. We shop.

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So it’s only natural that Black Friday has become what it is. A chaotic day in which hoards of people rush to the stores and literally fight over who can get out alive with the cheapest “Made in some country on the other side of the world where factory workers get paid less than a dollar a day and might even get trapped inside during a fire and die” merchandise.

‘Tis the season for fist punches and gun shots. Deck the hall…or deck your fellow shopper.

Walmart is ground zero for the War on (for?) Christmas. Or, at least, it looks like a battleground. Yes, other stores are complicit, but none seem to exploit violent shoppers as some sort of bargain-branding strategy.

People of Walmart indeed.

Wait…Friday isn’t soon enough. Now Thanksgiving evening is the new trend, because the pre-Christmas shopping season can’t get here soon enough. Yes, we’ve become accustomed to seeing Christmas decorations on display in July, but it’s not truly the season of buying until pre-post-Thanksgiving sales are upon us.

So this is Christmas. I hope you have fun.

As for the brave employees who leave their families on a national holiday to work these sales? Most of them are getting paid next to nothing for enduring the mayhem. How else can Walmart make a profit while selling electronic tablets for $29? Certainly not by cutting executive pay, even when the company’s performance is less than stellar.

“You shop at Walmart.”

That’s what kids said to each other when I was young. It was the worst insult you could possibly say. The only comeback I could think of at the time was, “How would you know? Did you see me there?” This was before the 24-hour super-duper-centers and Black Friday madness. Aah…to be young and picked on again…

We’re living in a material world

As I’ve been reflecting on what Black Friday has become, a particular childhood memory has come to mind. We didn’t have much money when I was growing up. Out of sheer budgetary desperation, mom considered putting my sister and me on the school free lunch program at one point, but I told her that I would rather starve than be subjected to such a horror. The reason was simple: everyone knew who was on free lunch, and given that I was already a bit “different” from my classmates, I just knew that I would be ridiculed for it…because we all know (or thought we knew) that kids are directly responsible for whether or not their parents can earn enough money (yet kids pick up on what they hear their parents say, which contributes to bullying and mockery).

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Because of my stubborn willfulness, my mother struggled to buy food for us. Sometimes this meant going without electricity for a couple of days, or walking around in bathing suits in the summer when the air conditioner was out for an extended period of time. But kids are cruel, and I didn’t know how much more cruelty I could handle.

If your doll’s butt doesn’t have a factory-stamped autograph on it, it’s not good enough for the playground.

As if the lunch situation wasn’t bad enough, I also had to deal with the fact that we couldn’t afford an “authentic” Cabbage Patch Kid. 5th grade. Back when 5th grade wasn’t the start of puberty for half the kids. My classmates brought their expensive dolls to school, and I was so happy when Mom bought me a lovely handmade Cabbage Patch knockoff. Mom couldn’t afford the real deal, but this one was actually nicer with its hand-stitching and one-of-a-kind clothes.

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I excitedly took my faux-CPK to school, feeling that I would “fit in” that day, only to discover that my doll was yet another source for me to feel inferior. You see, it didn’t have the official Xavier Roberts stamp on its tush, which meant that I definitely should not bring it back to school. I went home in tears, angry at my mother for not being able to afford the more expensive foreign-factory-made version, and I couldn’t even look at the doll for a month. I still have it, as it’s been something of a symbol of my childhood, keeping me in check whenever I start to feel pulled toward a more materialistic bent. Mom didn’t place a high value on expensive things, and now that I’m old enough to have a better perspective, I’m so thankful for that.

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“I live to shop.”

That phrase was plastered all over t-shirts, coffee mugs, and whatever other cheap merchandise was popular during the materialistic ’80s. And it’s still with us to a certain extent. There have been times when I’ve felt really judgmental toward those who become absorbed with the stuff of the world, but I have been trying not to be so judgmental about it. I could easily slip into an anti-consumer elitist mentality, looking down on those who rush to the big box stores and malls on Black Friday.

Change begins with me.

The thing is, though, that smugness, superiority, and disdain are not compassionate. I’m saddened by what this time of the year has become. I grieve when I read about the fights and the gunshots in retail stores. But I might also “get it,” just a little bit. I’m thankful that my mother taught me not to place so much value on objects, but I also remember what it was like to want to be included. “Stuff” is one of the ways we bond as humans. For better or worse, it’s a big part of our world. Only through intention can we change course. We can decide to live life differently, modeling to children that the stuff we accumulate is not what defines us. Perhaps then the media won’t be consumed by reporting on the latest toy, gadget, or fashion trend…and the people who are willing to physically assault each other in order to consume it.

Autumn leaves (for everything there is a season)

I’ve finally decided to write about a topic that has been hard to formulate into words. This post might offend some people, but there’s nothing I can do about it. Everything I’m saying here is what I honestly feel, and this is not a topic that I want to debate or be “persuaded” to take a different position on.

[Note: this is indeed a sensitive topic, and if you are dealing with the recent or imminent death of a loved one, you might not want to continue reading.]

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A friend of mine is grieving the impending passing of her mother, and she expressed her frustrations about how our society treats our elders. In particular, she commented on how it’s illegal in most states to perform physician-assisted suicide, yet perfectly legal (and mandatory) to sit by watching a terminally ill patient struggle to eat, drink, or even breathe. Even if the patient would prefer the dignity of not being forced to go through that extended, difficult, pain-filled process.

I’ve written about my mother’s death, but there is so much more I’ve wanted to say, especially as time has given me the ability to detach a bit from the emotionality of our journey. I’m still incredibly grateful for the gift of spending Mom’s final years with her, but I have also wondered about how things would have been different if she had died sooner. This kind of self-reflection could be dismissed as “shoulda, woulda, coulda,” but I’ve still found it useful because it’s helped me to formulate a better sense of my own moral and ethical views.

To be blunt, I’ve questioned whether we made a responsible decision in allowing Mom to remain on the ventilator so long. I’m not writing this to seek other people’s approval (or disapproval) of that decision…I honestly don’t want or need that. In fact, I really, really don’t want to hear statements like, “You did the right thing,” or “You did the best you could.” Those conciliatory comments are right up there with “God is in control,” “There’s a bigger plan,” and that sort of thing. I don’t know many people who find comfort in those words.

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So back to the point: there are times when I wonder if we should have taken Mom off the vent sooner. When she first decided to go on the vent, we had no idea that she would survive for as long as she did. We were expecting maybe six months if we were lucky, and we learned the statistical prognosis that less than 50% of long-term vent patients survive for a full year.

Mom wanted more time for us all to adjust to the reality of her terminal illness, and she was especially concerned about how one particular family member would handle the situation. She felt that “buying time” for a few months would make a difference.

But once you’ve elected to go down that road, it’s really hard to slam on the brakes. For one thing, vent removal must be done by a doctor, and for another, it’s really hard to identify the circumstances under which such a drastic change should occur. There is an institutionalization of sorts that happens with long-term acute medical care, and it can shape our thought processes. I found it difficult to transition from life-saving “rescue” care to palliative care because the two are so different. Once we finally found a hospice agency that would take on Mom’s case, they were incredibly helpful in that regard, but we still also had non-hospice nurses in the home who struggled to accept the change in approach.

One of the biggest conflicts I’ve had is questioning whether the amount of money spent on Mom’s healthcare (I haven’t added up the numbers from Medicare and everything else, but I estimate that it was several million dollars) was a responsible use of limited resources.

This is where the issue gets emotional: what would we be willing to give up for the benefit of others?

I experience this from simultaneously different angles. I’m so thankful for my mother’s presence in my life, and we grew so much closer (even though we’d always been close) during her illness. But then I think about how that money could have been used to help hundreds or even thousands of children who have no real access to healthcare.

In high school, I participated in competitive debate, and this was a sub-issue of our debate topic one semester. I remember having very strong opinions on the issue and quoting everyone from Kant to Aristotle to Ayn Rand (those who know me now might be surprised to learn that I was an avid fan of hers in my younger days) to defend my views.

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But the challenge is that philosophy and politics can’t really answer these questions for us. Philosophers can ponder the meaning of life in an intellectual fashion without ever getting to the heart of the human condition. Then politicians invent ridiculous concepts like “death panels” to exploit the fears of a public that relies on the internet and cable news pundits in order to raise campaign funds and manipulate voters. They might even act righteously concerned about ensuring that everyone has access to healthcare, even if they can’t seem to offer any viable solutions that move beyond sound bytes. Yet, neither the philosophers nor the politicians usually address the experience of sitting with a loved one who is dying, or the process of accepting one’s own mortality. That’s left to the mystics, who are often viewed as a New Age threat by religious fundamentalists more concerned with “thou shalt nots” than with experiencing God in the world.

I started this post by saying that I don’t want this to turn into a conversation where people who haven’t been through my experience to try to persuade me to adopt a different opinion. Perhaps that’s because I hold seemingly contradictory positions on the matter, almost in tension with each other. The tension is good, though. It’s through the “in between” spaces that we grow, whereas absolutist-fixed attitudes have a tendency to collapse when faced with the complexities of life.

As we move forward with necessary discussions about healthcare policy (not just governmental policy or private insurance guidelines, but also how medical institutions and practitioners interact with patients and families), it would be beneficial to spend some time reflecting on our own attitudes about end-of-life care. It’s not fun or comfortable, but ignoring the issue won’t make it go away.

In one way, this means taking the emotion out of it (I’m speaking specifically about fear-based reactionary emotions). But it also involves sitting in the sometimes intense emotions of what it means to be a human being who can’t survive forever, questioning what exactly we’re clinging to in this world, while acknowledging that death and dying can be painful, difficult, and grief-filled. We also need to be mindful that everyone’s situation is different, and one person’s decision might not be the best option for others.

For me personally, it means evaluating whether I would want millions of dollars to be spent on my healthcare, at the expense of countless others who have been dismissed as “not important enough” to receive even basic care. My mother made the best decision she could under the circumstances. But I wonder if she would have made that same decision if we lived in a society that isn’t so scared to have deep discussions about our own mortality.